@jenniferhunter Just fabulous! And heartwarming and inspirational and and and! Thank you
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@gingerw I have 2 grown sons and the oldest decided not to have kids. I never said anything and just used to it? The decision is totally theirs. Course, he was 45 and she 46 when they got married, so a little late. I was so thrilled that my son married such a wonderful woman, I couldn’t complain! Sure, I was a little disappointed, but I don’t have to raise them in today’s world. Some people are made for kids, some not—it’s all up to them!
@adah Good morning! How are you today? I think you’ve come to the most difficult stage of any disease—waiting. It is so hard and really tries your patience. When I worked in the hospital, we saw it everyday—just waiting. We really tried to shift a patient’s focus from waiting to something positive. Maybe you could try that. Have you heard of “tapping”? Google thetappingsolution. It has a great way to refocus your brain onto the positive. It sure works for me. Maybe @lioness has some more info on it. Stay in touch, please!
@adah Good morning! I can tell from your posts that you are worried about your son and his liver fibrosis. The best thing for you and your son right now is not to worry. You’ll make yourself sick! The doctor will watch the lab/blood values for any changes. Your son should focus on helping/improving his liver function. He should focus on a plant-based diet, eat foods like veggies and citrus fruit, nuts, fish, healthy oils, and drink coffee and tea (who knew!) Also avoid over-consumption of food and alcohol. Focus on a good exercise program. I found this info on sites like WebMD, which is a reputable site. I hope everything goes OK for you and your son. Let us know how it goes!
@bjh369 Are you currently getting treatment? The doctor may want another MRI so their is a series for comparison. Keep a notebook handy and whenever you think of a question, write it down so you are prepared for your next visit. Keep notes on everything said! I wish you luck, keep us informed, please. Becky
@kbee6973 What a time you’ve had! And how wonderful that you are helping your ex! Just wondering if, after your experience with the hospital and ER, you’ve thought about contacting the patient representative at the hospital? The job of the patient rep is to act as your voice when there is a problem. They can look in to the problem and follow up on the situation. I did that when I had a big problem in the ER. The rep said they would educate doctors about listening when someone says they have a rare disease. The patient reps want to do what’s best for the patient. Try it! Becky