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Sat, Oct 5 2:27pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

Just did my legs up the wall on our bed on vacation in Kauai. I know friends, poor me. 😎 It rejuvenated me a lot after an active day.
Chris and John if it’s tough getting your legs straight up the wall you can modify this pose in different ways…. 1st, try stacking firm pillows next to the wall and lying down so the pillows are between your butt and the wall and your legs are propped on the pillows at an angle,with you feet maybe touching the wall. You’ll probably be at about a 90 degree angle.
The 2nd option is to lie on the floor with your legs on a chair at about a 90 degree angle.
The benefit of this pose is having your legs higher than your heart so just play around with whatever works for you. Just make sure your back in supported well.
I hope this helps as it it really is a remarkably restful pose. Think… falling asleep. 😴 Aloha. Margot

Tue, Sep 3 11:22am · Living with Neuropathy - Welcome to the group in Neuropathy

Wow JK… that's terrible. I'm horrified that former doctors didn't warm you about the risks of taking too much Ibuprofen. How long after you stopped taking it (for the Bursitis?) did you develop Cirrhosis? May I asked what your symptoms when you were that lead them to diagnose the Cirrhosis?

Mon, Sep 2 10:10pm · Living with Neuropathy - Welcome to the group in Neuropathy

The CBD oil under my tongue helped for sleep but then I developed canker sores until I stopped using it regularly. Neither the CBD oil nor the CBD/THC ointments have helped my pain. I just started using the Fibro cream, which seems to provide a little pain relief for a shot time… on a good day. I also use Gabapentin at night.

My most consistent pain relief is 600mg of Advil ( not generic Ibuprofen) 3x/day. However the risks of liver problems with that make me do that only occasionally.

Wed, Aug 14 3:30pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

Thanks for your response and you are correct, those symptoms I described are related to long term back issues; stenosis, spondylolisthesis and scoliosis, for which I had back surgery in 2010. I'm determined not to have another back surgery if at all possible. I also have a neuromuscular disease called CMT (Charco, Marie, Tooth) and some PN, both of which have resulted in muscle atrophy in my legs and balance problems which is why I wear leg braces. I was wondering if the PEA and Fibro Cream might help some of my overall pain. I guess I'll just wait until I've been to Mayo at the end of October and see what they say about my complex condition.

Wed, Aug 14 10:15am · Anyone here dealing with peripheral neuropathy? in Neuropathy

Thanks. Can you tell me what your pain symptoms are? I have generalized aching across my lower back, with more pronounced aching and occasional shooting pains down my legs and into my feet, especially my left side. I haven't tried PEA yet.

Tue, Aug 13 9:48pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

Please remind me where you get the Topricin Fibro cream. I’ve seen some advertised by similar name at CVS but not with specifically the name Topricin. How does it compare for pain relief to CBD oil or something else? Thanks. Margot

Sun, Aug 11 4:31pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hi friends with balance and walking issues… I wouldn’t be as mobile today without my leg braces, which I’ve worn now for about 4 years. While they are clunky and can be hot in warm weather, I’m able to walk quite a distance with good balance and less pain and fatigue. To save strength I do get wheelchair assistance in airports, which makes a huge difference.. I’ve reported this in earlier posts so if you missed it or want info I’m happy to share info via text or email if John B oks it.

Wed, Jul 31 11:06pm · Responsive doctors at Mayo in Neuropathy

Good point, Chris. Thanks!