I am 11 months in as well tiredness has long past for me. Did a lot of exercise to help me get past that.
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Wed, Apr 17 8:31pm · CAR-T Cell Therapy: Introduce yourself and connect with others in CAR-T Cell Therapy
Hello this is Bob, i had my infusion in August of 2017 for large B cell as well. I have not experienced this at this point.
Wed, Apr 10 5:36pm · CAR-T Cell Therapy: Introduce yourself and connect with others in CAR-T Cell Therapy
Hello Krista, My name is Bob, i had Car T therapy last August. We stayed at GOL on several occasions. We found it to be beneficial with its close proximity to the clinic. We found the advantage of being able to use the amenities within the facility when we wanted to be very practical. The social aspect was vey helpfull as well. I felt haveing others around me in similar circumstances to be beneficial. People understood what was transpiring around us. The clients and staff were always courteous and treated everyone with dignity. In preparing for Car-T we were advised to have two care givers at all times. This turned out to be great advise as one was not enough at times. Insure your freinds are totally commited to caregiving. (no disrespect intended to anyone) We did not have the added complexity of having to care for young children simultaneously. Feel free to reach out if you feel I could provide more insight.
Hello Greta, I earlier stated i did not get a rash however in the lastFew weeks i have a few. Did you get a resolution?
I will be seeing my doctor shortly but would be interested in your learnings.
Would also be interested to know if @raemark2010 has found anything more.
Mon, Feb 11 7:09pm · CAR-T Cell Therapy: Introduce yourself and connect with others in CAR-T Cell Therapy
Thanks for the heads up. I must admit that I have had some some thought about not needing to be so careful. That thought is now gone. Glad to hear Dave is doing much better.