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Posts (12)

Tue, Mar 19 9:05am · Trigeminal Neuralgia* in Brain & Nervous System

Dear Carmelo. Thanks for you note and inspiration. I am five months out since second Gammaknife surgery, am off all medication (was on gabapentin for years). Between the first and second surgery the pain was, as it always is, horrific. Most meals were liquid as I could not chew, days I could not speak, and forget teeth brushing!But one foot ahead of the other I managed to stay the course and in fact took up outdoor and indoor (ERG) rowing. In February I won double gold (Masters Div) in the World Championship games in Long Beach, Ca. I recount this because besides being proud of this accomplishment, I retell it to let all of us who have Trigeminal Neuralgia know that you can get ‘outside’ if the pain and not let it be the defining feature of your life. It is not easy, no doubt, but reading your journey and your building a home for family is inspiring. Hope others share stories of moving beyond the pain. Thanks Carmelo

Dec 31, 2018 · Mild traumatic brain injury in Brain & Nervous System

Lisa. Might you be able to get me off this discussion? I checked all the right boxes twice to ‘unscribe’ but am still receiving posts. My bandwidth is exploding. Thanks and Haopy New Year

Dec 28, 2018 · Down in the dumps again – challenges with adult children in Depression & Anxiety

Sorry you are feeling low again. Frankly don’t discount that it is the end of the year, you have some organic changes because of meds, and the fact of life is that our kids do call only — at least mine (and they are stepkids!) when they have a problem. What I have found that is helpful for me is to text them now and again. They may not always respond quickly but it is a way to stay in touch. Hope you feel better! Best wishes for a healthy New Year.

Dec 22, 2018 · Mild traumatic brain injury in Brain & Nervous System

I had subarachnoid brain hemorrhage and attendant concussion. My medical records show that I was using my blackberry (it was 2009!) while in ICU. And I never stopped tapping, typing and texting ever since. My advice- as a layman not a doctor or health care professional —is perhaps do something that helps eye hand coordination. Such movements have been shown to affect brain. Also keep hydrated. Foggy brain, memory lapse, even unsteadiness have been attributed to dehydration. Just some thoughts. Wishing you a complete healing.

Dec 14, 2018 · Food while at Mayo Clinic Rochester in Visiting Mayo Clinic

@cthompson thanks so much. I am a vegan and this is great to hear.

Dec 13, 2018 · Food while at Mayo Clinic Rochester in Visiting Mayo Clinic

@kellye6. Thanks for the heads up on the Kahler Hotel. Just booked for January visit. Very helpful.

Dec 3, 2018 · Music is Good Medicine | Gonda Singers in Center for Humanities in Medicine

What a terrific way to come together as community! Please make a video and post it so the Connect community can have the pleasure of hearing. Thanks

Nov 13, 2018 · Trigeminal Neuralgia* in Brain & Nervous System

Thanks so much for your email and the helpful information. I will check out the sites. It is me not my husband that has TriGem. I couldnt imagine our household if both of us had it!! 😉😉🙄. Thanks again!