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Thu, Jan 23 10:49am · Arachnoiditis: Trying to find a specialist in Spine Health

Your situation sounds like what my wife went through several years ago and is still fighting. Her immune system was apparently lowered (according to a couple of doctors) by being on a steroid for another medical issue for too long of a period of time. This brought on the shingles virus which even though she caught quickly she was in intense pain for 3 or 4 months. Like you she was just about bed ridden and this is what I want to highlight to you.

Her shingles pain seemed to be subsiding after 3 or 4 months then it got to a level where it stayed and has been there for 8 years now. Our conclusion is that something else kicked in and the theories are:

1: By favoring one side while being bed ridden she developed a nerve entrapment issue
2. By being inactive for such a long period of time she developed myofacial issues

Both of the above results in symptoms that experiences and can be easily researched on the Internet. So my comment to you is to keep as active as you can and don't favor any particular positions while recovering. I can't say for 100% this is my wife's problems but with all that she has been through these two conditions seems to make the most sense.

Thu, Jan 23 10:49am · Arachnoiditis: Trying to find a specialist in Spine Health

Has your doctor determined the cause of the pain? Is this a case of "bone on bone" or "muscle" related? I had pain both in my knees, hips, and lower back. All three areas of pain turned out to be a result over tight muscles which placed more than normal pressure on these joints and therefore cause the nerve pain. A Physical Therapist resolved all of these issues with simple stretching exercises which loosened the muscular force on these joints. Note that the hip and knee pain was more at the annoying level of pain and something I could live with. However, the lower back pain was so bad I couldn't move at times. It was excruciating. Meds did nothing for this condition.

If you have bone on bone conditions that is another story. I've heard of artificial material being implanted to replace the worn out meniscus. However, I don't hear much about this so I'm not sure of the success rate. A relative of mine just went through the libation of the nerves in her knees and it appears to be working so far. But time will tell. A point to consider though is that a neurologist once told me that libation of a nerve can sometimes end up with more pain so research this before you engage in such a procedure. Good luck.

Jul 15, 2019 · Has anyone had success using Tens on their feet? in Neuropathy

TENS is a technique that uses pads placed on your body and then high frequency, small pulses of current are passed from one pad to another. These pads are connected to a control device which can change various parameters such as intensity, frequency, etc.. The thought is that this will stimulate and relax the muscles/nerves in that area, and reduce the pain signals to the brain. One can purchase these units for as little as $40. .

Jul 8, 2019 · Pudendal Nerve Entrapment/Neuropathy/Damage in Chronic Pain

Do you have a list of medical/technical articles on the use of enzymes? Thanks.

Jul 7, 2019 · Anyone go to a Mayo Clinic? in Neuropathy

Don't really know. Originally the pain was due to a bout of shingles. This pain was on a healing path but stopped getting better after several months. We suspect that something else kicked in (like nerve entrapment) and that is what we are dealing with at this time. This could have been due to months of inactivity during her shingles recovery period.

Jul 7, 2019 · Pudendal Nerve Entrapment/Neuropathy/Damage in Chronic Pain

My wife's pain is worsened when sitting down. The pain is there while standing but this does not aggravate the nerves like sitting does. Sleeping is the best part of the day as the pain seems to subside during the night. Upon wakening the pain level is lower but gradually goes higher as she becomes more active.

Jul 6, 2019 · Anyone go to a Mayo Clinic? in Neuropathy

Ok.
* Caudal nerve blocks with no success.
* Acupuncture with no success.
* Pudendal nerve blocks with no success.
* Dual beam laser techniques produced some reduction in pain but only lasted for a day or two.
* High dosages of vitamin C. Some research studies indicated some success in nerve healing but was no help for my wife's pain.
* Nerve conduction tests. Mayo said the results from these tests are inconsistent so they do not perform them anymore.
However, I would suggest this method could better pin point the source of pain or entrapment.
* Sacrotuberous ligament stretch/massaging. The pudendal nerve passes through this area. No success.
* New cryogenic (not the old techniques) freezing of the nerve. Still looking for someone who performs this procedure.
* MFR. Seems to help some but just started treatments so we need more time to evaluate.
* Spinal stimularors. We chose not to have this technique done for two reasons. First is that the companies who manufacture
these devices never performed testing on the pudendal nerve. Second, was concerned of side effects.
* Traction on the spine in case the spine is misaligned and causing pressure on the pudendal nerve. Haven't tried this yet.
* Yoga relaxation techniques. Haven't tried this yet.
* Tried all the suggested natural products (vitamins, herbs, etc.) with no success.
* X-Rays and MRIs to pin point entrapment areas. No success.
* Scar tissue nerve entrapment. In treatment now so no results yet.
* CBD oil. Helps take the edge off of the pain as does the CBD cream. Not long lasting.
* Of course ice and meds. Advil seems to help which would indicate an inflammation issue.
* Dry needling which is different from acupuncture.. Still researching the side effects of this procedure.
* Stretching exercises. No success..
* Oriental "Cupping". No success.
* Diets that include low sugar and high water intake. Sugar has been suggested to have a negative effect on nerve healing. Haven't
tried this yet. High water intake may help muscles and myofacial fluidity.
* Nerve transection (cutting of the nerve). Most doctors do not recommend this procedure as there are possibilities of
increased nerve pain after the procedure is completed.
* Spinal steroid injections at the root of the nerve. Haven't had this procedure. However, this apparently won't solve the pain
issues as it gives temporary pain relief. Therefore, this procedure has to be repeated often. Probably won't opt for this procedure.

That's all that comes to mind at this point in time. What is interesting is that there are days where my wife's pain level is very low. We go back through the previous day's activities and food intake and can't come up with anything unusual. This has been a long road for her with few success stories.

Jul 5, 2019 · Pudendal Nerve Entrapment/Neuropathy/Damage in Chronic Pain

Regarding nerve compression vs damage this was a major question that I had to the doctors at the Mayo Clinic. The answer I received was that if the degree of pain varies then most likely it is due to compression whereas if the pain is constant the nerve probably is damaged. My wife's pain can vary from and 8 or 9 to a normal 7 to a low of 2 or 3 so we are hoping that the nerve is compressed rather than damaged which by the way there is no cure for.