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Sat, May 4 1:05pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@bevmac Should would like to know what type of treatment your doctor provided for the cough. My wife coughs terribly until her stomach and side hurt. Cost of the medication is not a problem for us. Thanks for any information your doctor can provide.

Thu, Apr 25 9:25am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@tdrell I just sent a note to Dr. Mark Shoenfisch, University of North Carlonia, Chapel Hill, concerning this procedure. I hoping to hear from him as courteous. He is also the Chief Scientist for a company named VAST Pharm according to LINKEDIN…

Sun, Apr 21 12:40pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@kiemen what is the name of the doctor at National Jewish Hospital? I am thinking about taking my wife out there for a checkup. I spoke with a doctor at Walter Reed Bethesda Naval Medical Center about a referral for my wife. It is my understanding they are the best in the Nation in the area of Microbacturieum Avium Complex (MAC)…

Tue, Mar 12 10:00pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker Thank you for your encouragement to us all…Keep in touch!

Tue, Mar 12 9:56pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@ling123 We are all so different, yet so much alike. When look across the spectrum of this disease, it knows nor does it discriminate, the is a sampling of all…Our greatest commonality is we all had the same creator, the same redeemer, and the same healer, but according to his will…

Tue, Mar 12 9:49pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@jasmine321 and @irene5 I don't think my wife will entertain the thought of surgery. She is 72 years old and a recipient of a Liver Transplant. She taking antirejection meds now to preclude the liver rejection, yes after 17 years. As we all goes the suffering, there is somethings that drugs will not cure, but for those who believe, we pray that God will fill the "gap" through his healing power. Many don't realize the day we were born, we begun to die, but the last breathe is in God hand and timing. So my suggestion is that we live while we are living and death will take care of itself.

The Bible, not meaning to offend anyone, tells us that we are to be of good courage: "So we are always of good courage. We know that while we are at home in the body we are away from the Lord, for we walk by faith, not by sight. Yes, we are of good courage, and we would rather be away from the body and at home with the Lord."

Even though my wife is the one who is physically suffering from this monster of disease, as a supporter of her needs, I suffer too. We all wonder how we should respond to the pain and suffering? After all these years my wife been ailing, that not an easy answer, we will face the situation or circumstance differently, but we have one thing in common; The God that heals. One would wondered if he is the God that heals, then why are you healed. That answer is just as complicated as the other. but life is about timing. Yet while we pray, we must attend to a critical distinction; although God can heal us, we must never presume that he must. You see, death is the consequence of the fall. "For we all have sinned and fall short of the Glory of God." Therefore, "For the wages of sin is death, but the gift of God is eternal life in Christ Jesus Our Lord.". Death itself will overtake us all, and most commonly recruits illness as it vehicle. to bring us to that point. When Christ returns, no disease will blot God's creation, but for now, we wait and groan as our bodies wither.

We would like to percieve our healing to be for the greater good, but God's wisdom surpasses even the most impressive reaches of our understanding. We cannot bend God's will to resemble that of our own. May I leave you with this thoought. If we set our eyes only on a cure, rther than on the reality of our physical mortality, we ay chase after treatments that not only fail to save us, but which also rob us of our capacties to think, communicate, and pray in our final days. On other thing we forget. We made ourselves not and if healing is not within God's will, we will need fortuide, peace, and discernment to endure. and if healing doen't come, a single-minded focus on healing strands ourselves and those we love with unsettling doubts about the validity of prayer and our faith.

No matter the belief level of whoever might read this, I will continue to pray; we are to pray without ceasing. As I pen this note to all right now, no matter which side of the world you reside, you see, God is watching over us. He said it this way, "Get some rest. It's in my hands and I am able to do immeasurably more than you can ever imagine."

Tue, Mar 12 7:42pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@jasmine321 My wife was on the same drugs and she could not tolerate them. All total she was taking Rifampin 300mg x 2; Ethambutol 400mg x 4; and Azithromycin 500mg x 1 three times per week Tuesday, Wednesday and Friday. She was on them for approximately 6 months, These drugs were in addition to the antirejection med she is taking. She loss lots of weight and stays in bed more than she was out. She gave it up. It seems to me, no matter how many drugs you take, there isn't a cure. 18 months is a long time to take all those drugs and not have a definite outcome. Blessing to all concerned. I have made it my commitment to pray for all of you daily…

Thu, Feb 28 4:40pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@kristiemlove Did you get the Broncolin at a regular drug store or do I need a prescription?