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Posts (3)

Nov 6, 2018 · Autoimmune diagnosing problem in Autoimmune Diseases

@brie87144 Im currently in diagnostics at Mayo, it's exhausting, overwhelming, and frustrating. I hope that I'll get some answers soon. I too have numbness and tingling, favors right side but spread to both. I've had 5 emgs, 3 this year, that stuff is awful. Keep getting almost a problem answers and you start to worry that you're going to have to wait to die before you get taken seriously. I've been condescended by almost every specialty you can think of. My best advice is this, keep pushing, keep asking questions, and don't let them make you feel bad about it. As a doctor they are trained to disconnect to protect themselves and sometimes you have to break through that programming. I have notes on my appointments to make sure im booked an hour because i'm always going to ask questions and push for more. I've now got 6 autoimmune disease confirmations and for years I was told that each one of them was something else. You know your body and you have to be your own personal army. I wish you luck, just know there's another warrior out there fighting her own war just like you.

Nov 5, 2018 · Blood Tests & Diagnosis in Autoimmune Diseases

So far I've had mostly tests but I've got 3 days of specialists next week, emg was negative, but they found my sodium levels are low as well as my protein levels, which is interesting since I've been having heart issues, and cramping in my lower back. I've been asking them to look at my kidneys for years. Doctor is convinced I've got a congenital problem that's been missed so I'll be seeing the geneticist next week as well.

Nov 2, 2018 · Blood Tests & Diagnosis in Autoimmune Diseases

I'm literally sitting at Mayo Clinic right now basically in the same situation, chronic everything, unexplainable illness, even had the same experience with a rheumatologist this summer. I've got fibromyalgia, 6 confirmed autoimmune diseases and the got my 15th concussion(classified as Severe Traumatic Brain Injury) in June and a whole bunch of other nightmares but for the first time I have hope and here they listen, they look at the whole picture and you get a team, yes a whole team of doctors working together to sort things out. It's not easy getting insurance to let you come but i promise it's worth it, plus if you call them enough they'll do just about anything to make you stop.