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Sun, Sep 29 11:55am · Redundant / Tortuous Colon in Digestive Health

I give you my condolences. It's a very hard surgery to go through, and dangerous. Glad we both lived through it!

Fri, Sep 27 10:02am · Redundant / Tortuous Colon in Digestive Health

Very wise!

Fri, Sep 27 9:55am · Redundant / Tortuous Colon in Digestive Health

Nova, Are you talking about a cecal volvulous? Cecum is abnormally rotated and it is a congenital abnormality. I had a 6 foot long, tortorous colon which gave me trouble with constipation all my life. At age 60 I developed an acute bowel obstruction from the rotated cecum, which I never knew I had. 3 years ago I had a right hemicolectomy which saved my life. I don't have constipation problems now but having part of your colon removed can cause other issues. Has taken me a long time to get over the surgery and I do have chronic SIBO now due to no ileocecal valve and wide open anastomoses at resection site. I take Xifaxan every day for the SIBO. It's been a godsend.

Mon, Sep 23 10:42am · Redundant / Tortuous Colon in Digestive Health

Deedee, It took me a long time to feel like I was as recovered as I was going to get. Mine was an emergency surgery and the ascending colon was taken out including the ileocecal valve which has caused chronic SIBO. I take Xifaxan on a daily basis. Have you been checked for SIBO? Many people with chronic constipation have it.

Mon, Sep 23 10:38am · Redundant / Tortuous Colon in Digestive Health

I use Natures Way magnesium complex. I buy them from Vitacost.

Mon, Sep 2 5:28pm · Slow transit constipation and surgery in Digestive Health

Have you been tested for SIBO? Methane predominant SIBO is very common in chronic constipation.

Sat, Aug 31 8:21pm · Slow transit constipation and surgery in Digestive Health

Colectomy is a major surgery and I understand how miserable you are but it's not always the best answer. Please get more opinions. I have had a colon resection due to a bowel obstruction caused by a congenital bowel malformation– a rotated cecum which I never knew I had until the obstruction. I had 18" of colon removed. I did have chronic constipation before the bowel obstruction occurred but had it under control (mostly) with magnesium capsule supplements and high dose vitamin c. It has taken 3 years to really recover– very hard. There is a closed Facebook group on post colectomy pain and problems. Several of the folks on the board had colectomies due to chronic constipation and are worse off now. Hope you get better and find a solution. It is truly frustrating and can be disabling.

Sat, Aug 31 8:11pm · Fibrosing mediastinitis in Lung Health

I'm glad you are doing better. There is a closed Facebook group on FM and there is good information. Did you see Dr Piekart at Mayo? That's who we were hoping Matt might be able to see. I hope the infusions work for you.