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Posts (3)

Dec 10, 2018 · 2 months after viral meningitis in Brain & Nervous System

Oh goodness. I'm a 7 mos post Bacterial Meningitis survivor. But I have learned that the after effect of the bacterial and viral are very similar and in many cases identical. Please keep going to your Drs. You do need your health and progress checked, and they can determine the best medicines for you. In the meantime if you would like to talk to you others experiencing what you are, there is a group called Meningitis Survivors and Supporters you can join with people who have gone through this. There is also Meningitis Now that has lots of information and resources, but they are in the UK. Still a great place for info though. I encourage you to take a look and join into both groups. What you're experiencing is not abnormal and I'm so sorry you're dealing with this. I know it's confusing because nobody tells you about it and no one seems to understand it's real when you try to tell them what's happening to you. Best wishes!@chris8515!

Nov 26, 2018 · After Bacterial Meningitis in Brain & Nervous System

Hello @jamienolson. I don't know if it's TBI, ABI, or really what it is? But yes, all this happened after my BM. I had none of thee symptoms before. At first I thought it was because I was newly ill, and still on a round of 10 days of IV antibiotics at home. But it kept going on & on. It's 7 months later and I'm still experiencing these symptoms. I have seen my PC, at 1st she was shocked I was still experiencing after effects, and didn't understand why I was. Then she said it was inflammation and should go away. I see her monthly and we are trying different preventatives and abortatives for pain, but she doesn't know why this is happening. I didn't know if anyone else on here has went through this?

Nov 23, 2018 · After Bacterial Meningitis in Brain & Nervous System

I don’t know if I have TBI, or what is wrong with me. I contracted BM late April 2018 and since then have had all sorts of complications. Headaches ranging from moderate to severely debilating, horrible neck pain that never goes away & makes it almost impossile to turn my head to look from side to side, and definately not behind me. Spine and rib pain. It seems that every muscle and joint in my body hurts, keeping me in constant daily pain.Very often it feels like my muscles or something inside my body is on fire. I have such trouble with memory and concentration. I cannot tolerate extra stimuli anymore. Too much noise, too much decision making, stress, too many people talking, get me really anxious and I feel I need to get away from the situation and I kinda just shut down. Things like flashing lights, loud patterns, alot of showing of mixed changing colors and things like that make me nauseous, dizzy and anxious. Driving or riding in a car brings on the headaches, pain, and exhaustion. I am sooooo exhausted/fatigued all the time. I always feel like I need to rest, but resting doesn’t help. On the other hand, pushing myself and putting myself or being in these situations do make it worse. But I can’t avoid life, nor do I want to. I want to enjoy my family and friends. My grandaughters. My church family. I am at a loss.