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Posts (7)

Fri, Feb 22 2:35pm · Inclusion body myositis in Autoimmune Diseases

I have recently been diagnosed with sIBM and would love to talk about any effective activities/choices to mitigate the problems living with this untreatable Autoimmune disease. Certainly there is the push for non-stop workouts to build muscle. Are there diets, supplements, vitamins, specific "dos and don'ts", weather, etc. that make any difference? It would be great to share experiences.

Mon, Feb 18 5:20am · Cleaning your CPAP mask. in Sleep Health

Depending on the make/model, you should be able to remove it.
Sweet dreams!

Tue, Jan 29 9:55pm · Leaking Mask in Sleep Health

No problem. Done that many times myself. Let us know if they (Docs) help you out.

Tue, Jan 29 6:16am · Leaking Mask in Sleep Health

Your message is somewhat confusing. Did you mean the "hose" is leaking air? What is "red grown"?

It really seem like the issue causing the leaking and redness are related to your mask fitting incorrectly. The problems should be very easy to solve with a visit to your doctor or the place where you received your mask. How long have you been using a CPAP machine?

Don't give up! "Sweet Dreams" can be yours!

Fri, Jan 18 10:45am · Cleaning your CPAP mask. in Sleep Health

I just realized that I called Inclusion Body Myositis "IMB". It should be "IBM"…obviously.
Just correcting the wrong to eliminate the confusion…

Thu, Jan 17 12:15pm · Cleaning your CPAP mask. in Sleep Health

Using the CPAP is "life saving" for me. My father had Alzheimer's Disease and also found out late in his life that he had Sleep Apnea that was never treated. When I was diagnosed with Sleep Apnea, I was told that it "cuts off oxygen to the brain". I have to believe that it had a major negative effect on my Dad's illness. At 65 years old, I have no signs of Alzheimer's (thank you Mayo). I have been diagnosed with "Sporadic Inclusion Body Myositis". I can deal much better with the "IMB" than with Alzheimer's.
And not to forget…Mayo has been a "Life Saver" as well! Incredible people…everyone of you!
As the TV commercial says…"DILLY – DILLY!"

Thu, Jan 17 11:50am · Cleaning your CPAP mask. in Sleep Health

I have been using a CPAP machine since 2005. After the first night of feeling like I was about to drown, I decided NOT to use the water feature. I wear a "nose pillow mask" and simply remove the mask from the main hose and wash it under hot water and soap. Has not been an issue at all.
Regarding your husband laughing at how you look, I was mortified that my wife was going to think "how goofy and unromantic!". So I shared my fears and she said "Honey… this is NOT a problem. I will simply refer to you as "My Snuffleupagus!" She added "And knowing you are breathing all night long without any snoring is Heaven!"
"Good luck!" getting him on boards and "Sweet Dreams!"