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United States of America

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Health Interests
Autoimmune diseases, Caregivers, Healthy Aging, Immune disorders, Palliative and end-of-life care

Posts (368)

1 day ago · Sustained on Her Journey by Connect Members: Meet @cindylb in About Connect: Who, What & Why

@cindylb Welcome to Connect’s member spotlight. I enjoyed learning about you and hope to meet you someday ! Isn’t Colorado beautiful?! I’m sitting here in Crested Butte where my son lives. It’s a good 5hr drive from the Front Range, but so worth it. Maybe our paths will cross some day.

2 days ago · Exercise during chemo in Cancer: Managing Symptoms

@janlanderz Gee, your first oncologist sounds like he needs to retire! But I am so glad that you’re advocating for yourself. Telling an elderly parent is a hard decision, isn’t it? I had to make the same decision, but when I ended up in the hospital getting a brain biopsy, one of my sisters told our Mom. So now my 96 yr old mother worries about me!
Questions you might want to ask the new oncologist: is the current diagnosis correct and are you on the right treatment; how will you know if you get another DVT (deep vein thrombosis) and what is best treatment and what can you do to prevent another one;
Have you thought of seeing a therapist, someone you could talk to? It might really help, you wouldn’t feel so alone. It certainly helped me. Please stay in touch. We care

2 days ago · Insurance Issues in Just Want to Talk

@danab Hi and welcome to MayoClinicConnect. I have Medicare and Tricare for Life and it has been wonderful! Together they have paid for everything. In one year, the bills added up to 300k and I think I’ve only paid $1000. Medicare would not pay for the IV drug I’m getting because it’s not yet approved for my autoimmune disease. But, the doctor’s office convinced the drug manufacturer to cover costs (or I wouldn’t be alive!) Cost being 28k per dose.😥 You might want to get lots of Tricare for Life info to study before you make any changes—just so you don’t get any surprises! Let us know how it goes. When you’re sick, insurance should be the least of your problems. I’ve got my fingers crossed!

2 days ago · Recipes, Food Tips, Healthy Eating & More in Just Want to Talk

@imallears Do you make the crispy asparagus? They sound so good! Love asparagus

2 days ago · Endometrial Cancer: Noticing my blessings every day in Gynecologic Cancers

@harriethodgson1 and @naturegirl5 Thank you so much for posting your stories and the strength you have shown. They give me lots of strength and hope for the future. I don’t have cancer (just a rare, annoying autoimmune disease). Your positive outlook gives me hope that I can face the future, too. Thank you!

3 days ago · Exercise during chemo in Cancer: Managing Symptoms

@janlanderz I’m so sorry it’s taken me so long to get back to you! I still can’t find info on the oncologist who wrote about cancer and exercise. 😞 I’ve reached
out to former co-workers with hopes that they will have better memories than me! What I have found is that you want to return to normal activity as soon as possible, exercise will boost your quality of life and reduces fatigue. One suggestion is that you look for a physical therapist who works with cancer patients and who can design a program for you. You’ll probably need a referral from your doctor. And exercise also reduces depression, but don’t hesitate to talk with your doctor about it. I, too, have depression over my illness and exercise helps me a lot. Has your doctor said anything about the DVT blood clot? Once it has resolved, exercise should be good. Please let us know how you are doing!

4 days ago · Have you ever had hiccups with or after chemotherapy? in Cancer

@colleenyoung I finally saw this post and thought, I’m not a cancer patient but I do get a biologic, rituximab. And I’ve had hiccups ever since I first started! Mine seem to come around a mealtime or when drinking water. They never interfere with anything, but are a pain in the neck!

5 days ago · High grade Glioma - What questions should I ask? in Brain Tumor

@eileen61 The first message from me that you ‘liked’ was only part of the whole message. Somehow, my finger hits something and either deletes the message or posts an unfinished one. Oh, well!