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Sun, May 17 8:58pm · COVID-19 and Transplant Patients in Transplants

Michaelswaim- I compare my post transplant journey to that commercial where the new mother hardly lets her first born out of her sight and by the third kid she is handing him off to a guy covered in dirt. Establish good habits and practices and they become second nature after a while.

Sun, May 17 8:48pm · Liver transplant support group in Transplants

Xplantsister- I contracted CMV (cytomegalovirus) 2 months after my liver transplant in 2016. I told people at that time that the disease was like having mono on steroids. My treatment consisted of having a PICC line inserted for in home infusions of 450 mg of Ganciclovir In a 100ml bag. Each session lasted an hour and had to take place every 12 hours. Was also put on Prednisone and Prograf at the same time. Hope this information was somewhat helpful.

Wed, Apr 15 7:00pm · COVID-19 and Transplant Patients in Transplants

Recently I bought a hearing device that they were using at St. Mary’s in Rochester for their hearing impaired patients. I’ll spare you all the details but it was the fourth product I tried for use by my father-in-law. This product is called the pocket talker and I bought it on-line.Check it out.

Wed, Apr 15 6:47pm · Can I get tests done locally before appointment at Mayo? in Visiting Mayo Clinic

Post transplant all of my lab work is done locally except my Tacrolimus trough level. Pre-transplant is a different story though. They usually do not like to accept outside lab work or pictures. Your best bet is to call appointments to answer your questions or have them put you in touch with someone who can clarify the protocol they use in situations like yours. Best of luck.

Wed, Mar 25 10:36am · COVID-19 and Transplant Patients in Transplants

Sounds like me. I am going a little stir crazy cooped up at home. Any business I have to take care of is extremely difficult. In Mn. Bank lobbies are closed-government buildings are closed so even if you now have all this free time it’s very difficult to get anything done. I had to chuckle when you mentioned your husbands co-workers admonishing for being at work. I work with outside vendors on a daily basis and they all pretty much know about my transplant. And when they started to quiz me as to why I was still working in a job that had such a high volume of foot traffic I started to consider a LOA. But it wasn’t until I got a text message from my daughter in all caps that I did the right thing. Hope to get back to work in the upcoming months and until then its me and the dogs and a very long honey-do list.

Tue, Mar 17 6:34pm · Liver transplant support group in Transplants

One advantage of the numbness is that my daily insulin shots can be administered pain free

Tue, Mar 17 6:28pm · COVID-19 and Transplant Patients in Transplants

Just got a call from Mayo in Rochester asking me if I wanted to push my mid April appts. out 6-8 weeks. They said they were calling everyone with upcoming appts. and offering them the option of rescheduling.

Sun, Mar 15 12:04pm · COVID-19 and Transplant Patients in Transplants

I am a post liver transplant and have my yearly visit to Rochester in a few weeks. You all know what the lab waiting room looks like at Charlton, plus all the other waiting areas in the other buildings you have appts. in. I was pretty well in control of my mindset until it was pointed out to me that people from all over the world visit that facility every day. Has anyone heard if Mayo is taking precautionary measures to mitigate the spread of this virus on campus?