I posted back in November:
My husband, who is 54, was diagnosed with Stage 3b colon cancer in August 2017. He had surgery and started chemo in October. He had to stop chemo in April 2018 for a quadruple heart bypass, after recovery he started chemo again in July 2018. He had another PET scan in July which showed the cancer had spread to some of his abdominal wall and right outside of the liver. He is now Stage 4 and is on a more aggressive chemo treatment – Leucovorin, Irinotecan, SFU and Folfiri. His tumor marker was going down and was 24 and the last marker was 31. We spoke to the doctor about our concerns with his marker going up and he basically told us to get everything in order and my husband had approximate 1-2 yrs. if that. Needless to say, that was a big slap in the face. After reading some of the discussions with others having Stage 4 and living longer than what was determined by the doctor, I am optimistic. Can you please share more of what treatments you were on and what else was done (alternative med, homeopathic or any other experiences)?
Unfortunately, the chemo regimen that my husband was on did not work. His markers started to climb and his PET scan showed that his cancer spread to his abdominal walls. We discussed a new chemo called Longsurf whose percentage rate of success is low. We also discussed the new drug that the FDA approved not too long ago – Vitrakvi. My husband will need a biopsy and the genes will be tested to see if this new drug will work – apparently, there is a specific gene mutation that is needed in order for it to work. In the meantime, we are getting second opinions and seeking info on clinical trials. We are in the process of getting an appointment at UC San Francisco. We tried Stanford but there are no clinical trials currently taking place and their oncologist agrees with the course of action being taken by my husband's current oncologist.
Although I am researching and looking into alternatives – I can't help but think that maybe I am missing something. Does anyone have other recommendations or advice? Am I missing anything??