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Thu, Jun 11 9:32am · What to Expect at Your Hearing Aid Fitting in Hearing Loss

Thanks for the shout out for the Costco experience and product. I’ve heard the same from several friends who’ve gotten their aids through a Costco.
Joyce what state do you live in?
Thanks , Margot

Sun, May 24 12:25pm · B-6 vitamin danger! in Neuropathy

Thanks. That looks good.

Sat, May 23 4:41pm · B-6 vitamin danger! in Neuropathy

Hi Hank. You said that 25mg of B6 was too much, but there is 50 mg of B6 in the link you listed above from Amazon. I take a B Complex that has 25 mg of B6 and its manufactured and distributed from a company called NutriDyn here in Minnesota. http://www.nutridyn.com. Just FYI. , Margot

Tue, Apr 21 7:29pm · Living with Neuropathy - Welcome to the group in Neuropathy

Thanks John. I'm still considering the Protocol.

Mon, Feb 17 9:52am · Living with Neuropathy - Welcome to the group in Neuropathy

Just weighing in after a couple of months away from the Connect….I agree that Legs up the Wall is a wonderful exercise for calming the mind and re energizing the body through recirculating blood. However, because it is an inversion posture, it is not good to do if you have sinus infections or brain or eye bleeding. If anyone wants a short tutorial about getting into and out of Legs up the Wall let me know or just pull it up on U Tube.
Also I really relate to the sudden cervical condition mentioned earlier by wgatap21 with necking cracking and (for me) arthritis in C 6/7, which has caused tremendous pain. I'm actually having a cortisone shot in my neck this Friday for pain relief as I found injections in my lumbar spine to bring significant relief. ha ha John about the snap, crackle and pop… which I too understand is more annoying than it is any medical concern.

Nov 8, 2019 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hi Susan, What state/city are you in where you found a MFR therapist who gave you such successful treatment? Thanks, Margot

Nov 8, 2019 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hi @upnort . Will you please let me know if you find a MFR therapist at Mayo when you go in a few weeks? I’m scheduled to see PT there in January and would ideally like someone trained in MFR. many thx and good luck. Margot

Nov 2, 2019 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I haven’t posted in awhile deciding to wait until I’d progressed further with my visits at Mayo which started two weeks ago. For those of you who knew I was going, just know I’ll post more when I know more.

But I wanted to weigh in briefly on some of the recent posts about scams and the Protocol group.

It seems that John and other MayoConnect mentors wouldn’t be recommending treatments such as The Protocol or Myofacial etc if there wasn't evidence behind the treatments, albeit somewhat anecdotal.
After all their names are associated with Mayo Clinic, which has its ethical and medical reputation behind this blog site.

We all have to make our own choices about what to try and not, and yes it’s exhausting and can be very disappointing. But the value of a blog like this is to share information and learn options (conventional and unconventional) that our “regular” docs might not know or support yet.

Let’s keep trying and sharing and give our docs the good feedback so they can get on board. Maybe eventually they’ll be able to push the insurance companies in the right direction too. 😉