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Dec 16, 2019 · AFib - Question about blood thinners in Heart Rhythm Conditions

Hello Group,

I have AFib and am presently on Metoporal and 5MG Eliquis twice a day. Per my doctor and my pharmacist, I understand that I cannot take Advil or like medicines. What is left to take when you are in pain and have inflammation? Tylenol works very minimally for me and does not work at all on inflammation problems. Any advice?

Thank You…CeCe55

Oct 7, 2019 · Cpap and sleep in Sleep Health

Hi….it has been quite a while since I posted on here. I can't believe it will be a year in January since I started wearing my CPAP

It is true that everyone is different when it comes to a new user getting used to the CPAP. For me, it was a second mask which the Respiratory Therapist recommended. The first one I chose just looked nice and I had no idea that you don't choose a mask on how it looks! 🙂 It was the dreamwear mask with the air flow coming out of the top. I hated it and would rip it off at night and throw it against
the wall! Then the therapist, knowing that I was claustrophobic, suggested the Resmed Swift FX For Her. It is the lightest weight mask and does not leak! It took me approximately two months to become adjusted. I will say that about once a month, I will have a night when I am uncomfortable for about an hour. I don't know why…my mask just feels wrong and then I fall asleep. When I talk to other people, they know just what I am talking about.

I can give you some advice on the hospital room feeling. As a liscensed Interior Designer, here is how I handled my bedroom and the feeling of so much equipment on the nightstand. I also have a heart machine which I am blue-toothed to at night that downloads my EKG to the cardiologist's office in the middle of the night. I have a hear link monitor under my skin for afib. The answer is …get larger
nightstands! If you have the room, a larger nightstand won't call as much attention to the paraphernalia on the surface. Hope this idea helps.

Blessings and hello to all my fellow CPAP users! CeCe55

May 24, 2019 · Early or Extra Heartbeats; PVCs in Heart Rhythm Conditions

Thank You for responding to me. When I was diagnosed with AFib I gave up all the stimulants I could think of. I don't drink, don't eat chocolate or sugar, try my best to stay away from processed foods, drink plenty of water and only drink caffeine free tea and coffee.
I go to yoga three times a week to control my anxiety, and go to the gym the other four. I can't cycle which I was used to doing because I am on Eliquis. I just can't imagine what is causing this sudden problem of constant PVC. I do have days or hours of no problem at all. I am not dizzy, fatigued, short of breath etc… It is very frustrating and scary. I try to tell myself, "this too shall pass".

May 24, 2019 · Early or Extra Heartbeats; PVCs in Heart Rhythm Conditions

Hello everyone. I need some advice and support which I always get from everyone here. I am not new. I have diagnosed Sleep Apnea and it is under control with my CPAP. I have AFib diagnosed last October and is under control with Metoporal and Eliquis. I have only had two episodes.

I wear a Heart Link Monitor under my skin so my doctor can see my EKG. I have been diagnosed with Atrial Tacacardia that happens very irregularly and only lasts for seconds. He is not concerned. My Heart Link Monitor is not working properly so I am being sent another one so I can transmit what is happening to me now.

In the last two weeks I have had extra heartbeats off and on. I am used to these and have had them all my life but sporadically and sometimes none for weeks at a time. I recently went thru a very stressful episode with my husband receiving a pacemaker. The simple operation had problems and he ended up in ICU for several days. All is well now but it sent me into a tail spin because of how serious it was.

I have never had hours and hours of extra heartbeats. Some days I don't get them at all. I found that if I deep breathe, I can get them to go away. I feel the extra beat in my throat and it makes me very nervous. Can anyone reply? Is this stress related?

Thank you, CECE 55

Mar 25, 2019 · Is anyone out there on Eliquis? in Heart Rhythm Conditions

Hi Catmom…I have been on Eliquis 5 MG twice daily for 2 1/2 months. I had a headache for the first week but it went away. I have not had any symptoms except hip, lower back and now knee aches and pains. It has been hard to tell if this is a symptom or not because I have had existing problems with my hip and lower back for years. The difference is I cannot take Advil to buffer the pain. The knees are new as of this week. I use ice, physical therapy, and Tylenol to deal with it. The knees have made me wonder if this is really a side effect because I have not had this problem before.

