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Nov 19, 2018 · where do I find testing for neuropathic OH in the Phoenix AZ area? in Neuropathy

Hi John, thank you for the reply. In the past when I've contacted Mayo, they tell me they don't take Medicare, which is my primary insurance.

Nov 13, 2018 · where do I find testing for neuropathic OH in the Phoenix AZ area? in Neuropathy

After over 3 years of dealing with orthostatic hypotension symptoms, I am now looking at possible neuropathic causes. In the past, I first thought it was excessive fluid in my legs, then I thought it was cardiac problems. I have been seen by at least 6 cardiologists in the past 2 plus years, with no definitive diagnosis or treatment protocol other than …. yes you have OH.

I moved to a new town at 5,000 feet over a year ago, which didn't help matters. My symptoms have been getting worse over the past 2 months. In the past, my symptoms lessened thru the day, and by mid-afternoon, my symptoms of light-headedness were mild. In the past two months, my symptoms have progressed to being full-time. I like to use the elliptical trainer for exercise, and I can see the same worsening of symptoms there. It takes 5 minutes of very slow movement before my body starts to work better, and even then I may experience very fast a pulse rate some time later to the extent I have to step off the machine to recover.

In searching the internet, I found that my symptoms closely relate to the condition called neuropathic orthostatic hypotension, which is also called autonomic neuropathy, or AN. The other terminologies that I think match are nOH, and NDAN. At any rate, I've been looking for treatment centers in the Phoenix/Scottsdale and surrounding areas. The only one I've found so far is Honor Health. I see they do tilt table testing, which I think is a first step toward evaluating my condition.

I would be very interested in any and all comments anyone out there has to offer.
Thank you.