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Dec 18, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Does anyone know of a doctor’s name or names that you might refer me ? I have been going to MD Anderson and they just refuse to follow up or give any treatment options. I was put in the Big 3 in 2009 and did well but they never even did a CT scan or any sputum cultures when i finished the drugs and they never even explained any side effects regarding eyes or hearing so I have been pretty much in my own . I am so fatigued that I am considering myself to be an invalid and did not know what to do. I found your blog and I am so thankful to all of you and now I realize how shabbily I have been treated at MDA . I was so ignorant I didn’t even know you should have a C.T. scan or sputum cultures . I will go anywhere to see someone who might treat me will a little dignity and caring. I am in Houston . Thank you!

Dec 6, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Who is the doctor . Could I have the name also, thanks , my docs here have been pretty useless!

Dec 6, 2018 · Extreme fatigue in MAC & Bronchiectasis

I was so tired that I couldn’t walk across the room in 2008. Went on the 3 meds and seemed wonderful . Now the fatigue is back and I think I am going to try the meds again. I just don’t want to live with this quality of life. But then again I do want to live!!

Dec 6, 2018 · Long-term Antibiotics for Bronchiectasis & MAC in MAC & Bronchiectasis

What exactly is your med regime?

Dec 6, 2018 · Salt Rooms for MAC in MAC & Bronchiectasis

I heard that too and am going to one in Sugarland soon so I will let you know!

Dec 6, 2018 · Daily dosage of Rifampin Ethanbutol and Azithromycin in MAC & Bronchiectasis

I took all three every day and I was ok . That was 8 years ago and now I have such bad fatigue that I am thinking of restarting that regime again . I know it is scary but I am hind of like visiting nog like an invalid noe and felt much better on the meds.

Nov 29, 2018 · Extreme fatigue in MAC & Bronchiectasis

I am so brain fogged that I didn’t remembering posting one of my responses. Can you name a doc , I will go anywhere . It it best to go to Mayo in Fla or Az for this and who is the better treaters. I just feel so powerless.

Nov 29, 2018 · Extreme fatigue in MAC & Bronchiectasis

Houston , no I have insurance and means