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Wed, Aug 14 3:30pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

Thanks for your response and you are correct, those symptoms I described are related to long term back issues; stenosis, spondylolisthesis and scoliosis, for which I had back surgery in 2010. I'm determined not to have another back surgery if at all possible. I also have a neuromuscular disease called CMT (Charco, Marie, Tooth) and some PN, both of which have resulted in muscle atrophy in my legs and balance problems which is why I wear leg braces. I was wondering if the PEA and Fibro Cream might help some of my overall pain. I guess I'll just wait until I've been to Mayo at the end of October and see what they say about my complex condition.

Wed, Aug 14 10:15am · Anyone here dealing with peripheral neuropathy? in Neuropathy

Thanks. Can you tell me what your pain symptoms are? I have generalized aching across my lower back, with more pronounced aching and occasional shooting pains down my legs and into my feet, especially my left side. I haven't tried PEA yet.

Tue, Aug 13 9:48pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

Please remind me where you get the Topricin Fibro cream. I’ve seen some advertised by similar name at CVS but not with specifically the name Topricin. How does it compare for pain relief to CBD oil or something else? Thanks. Margot

Sun, Aug 11 4:31pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hi friends with balance and walking issues… I wouldn’t be as mobile today without my leg braces, which I’ve worn now for about 4 years. While they are clunky and can be hot in warm weather, I’m able to walk quite a distance with good balance and less pain and fatigue. To save strength I do get wheelchair assistance in airports, which makes a huge difference.. I’ve reported this in earlier posts so if you missed it or want info I’m happy to share info via text or email if John B oks it.

Wed, Jul 31 11:06pm · Responsive doctors at Mayo in Neuropathy

Good point, Chris. Thanks!

Wed, Jul 31 9:28am · Responsive doctors at Mayo in Neuropathy

Hey John, are all your docs at Mayo, including your PCP? Where do you live in Minnesota and go to Rochester Mayo?

Sun, Jul 28 9:43pm · Responsive doctors at Mayo in Neuropathy

Thanks Teresa and others for your encouragement and links to help me prepare for my November visit.
I’ll let you know more when I know more. 🙏🏻

Sat, Jul 27 8:30am · Responsive doctors at Mayo in Neuropathy

John, thanks for your input and the articles. Your and Jennifer’s (@jenniferhunter) perspectives I know logically but somehow my emotional side reacted when reading the review of the physician assigned to my first visit.
As with many on our Mayo Connect blog here I’ve seen many docs, a few of whom have felt cold or unsupportive …. mostly I think because they didn’t have answers, or even treatment suggestions.
I know that nobody can fix my complex condition but I’m hopeful that a Mayo team can be a proactive centralized resource for better insight into it so I can pass that on to my offspring, and inspire me to keep fighting the fight.
I’m a curious and determined person and am willing to try almost anything.
Ok. My appointment isn’t until November so I’m going to give my attitude a jumpstart and, as my sweet uncle would say…. Carry On!