Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (34)

Wed, Jan 30 10:46am · Anyone been diagnosed with CIDP? It's very rare in Neuropathy

My experience with infusions for CIDP has been headaches when the drip rate is too fast. I'm very tired for 2 days afterwords but my energy increases and pain lessens.

Wed, Jan 23 8:51pm · Living with Neuropathy - Welcome to the group in Neuropathy

The IVIG treatments have helped me tremendously. I get a boost of energy every month, no side effects except a headache sometimes when the infusion rate is too fast. It also helps my pain levels from SFN which spike before montly IVIG treatments. It keeps my CIDP from progressing. It does take a chunk of time though, about 6-7 hours each day.

Tue, Jan 22 7:47pm · Living with Neuropathy - Welcome to the group in Neuropathy

I have CIDP too and have IVIG infusions 2 days a month. You might want to discuss this treatment option as well.

Mon, Jan 14 10:41pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

Lyrics is good as long as you can tolerate it.

Mon, Jan 14 5:58pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

Dr Elana Frid, neurologist, nyc. Expensive, good nut doesn't take insurance.

Thu, Jan 10 11:03am · CBD oil for Neuropathy in Neuropathy

NanoBiologics out of CA works great for me. Check out their website. Also good relief from Rock tap. My physiatrist turn me on to it.

Mon, Jan 7 8:35am · Anyone here dealing with peripheral neuropathy? in Neuropathy

I order mine from NanoBiologics out of CA. I haven't found anything as good at the compassion center here in RI.

Sun, Jan 6 10:20am · CIDP (chronic inflammatory demylinating polyneuropathy) in Neuropathy

They help with energy and pain. I always know when it's time for my next infusions as pain increases. Is anyone having IVIG just for small fiber neuropathy?