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Mon, Oct 7 10:30am · Testing Positive and Negative after MAC Treatment in MAC & Bronchiectasis

I waited 3 months. This was in 2003. The doctor I saw was Dr. Huett and I think she’s still there. I was there for ten days – went back for 3 days 3 months later for follow up. They are fabulous and so thorough. I’m sure you’ll find it worth the wait.

Sun, Aug 25 6:51pm · In shock after MAC diagnosis in MAC & Bronchiectasis

We traveled and were transferred often. I was raised on a farm and gathered eggs from a henhouse. After retiring we lived part time in an area with lots of bats. The rest of the time was spent in buildings that had pigeons in the attics and heat/ac systems. This was before my diagnosis. And also a few years ago. I was diagnosed at National Jewish Research Center in 03. With avian Mac I obviously swept and things became air born. I was told that bronchiectasis can be genetic and I also have a CF gene.

Thu, Aug 22 3:45pm · N-A-C and apo-Lactoferrin helping MAC and Bronchiectasis in MAC & Bronchiectasis

I just got NAC and Clear Lung so just starting them. What do you take NAC with? I don’t do juice so wondering if a glass of water will do. I was on Arakayce for 5 days and totally lost my voice. Doctor took me off and I just found out I did not qualify for assistance so my monthly copay would have been $2000.00 a month after my insurance allowed $139,000.00 for the year! Don’t think I was meant to take it! I’m anxious to learn more about the lactoferrin…

Wed, Aug 7 10:44am · Water at freshwater lake in MAC & Bronchiectasis

Organic Throat Coat supports throat health with all herbal ingredients. Licorice root, slippery elm, marshmallow root and about 4 other – wild cherry bark, fennel fruit, cinnamon bark & orange peel. I like to add raw honey. I got mine at Sprouts located where all the teas are. My case nurse told me about it.

Tue, Aug 6 8:39pm · Water at freshwater lake in MAC & Bronchiectasis

Throat coat tea is worth drinking when using arikayce for me – my throat was raspy after first treatment. It’s very soothing and adding raw honey seems to help.

Tue, Aug 6 12:04pm · Water at freshwater lake in MAC & Bronchiectasis

I’ve been on arikayce since the first of August so not very long and this morning I woke up extremely hoarse. In fact can hardly talk. I’m going to skip my treatment today and see how it is tomorrow. My cdc doc is not in until Thurs. My throat is not sore but lots of thin mucus so hard to rest the vocal cords. I live alone so I’m not talking.

Sun, Aug 4 7:56pm · Water at freshwater lake in MAC & Bronchiectasis

I just started arikayce last week. My trainer recommended swallows of water a few times during the treatment. Also one of her patients uses throat coat and has found it to be a help as far as preventing raspy throat.

Sat, Jul 13 4:53pm · Starting Arikayce - nervous in MAC & Bronchiectasis

What kind of maintenance antibiotics are usually used? I asked my CDC doc about it but he didn’t seem to approve. Would rather I call if I start coughing blood.