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Posts (35)

Mar 21, 2019 · Post Interferon Syndrome in Infectious Diseases

Hi casassy, I can relate 100% , be strong and never give up x

Mar 21, 2019 · Post Interferon Syndrome in Infectious Diseases

Hi Terry
I just read your story,I'm a hep c survivor in UKvso treatment was free . It seems most people on here are in the USA, havd uou heard of Gregg ? He is in a Facebook page closed group called Hepatitis C Treatment, Cure and Community, he's the man who directs people to cheaper treatments. Please check him out and never hive up x

Feb 5, 2019 · After Hep C Treatment in Infectious Diseases

That's a question. I think it's for some of us about how long we've been carrying the virus? Which could effect the condition of the liver by then so the treatment on top can make the difference too.

Jan 19, 2019 · Post Interferon Syndrome in Infectious Diseases

Dear Idstella. I take inspiration from you and admire your strength and courage. Here in the UK I have not yet found any campaign or organisation challenging the Merck company that manufactured the Interferon. Have I got that correct? I will need as much info as possible to bring this subject forward. In April there is a very big enquiry begining in London about the NHS Contaminated Blood scandal in which thousands of people became infected with Hep C and HIV via blood transfusions and blood products and hundreds of people have died. Many people are waiting for liver transplants and many others are fighting HIV and cancer. I will be contributing to this enquiry with my story. Wouldn't it be wonderful if an enquiry could be made about the Interferon Drug? At present I do not feel there is enough evidence to present a case except for research off the internet and this website. However I do belong to a group about NHS Contaminated Blood in which most members have similar stories regarding Hep C and post treatment so I feel this maybe a good starting point ? What do you think ? X

Jan 18, 2019 · Post Interferon Syndrome in Infectious Diseases

Thank you Idstella you give me the courage to start the fight xx

Jan 17, 2019 · Post Interferon Syndrome in Infectious Diseases

I hope you regain some strength some how x maybe there is a support group in your part if the world. How did you get diagnosed? You must of had a good Doctor. I have been going through the same old load of symptoms as are thousands of us never getting anywhere with medical support but then I am talking of the nhs…..maybe I should look into private health care ?

Jan 17, 2019 · Post Interferon Syndrome in Infectious Diseases

That's great News!! Well done as I'm in the UK I don't suppose I will be able to contribute 🤔 I'm hoping there will be something similar here too x