@mrbigdog2u Getting that diagnosis must have been a big shock to your system. I think the folks on MayoClinicConnect should be able help. I’m a retired oncology nurse so I have some questions. Has your urologist told you what type of bladder cancer you have or is he/she waiting on pathology reports? Have you had surgery? There are so many kinds of bladder cancer and ways to treat it. Doctors don’t really like to give a prognosis because outcomes are so personal to the patient and type of cancer.
Start a notebook and write a list of questions you have, like: specifically what type of cancer is in my bladder, what treatment are you proposing, do you know of another patient like me that I could talk with, is there a support group, (if chemotherapy) do you have reading material I could have, and other questions I’m sure you’ll come up with.
I’ve never been on a cancer journey, but I had many patients who were. All of them found that keeping a journal was so helpful—everything in one place!
When is your next appointment?