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Posts (14)

12 hours ago · Initial Visit in Jacksonville- How Long Should I Expect to be There? in Visiting Mayo Clinic

I underwent a procedure called chemoembolization where they treat the tumor and then seal off all blood supply to that area. I returned to mayo every 3 months for pictures to track the the effectiveness of the treatment. And like you Nash was a complicating factor in the diseased liver

1 day ago · Initial Visit in Jacksonville- How Long Should I Expect to be There? in Visiting Mayo Clinic

My initial visit to mayo in Rochester was 4 days. A lot depends on what tests they’ll accept from your previous facility. It was my experience that they wanted results from their own testing. Another factor is the logistics of having that many appointments and scheduling them without any overlap. I worked with scheduling and my pre-coordinator and they were very helpful. It might be a little overwhelming at first but if you get comfortable with your schedule and get to know the footprint of the campus you will be okay. I had a liver transplant because of cancer and just celebrated my third anniversary on 4/10.

Sun, Mar 3 12:09pm · Post Liver transplant story in Transplants

I am 3 years out on my liver transplant and last months labs were the first time every thing fell into the normal range. After my surgery I asked my post transplant coordinator if she would send me pictures of my old liver. You are dead on in your description of the removed liver. I described mine as looking like a piece of round steak that had been left out on the counter. But as you mentioned I didn’t realize the gall bladder came out also. But this was glaringly evident once I saw the pictures.

Sat, Feb 16 1:43pm · This and That and Talk - My Transplant in Transplants

You will need some sort of pill organizer for the medications they will put you on

Sat, Feb 16 1:35pm · This and That and Talk - My Transplant in Transplants

I had my transplant mid April and did not get back into my job which is also physically demanding until October. 5 1/2 months. One of the worst things you can do is go back early and at full throttle. I ran into several people in the waiting areas of Mayo that felt great and went back to a full schedule and paid the price. Keep in mind that every individuals circumstances are different. Good luck

Sat, Feb 16 1:22pm · This and That and Talk - My Transplant in Transplants

Don’t forget your passwords to all your online accounts and a second list to give to your caretaker

Wed, Jan 9 10:36am · This and That and Talk - My Transplant in Transplants

My transplant journey had plenty of twists and turns also. At the very outset my pre-coordinator told me that my transplant was not a cure all. It would be an exchange of one set of problems for another. I came through the surgery with flying colors. I was out of the hospital in 5 days thinking “ that wasn’t as bad as I thought it would be “. My first setback came when I came down with CMV. I used to describe my symptoms as having mono on steroids. We worked our way through that and I thought I was in the clear. Then came the big one GVHD. There is nothing that will scare you more than going online and reading the medical studies on your condition or having your medical team tell you it’s a condition so rare in solid organ transplants that they don’t know how to test for confirmation or even how to treat it. All you can do at that point is trust your team. So there will be setbacks and there will be good days & bad days and eventually things will calm down & it will be smooth sailing. Keep your spirits up and maintain a positive attitude.

Dec 31, 2018 · Muscular pain relief in Transplants

As we all know NSAIDS aren’t allowed for post liver transplant patients. Has anyone tried voltaren gel or cbd oil ?