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Posts (11)

3 days ago · This and That and Talk - My Transplant in Transplants

You will need some sort of pill organizer for the medications they will put you on

3 days ago · This and That and Talk - My Transplant in Transplants

I had my transplant mid April and did not get back into my job which is also physically demanding until October. 5 1/2 months. One of the worst things you can do is go back early and at full throttle. I ran into several people in the waiting areas of Mayo that felt great and went back to a full schedule and paid the price. Keep in mind that every individuals circumstances are different. Good luck

3 days ago · This and That and Talk - My Transplant in Transplants

Don’t forget your passwords to all your online accounts and a second list to give to your caretaker

Wed, Jan 9 10:36am · This and That and Talk - My Transplant in Transplants

My transplant journey had plenty of twists and turns also. At the very outset my pre-coordinator told me that my transplant was not a cure all. It would be an exchange of one set of problems for another. I came through the surgery with flying colors. I was out of the hospital in 5 days thinking “ that wasn’t as bad as I thought it would be “. My first setback came when I came down with CMV. I used to describe my symptoms as having mono on steroids. We worked our way through that and I thought I was in the clear. Then came the big one GVHD. There is nothing that will scare you more than going online and reading the medical studies on your condition or having your medical team tell you it’s a condition so rare in solid organ transplants that they don’t know how to test for confirmation or even how to treat it. All you can do at that point is trust your team. So there will be setbacks and there will be good days & bad days and eventually things will calm down & it will be smooth sailing. Keep your spirits up and maintain a positive attitude.

Dec 31, 2018 · Muscular pain relief in Transplants

As we all know NSAIDS aren’t allowed for post liver transplant patients. Has anyone tried voltaren gel or cbd oil ?

Dec 30, 2018 · New Transplant Blog Posts in Transplants

Make sure you are comfortable with the house rules before making a decision.

Dec 23, 2018 · Brain fog update in Transplants

I had to chuckle when I read your post. My back was extremely sore after surgery. I had assumed any post surgery pain would be centered in the abdominal area. So I asked my care team what was the cause of this pain and discomfort. They said that if I had seen the way the surgical team clamped me open during surgery I would understand my back hurt so much.

Dec 14, 2018 · First visit to Mayo and traveling alone: Winter advice? in Visiting Mayo Clinic

At centerstone we received a mayo patient discount-was that discussed when you booked?