Badges (2)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (100)

6 hours ago · Feeling at my wits end with Chronic Pain and Fibromyalgia in Chronic Pain

@lioness Thank you for your feed back. I guess I am not on alot of meds considering. For neuropathy is gabapentin, elavil and percocet. Depression is effexor and lexapro and lasix for fluid. I now need to wrap my head around and try to get straight. My husband died Jan. 7, 2018 and since then I have fell apart physically and mentally. I saw the breast surgeon yesterday to get a plan in place to hit this breast cancer. I really like the doctor and will have surgery on Jan. 8, 2020. Wow, 2020 is just up the road. She told me that newly diagnosed breast cancer in women is like 70% after the loss of their spouse. Grief, stress, anxiety greatly increases cancer risks. She said she was planning on doing a paper on that very subject. Interesting for sure.

21 hours ago · Feeling at my wits end with Chronic Pain and Fibromyalgia in Chronic Pain

trishj46 Thank you for your response so quickly. Your right. I just sometimes think I really don't need them and should get by. I just fear the dependence and have to believe I wouldn't be prescribed if I didn't need the, This thought process is one embedded in the addiction counselor I was for 25 plus years. Here I am with my medical marijuana card and ingesting opiates. The same drugs that I supported not using. I am newly diagnosed with breast cancer. Two weeks ago I was referred for a biopsy because of a suspicious find in both breasts. Biopsy came back positive on both breasts and I was seen by the surgeon today. Yes to cancer in breasts. In spite of that we are very optimistic as I have a very tiny piece of cancer in both breasts and as the doctor said if one had to have breast cancer this is the one. I will have a lumpectomy on Jan. 8 2020. I liked the doctor and staff and will have this doctor do the surgery. I don't look forward to surgery of course, but positive on the outcome. I find that percocets often dull emotional pain and that frightens me as I will also have real pain after the surgery. I think I am just tired and confused and in pain right now. Thank you and everyone who read my posts tonight.

23 hours ago · Feeling at my wits end with Chronic Pain and Fibromyalgia in Chronic Pain

Question for members I am taking 3 percocets daily – 10/325 prescribed by pain doctor. I take it as directed and at times less than 3. I know opiods can cause issues with other organs in the body. When I question my use I then go out for the day, shopping, etc and the pain in my feet, legs and back is unbearable and I take the pain relief. I am diagnosed with neuropathy, fibromyalgia, lymphedema, numerous back problems and osteo arthritis. Is any one else taking that much of an opiate on a daily basis.

Wed, Nov 6 12:41pm · What if suspect pain med. addiction in a future daughter-in-law? in Addiction & Recovery

@stay positive As a retired addiction specialist I give you an A as to how you approached your concern for your future daughter-law. There is a definite problem here and making those close to her aware of your concern was the right thing to do. I praise you for not letting it go. I also suggest that you stepped back from this at this point and pray that she gets the help she needs. Her mother also sounds like she has her daughter's best interest in mind.

Wed, Nov 6 6:31am · Perineural or Tarlov cysts in Chronic Pain

@betsy63 I also have a Tarlov cyst which was acknowledged on my last MRI in July 2019. I have back pain for years and recently diagnosed with peripheral neuropathy. I do not have diabetes so they call it idiopathic. Idiopathic is a word used to describe "No known cause" No known cause means the doctors can't associate it with typical cause such as diabetes or auto immune and just would rather treat the symptoms. I have had prior MRI's and a Tarlov cyst did not or was not acknowledged on the MRI. I am thinking it may have been there on prior MRI's , but not reported. I asked my doctor about this "New" finding and was completely brushed off with "Many people have them" with it is not a problem. I had not heard the word Tarlov cyst until then and now I am reading that there are others on this site experiencing pain in their back and other similar issues that I have and have been diagnosed with Tarlov cysts. I thank you for sharing this and giving me a push to learn more about Tarlov cysts and also talk more to my doctor about this.

Fri, Nov 1 10:36am · Living with Neuropathy - Welcome to the group in Neuropathy

@glenncrawley You are awesome and your program is awesome. Yes, of course I find it a difficult regime, but as you say well worth the reward. Thank you for posting. Got me thinking.

Wed, Oct 30 3:08pm · Living with Neuropathy - Welcome to the group in Neuropathy

I want to thank everyone for your response to my post. It helps so much to know others experience these symptoms. I will contact a neurologist as I too feel this is going too far. I do use medical marijuana and have my card so I can purchase. Many times it helps especially at the onset of sleep. It seems that nothing works once the pattern establishes itself. I will be seeking a neurologist. Too many things are going on and very few answers. I see my PCP tomorrow. I get concerned about taking Percocet . I sometimes take 3 a day 10s I believe. They do help with pain during the day, but nights are a different story. I truly feel that I will or have lost my mind. I thank everyone for your input. I say, like many others in this group, that you are more helpful than my doctor.

Wed, Oct 30 9:09am · Living with Neuropathy - Welcome to the group in Neuropathy

I am asking help from you all. I have fibromyalgis, peripheral neuropathy and lymphedema. All diagnosed as idiopathic???. I don't agree and very few tests have been done to prove otherwise. I believe idiopathic is used because it is easier. I feel other things are going on. My question is has anyone with neuropathy found that towards morning light you are awakened by the feeling that your entire body, including face, is engulfed by hot water running through every fiber of your body? I cannot go bed to sleep once this process starts. I almost feel like my breathing is difficult. This along with the numbness in my legs and cramps so bad in my legs and now up the entire leg. I do get up and when the cramps slow down I get in the shower. My anxiety is then over the top. I don't know if these episodes are caused by anxiety or the anxiety is caused by the episodes. This has been going on for almost a year. I have been prescribed Lexapro 5 mg at night to help with anxiety. Well, that's not working. Medication before bed is 5 mg lexapro, 50 mg Elavil (for neuropathy pain) and 600 mg gabapentin. I am now taking 10 mg melatonin for sleep along with 1/2 dropper CBD. Daytime meds 40 mg lasix. 37.5 effexor That is 5 meds prescribed and 2 prescribed by me. I also take (almost forgot) percocet as needed during the day. This may be 2 1/2 the entire day and none taken at night. I don't know. I see my doctor tomorrow and she will "I don't believe it is the medication. OK so what is it and what recommendation do you have. I am really concerned because I am not going to bed until 11 pm and waking every hour or two until about 5 am. I don't want to go to bed at night. I don't want the process to start all over. It's not that I don't want to wake up in the morning. It is that I am worn down from the process. I am now having fears of the nightly and morning episodes. My day gets better and I try to forget it happened. I am getting really messed up here. The neuropathy is kicking my butt with difficulty walking and severe numbness. I am not seeing a neurologist and the neuropathy was diagnosed by pain management by doing the nerve conduction test. Thank you.