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Fri, Apr 5 1:12pm · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

My Doctor wants my platelets below 400,000, in order to accomplish that it was necessary for me to be on Hydrea 500mg 3days a week and 81 mg. aspirin daily. I must add that I also have Essential Thrombocytosis, Hope this helps. My understanding is below 400,000 cuts the risk of blood clots significantly. Hope I am of help. When in doubt, I always believe in second opinions. Blessings

Thu, Apr 4 7:37am · ET - Essential Thrombocythemia & Fainting in Blood Cancers & Disorders

Hi there, I also have ET & JAK2 but with no symptoms other than high platelets. Controlled with Hydrea and 81mg aspirin. It is possible your fainting is related to other issues too. I would certainly agree with others to talk to your doctors so you can do more investigating. Best wishes!

Fri, Mar 15 7:09am · High platelet count in Blood Cancers & Disorders

Hi, I was recently diagnosed with Essential Thrombocytoss (ET) and Jak2 mutation, after elevated platelets over a period of a year. This through extensive blood testing. I have been on Hydrea 3 times a week at 500mg each and daily 81mg aspirin. I don't feel any different before or after diagnosis and have to look at it as a positive not a negative. I will die with the disease not from it! I strongly advise your son to seek another opinion so that he could benefit from medication to lower the platelets. Well wishes to him!

Sun, Jan 20 9:21am · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

Hi, I'm jumping in because I have ET with Jak2 positive. I am on Hydrea 500mg a day, 4days a week and a aspirin daily. I don't think I am having side effects but I also have COPD & new stomach issuses , which the stomach upset could be related to the Hydrea but there has been no confirmation.

Dec 26, 2018 · JAK3 in Blood Cancers & Disorders

No, I am very active for my age. My only complaint is and as been for the last several years is tiredness, yet blood tests show no reason for that. I am active all day but go to bed at 7pm and sleep until 6:00 in the a.m. guess that isn't a real problem. :]

Dec 24, 2018 · JAK3 in Blood Cancers & Disorders

Hi, my name is Carla and I am a 77 year old, recently diagnosed with essential thrombocytosis and Jak2 mutation positive. I am told to take a 81 mg. aspirin daily but not as sole treatment. I take Hydrea 500mg. 4 times a week. My hemotologist wants my platelets at 300. I wish you success.

Nov 4, 2018 · Outer ear infection in Ear, Nose & Throat (ENT)

Thank you so much for your help. Since my ET & jak2 positive diagnosis and told to google my disease I feel somewhat bewildered. My first ear surgery was in 2016 for a perforated ear drum (cause unknown) it was a Tympanoplasty. Shortly after, about 2 weeks I started getting infections which would go from viral to bacterial. Treatment was always ofloxacin. The ENT at that time told me after 6 months that there was nothing more he could do and would refill my script as needed. When I moved to Missouri, the infections were still going on every couple of months. I found a great ENT who treated me for about 5 months and decided surgery was the only solution. He did a total reconstruction, removing the mastoid bone and creating an ear drum. I felt so good. No pain, I could hear some and was starting to heal and the infections started again. First viral then bacterial. He hadded Ciprofloxicin-hydrocortisone to my drug regime and recently put me on Fluconazole Tablets. The drug Hydroxyurea 500 mg has my system so messed up I don't know where to turn next.

Nov 1, 2018 · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

Thank you. Just diagnosed 2 weeks ago but my ENT has trie to get rid of the ear infection to no avail. Wondering if it could be related. My hematologist told me to google leukemia & lymphoma society for more info