I went and talked to my Pharmacist whom I have used for the last ten years and trust explicitly. Pharmacists know more than docs when it comes to drugs. He spent quite a bit of time looking up the joint pain and told me it is a 1 to 10% chance of side effect. He said that if my joints were not red or swollen, it was something I might have to get used to because the only other drug that is as effective is Zorelto and he said Eliquis was better. It's frustrating, because for all I know, I might switch and then have different or more side effects. He did say that just like my headache, my body might get used to the drug and the pain might go away. I am praying… This did not happen until way into the second month. He said sometimes it takes a while to get side effects because the level of the Eliquis is not high enough in your blood stream or body until a certain point.

I wish I didn't have to take this or any blood thinner but I don't want a stroke and want to enjoy my life and grandchildren…so I still exercise and go to yoga,
eat correctly and drink plenty of water and try to just live my life.

Blessings to you and I hope your side effects pass and you feel better.


Mar 4, 2019 · Side Effects of Eliquis in Heart Rhythm Conditions

Thank you for responding to me Colleen. I told the cardiologist when I saw him a couple of weeks ago that my right hip was bothering me but that it was a pre-existing condition. I asked for Advil and he said only twice a week (one dose)…if I really needed it. At that point it was just the same areas that I have already had problems with. Probably, to the cardiologist, it didn't sound like anything to worry about. I was just asking for permission for Advil. 🙂 Since then I have had referred pain in other areas per my physical therapist plus occasional muscle aches.

I realize that I cannot come off of a blood thinner because of stroke and wonder if the other new blood thinners will do the same thing or if that is not the problem at all. I don't want to play with the drugs and coming off one and going on another…that can create problems of their own.

I would like to know if these aches and pains are causing serious problems or I just have to learn to live with it. I ordered a large cold pad per my therapist, am taking physical therapy and massage. I still exercise the best that I can with the pain and continue to live life normally but it is not the same quality of life. My joints are not red or swollen.

I would feel so much better if someone can respond to me and relate their Eliquis experience and if they have something similar.

Thank You,

Mar 2, 2019 · Side Effects of Eliquis in Heart Rhythm Conditions

I have a question for the group. I was diagnosed with AFib three months ago and after my first event I was put on a low dose aspirin along with my metoporal that I had been taking for a year. The dosage for the metoporal was 12.5 MG three times a day. After my second event of AFib six weeks ago, my electrophysiologist put me on Eliquis. The dosage is 5 MG twice a day. I felt fine for 4 weeks and then two weeks ago I started to have aching and stiffness in my lower back and hips. I might also add that I have very tight hips and lower back for years before this and have seen a physical therapist and added yoga and advil to my regimen. That seemed to give me a tolerance level over the years and I have been able to live with it.

Now…no advil allowed and I just saw a physical therapist again today who I will start working with next week. How do I know if I am having a reaction to the Eliquis or I am in a flare with my already tight hips and back? Is there a blood test to request? Possibly checking my liver and kidney function? The physical therapist also said I have osteo arthritis which could be contributing to this.

I am frustrated because I don't know how you tell the difference between a side effect and an existing condition that has worsened. I really don't want to chance going off the blood thinner….but what other way is there to tell?

Has anyone experienced this aching and does it finally go away if it is the Eliquis? I am not having any other problems with this drug except that there is not an over the counter medication for pain that you can take with it except Tylenol which has no effect on me.

Thank you for your input.

Feb 9, 2019 · Sleep Apnea and day time sleepiness in Sleep Health

Hello @rgill…I am a pretty new member but I wanted to welcome you and let you know that we are all here and concerned about you. During all the years that you have been diagnosed with sleep apnea…I am probably asking the same question as the others…do you visit your sleep doctor, use a CPAP machine and bring your removable chip in for him to analyze?

I also had daytime sleepiness although not to the extent that you have it. I never fell asleep unless I was watching an afternoon movie…What I did notice is that even after I slept and woke up for the day, I did not feel refreshed. Now, I really feel that I am wide awake and my cognitive abilities are much better.

Please let us know the outcome of your visit at Mayo.

Blessings to you,