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Jan 8, 2019 · My husband diagnosed w stage4 terminal in Colorectal Cancer

I posted back in November:
My husband, who is 54, was diagnosed with Stage 3b colon cancer in August 2017. He had surgery and started chemo in October. He had to stop chemo in April 2018 for a quadruple heart bypass, after recovery he started chemo again in July 2018. He had another PET scan in July which showed the cancer had spread to some of his abdominal wall and right outside of the liver. He is now Stage 4 and is on a more aggressive chemo treatment – Leucovorin, Irinotecan, SFU and Folfiri. His tumor marker was going down and was 24 and the last marker was 31. We spoke to the doctor about our concerns with his marker going up and he basically told us to get everything in order and my husband had approximate 1-2 yrs. if that. Needless to say, that was a big slap in the face. After reading some of the discussions with others having Stage 4 and living longer than what was determined by the doctor, I am optimistic. Can you please share more of what treatments you were on and what else was done (alternative med, homeopathic or any other experiences)?

Unfortunately, the chemo regimen that my husband was on did not work. His markers started to climb and his PET scan showed that his cancer spread to his abdominal walls. We discussed a new chemo called Longsurf whose percentage rate of success is low. We also discussed the new drug that the FDA approved not too long ago – Vitrakvi. My husband will need a biopsy and the genes will be tested to see if this new drug will work – apparently, there is a specific gene mutation that is needed in order for it to work. In the meantime, we are getting second opinions and seeking info on clinical trials. We are in the process of getting an appointment at UC San Francisco. We tried Stanford but there are no clinical trials currently taking place and their oncologist agrees with the course of action being taken by my husband's current oncologist.

Although I am researching and looking into alternatives – I can't help but think that maybe I am missing something. Does anyone have other recommendations or advice? Am I missing anything??

Nov 30, 2018 · My husband diagnosed w stage4 terminal in Colorectal Cancer

@kanaazpereira thanks for the info. I will definitely look into it.

Nov 30, 2018 · My husband diagnosed w stage4 terminal in Colorectal Cancer

@brettb83 thanks for your response. I am staying hopeful.

Nov 28, 2018 · My husband diagnosed w stage4 terminal in Colorectal Cancer

Hi Coleen, thanks for responding. No pallative care has not been offered or explained to us. I did research it after your email, and will speak to the oncologist about it. We are currently trying to get his care transferred over to Stanford. Just dealing with the insurance since we live in Sacramento and Stanford is 2.5 hours away in the Bay Area. Is pallative care something that his primary care physican can refer him to or does it have to be his Oncologist?

Nov 28, 2018 · My husband diagnosed w stage4 terminal in Colorectal Cancer

My husband, who is 54, was diagnosed with Stage 3b colon cancer in August 2017. He had surgery and started chemo in October. He had to stop chemo in April 2018 for a quadruple heart bypass, after recovery he started chemo again in July 2018. He had another PET scan in July which showed the cancer had spread to some of his abdominal wall and right outside of the liver. He is now Stage 4 and is on a more aggressive chemo treatment – Leucovorin, Irinotecan, SFU and Folfiri. His tumor marker was going down and was 24 and the last marker was 31. We spoke to the doctor about our concerns with his marker going up and he basically told us to get everything in order and my husband had approximate 1-2 yrs. if that. Needless to say, that was a big slap in the face. After reading some of the discussions with others having Stage 4 and living longer than what was determined by the doctor, I am optimistic. Can you please share more of what treatments you were on and what else was done (alternative med, homeopathic or any other experiences)?

Nov 14, 2018 · Worried about rising CEA levels in Colorectal Cancer

My husband was diagnosed with stage 3 colon cancer last year. He had surgery and was undergoing chemo. He was having issues breathing and thought it was related to chemo treatment but it was actually related to his heart. He had to stop treatment and undergo a quadruple bypass surgery. After his bypass recovery his oncologist ordered a PET scan and thru the scan we found out that his cancer had spread and he is now in stage 4. He is undergoing a more aggressive chemo but I am concerned with his CEA levels. They started at a 40 and were coming down – the levels reached 22 and now it's at a 30. Is this normal? I understand that levels can go up, but I am alarmed. The nurses aren't too concerned but we are requesting another PET scan. Has anyone else had levels rise and fall?