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Bob

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Winnipeg

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MB

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Posts (4)

Nov 26, 2018 · Joint and muscle pain in CAR-T Cell Therapy

Hello Ann, thanks for your reply. I do hope that all is well with you folks now? I spent two weeks in hospital as well. One of those in ICU all due to Car T side effects.

Nov 21, 2018 · Joint and muscle pain in CAR-T Cell Therapy

Hi Colleen, at this point I would say marginally less. When I have the pain and stiffness it can be quite severe at times. I have it most every day for a time.

Nov 12, 2018 · Joint and muscle pain in CAR-T Cell Therapy

I am feeling very good now. Strength and energy is coming back nicely. I had pretty much all the published side effects that we were told about. Neuro toxicity, CRS, slow heart rate, high fever. I spent 2 weeks in hospital one of the in ICU. All worth the end result.

Nov 12, 2018 · Joint and muscle pain in CAR-T Cell Therapy

Hello all, I had Car T infusion Augut1st. I currently have joint and muscle pain though intermittent. Is anyone else having these side effects? I am not sure if it is from Car T or the chemo I had previous to the infusion.