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Bob

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Winnipeg

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MB

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Posts (33)

Fri, Jan 10 7:39am · Unexplained weight loss and other symptoms? in Cancer: Managing Symptoms

Hello @123anthony Anthony, my initial cancer diagnosis was due to abdominal pain I was encountering. I have no experience with what you are asking, however, I have added a link that may help. I found this on the Mayo Clinic site. https://www.mayoclinic.org/symptoms/unexplained-weight-loss/basics/when-to-see-doctor/sym-20050700. Have you engaged your doctor to help you resolve your questions?

Fri, Jan 3 7:26am · CAR T CELL Christmas in CAR-T Cell Therapy

@cherylbogdan, I am so glad to hear that you are doing well. You are so fortunate to have that strong family support. My experience to get past the fatigue was to try and get moving as much as possible. Are you in a position to do that?

Dec 21, 2019 · CAR T CELL Christmas in CAR-T Cell Therapy

Hi, I was infused on August 1, 2018. As another FYI, I ran the gamut of side effects, at least those the were outlined prior to the treatment. Those apparently impact everyone differently I was told. I was 63 years of age which makes a difference as well as I understand. Did your health care provider review those with you?

Dec 21, 2019 · CAR T CELL Christmas in CAR-T Cell Therapy

Hello Cheryl, I offer all the support i can from a distance. So glad to hear you have close family support, I found that to be beneficial in recovering from the side effects of the treatment. Reach out on Mayo Connect at any time.

Dec 2, 2019 · Diagnosis today and feel paralyzed but need to be there for my hubby.. in Pancreatic Cancer

Cindee, obviously a lot of uncertainty at this time. For us as well, fear of the unknown was front and centre. Do what you can to stay out of the panic mode. I encourage you to continue to reach out on connect when you feel the need.

Nov 26, 2019 · Diagnosis today and feel paralyzed but need to be there for my hubby.. in Pancreatic Cancer

Hi cindee60

Just checking on how things are going.

Are you feeling less panicked?

Nov 14, 2019 · Diagnosis today and feel paralyzed but need to be there for my hubby.. in Pancreatic Cancer

Hi cindee60
I was diagnosed with Large B cell lymphoma.

The support that worked for me, may not be right for everyone.

What helped me was insuring that I stayed involved in day to day routines. This was especially important on down days coming out of treatments.
We have always been an active couple so keeping up with exercise became a great way to support me. There were many days where laying in bed would have been good enough for me but thankfully, that was not allowed too often. So those little pushes from time to time were good.
Insuring my dietary needs were met offered a lot of support, as eating was difficult at times.

Immediate Family engagement was also very important to me, thankfully our family was fully engaged in helping me get better as well. (Though for the most part from a distance as out children all are from away- I have a new appreciation for the telephone and face time)

And, very important was having someone close by to hold tight when it was really needed. I think this helped both of us.
Oh yes, coming along to all the appointments and insuring we “heard correctly” was most helpful.

There are a lot of things that can offer physical, emotional and physical support, i hope some of these will work for you folks.
There is probably no wrong way to support as long as it is viewed in the same way by all parties. (That is a bit of a mechanical statement however!)

Nov 13, 2019 · Diagnosis today and feel paralyzed but need to be there for my hubby.. in Pancreatic Cancer

Absolutely, believe that the initial treatments are going to work as they are designed.

As much as you can, try to do things that you both enjoy that will take your minds of what is going on medically, at least for some moments every day.