I was diagnosed with MALS and the doctors suggested surgery. I’ve lost quite amount of weight, and I am about 103 pounds now. Do I need to gain weight to prepare for surgery? If so, how much.
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Thank you for your reply the info is much appreciated. Can you give me an idea which hospitals have experienced doctors whom have performed this surgery before? My surgeon said he has only performed once. But it really sounds like he has not due to the amount of surgeons that will be in the room.
I have a CT scan done for a cough and the doctor found the typical hook on the image. So they referred me out and those doctors ran some tests. The LV Ultraaound reflects 70% of velocity flow with experation. So they told me I am only getting 30% blood through my celiac artery. Will my other arteries compensate? They want to do surgery but I am hesitant. Will I still need to do surgery if my velocity is 70% and little to no symptoms? Will the loss of blood flow to that area get worse if I don’t have surgery? Can I live like that without surgery?@kariulrich
if the symptoms are mild will surgery still be required, or can I just have it monitored?I MALS is left untreated,will it get worse with time or stay the same?I am confused because I don’t have the excruciating pain like I have been reading in the blogs.To me I think my symptoms have been mild.I do have some discomfort at times after eating.The pain is right under my diaphragm and lasts for a few hours.I thought it was just indiegestion. I eat very smalll meals but my weight stays the same or after a few weeks might drop a pound or two.
I have a few questions about symptoms & surgery,My primary doctor ordered a CT scan because I had a chronic cough they couldn’t figure it out.Radiology found the crossed ligament by accident.Primary sent me to a vascular surgeon and he sent me to a surgeon to be evaluated.During that appointment,the Dr asked me several questions about symptoms.He asked me about tummy trouble,I told him sometimes I get constipated for several days then get nervous and take laxatives to help.When I do eat,my stomach kinda bloats & I get a sharp pain under my diaphragm that last a few hours(but I’m not doubling over screaming in pain).Because I’ve lost weight,about 10 pounds this year) He asked about me eating. I told him that I eat very little &sometimes avoid it cuz I know my stomach‘s going to get bloated. Based on my symptoms & the CT he thought I had MALS but wanted to do more tests.He ordered an US Abdomen Limited & a VL visceral/ mesenteric test.He called 2 days ago to tell me the results.It reflected the blood flow percentage in that area was lower so they suspect compression is altering it.He wants me to come back in to discuss options and surgery.I’m devastated & scared when they mention surgery. Especially when I hear of the long recovery time.My questions; what if my symptoms are caused by something else?I have chronic migraines so maybe I am losing weight because it’s difficult to eat when I have them.What if I’m getting constipated because of the migraine medication,what if my stomachs gets bloated because I’m having a big meal or it’s fatty.Could I have MALS with the only symptom is a lower blood flow in that area? Are you born with MALS or is it developed over time?Help!
Thank you Mark, yes I was very slender growing up and just gained weight when I was pregnant. Now I am down to 108. I haven’t been that weight since high school and I am 50 it is kinda disturbing to me. I will ask about the nerve bundle when I see my surgeon at the beginning of Dec. thank you for all your advice and yes I have many questions and will check in regularly. 🙂
Thank you. You have provided many answers and information that is very helpful to me. Hopefully the next 2 tests will show a better prognosis. At least now I can understand the symptoms and how they pertain to me. I’m very grateful they found it early so I can now go through the elimination process Thank you for your prayers, it’s very sweet of you.
I’m not sure how to use this forum I just registered so bear with me. My primary doctor just discovered Median arcuate ligament by accident in a CT scan of my chest. They did a full pelvic to confirm it. He sent me to a few different specialists before I found the right depot and surgeon. I had an appointment today and he said they are ordering a US Abdomen Limited order and a
VL visceral / mesenteric order to rule everything else out.
I’m kinda scared about all this happening so quickly and they are telling me it’s really rare. The symptoms I have had are losing about 30 pounds in a span of 2 1/2 years, some pain and bloating after eating. (but it doesn’t happen all the time, just in blocks of time.) The doctor said he wants to do these tests because even thought I don’t have the pain all the time, it has kinda made me afraid to eat because I want to avoide being uncomfortable. I would like to know if anyone has been in the early stages like this and the symptoms weren’t super crazy bad. I don’t understand how I got this. Is it hereditary? Was I born this way or did it develop on its own? What happens if my symptoms are not that bad? Will it go away? Will it have to be monitored? Any feed back is greatly appreciated.