I can really empathize with your husband. Stairs are a menace to me, getting up out of low chairs, and having my legs buckle whenever they feel like it. I also agree 100% on your comments about exercising. It is difficult to keep doing something you don't want to really do that does not immediately produce results. Yet carry on we must! I also believe that the food we put into our bodies will also define our quality of life. I am in a deep dive study of that now.
Regarding the TMA Minneapolis conference, you can contact The Myositis Association online at TMA@myositis.org. It should give you the whole story. If you need more, the telephone number is 800-821-7356. If that doesn't work, jump back on this blog and someone of us will help you in any way we can.
Good luck and GOD BLESS BOTH OF YOU!