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Nov 20, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Thank you. I was at the doctors today. Seems like things are «looking up». I found out today that she had previously referenced me to the wrong specialist. She referenced me to some sort of cancer department, and not a gastro specialist. They told her to do a stool test of me and get me an appointment with a gastro specialist. So that’s what she did. Can’t wait to meet and speak to a specialist that hopefully can help me out.
What you are writing at the end just made me have an epiphany. That explains everything. Why I’m rolling on the floor with abdominal pain after I try to do yoga or walk up a lot of stares. I just thought it was menstrual cramps, even though I didn’t have my period. Wow. I am blown away. I have a lot to think about now 😅

Nov 12, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

From the bottom of my heart, thank you for taking the time to reply to me.
I am so sorry to hear about your pain.
My gastro appointment got declined because «my symptoms are not newly accured». So now my doctor that has no experience or education about this is going to follow me up. I have not been to work for 5 weeks. In 4 days I’m going back to the doctor and honestly feel like there is no point. How is the doctor going to help me when she knows nothing about this. I just have to push her to force my gastro appointment forward. I have a right to be treated by a specialist when the doctors don’t know what to do!
Thank you so much for writing your experience to me. I will read it and show it to my doctor. It will be so helpfull for me to have it with me, so thank you again. I will also try to get a hold of that book.
I wish you the best and pray for your recovery.

Oct 30, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I have been in and out of the hospital for the last year. They diagnosed me with MP after a CT that I had to beg them to take of me after a year of abdominal and lower back pain.

My doctor literally started googling MP when I got my results back from the CT. She said she had never heard of it and that she did not know what it was. So I left with no information.

I am waiting to get an appointment with a gastro specialist but in the meantime I don’t know how to process this and how I should treat this.

I live in Norway and we are really far behind in medicine than other countries. Meaning that the doctors don’t have a lot of experience with rare diceases.

So here I am diagnosed with something that I don’t know what is and have no idea how I should treat.
It scares me a lot because I am afraid things will get worse if I don’t treat it right.