Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (32)

2 hours ago · Living with Neuropathy - Welcome to the group in Neuropathy

In reply to mictim I have read your very eye opening "Rant" and I agree with you 100%. Right now I will choose just one area from which you spoke. That is doctor /patient relationship. These past 2 years have been very difficult for me both physically and mentally. I have a primary doctor who I think/did think highly of. However she did not pursue any of the issues I brought to her. She basically related most of my ailments to grieve after losing my husband. I bought this until recently when I am diagnosed with idiopathic (at this time) peripheral neuropathy. My leg, foot and toes are so swollen I can barely put weight on my left leg. Other issues coming to light also. She did refer my to a neurologist. I believe her thinking was to rule out neuropathy. Well after nerve conduction tests and physical exam it is found that yes I have it and the neurologist asks why no one had figured this out. I told her I did. I won't go into the ins and outs. Just that yesterday I was seen by my primary physician and for the 1st time I became angry with her. I told her she has not been listening to me at all and now have issues that are serious. Not just neuropathy. What really hurt was that this very lovely lady who could be a poster child for a beautiful doctor, became defensive with me. First time I have seen her lose some of her "Cool" Not professionally at all. I did not attack. I actually was in tears telling her I did not feel she is listening to me. She abruptly ended our 15 min visit. This is not unusual, but yesterday it really hurt. I needed compassion, not sympathy, but a soft ear. I counseled addicts and their families for 30 years before retiring. I know she is a "Doctor", not a counselor, but she could have put her doctor away for a few minutes and given me what I needed most which was some compassion. Thank you mictim for putting your wonderful rant out there. I so needed to vent that and now give it up before it eats me up.

22 hours ago · CBD oil and depression/anxiety in Depression & Anxiety

I use CBD NuLeaf off internet. Helps. Also have Medical marijuana card. My question. Everyone is talking about mg and how many mg they take. Well, I know nothing about mg All I know is dropper. I take a 1/4 dropper of this or that. Or a 1/2 dropper of this or that. I have no clue how many mg are in a full dropper. There are times the amount isn't helping and then I hear someone taking this or that many mg. Please explain. I want to get the most benefit from the product.

1 day ago · Living with Neuropathy - Welcome to the group in Neuropathy

Hi John and group Returned from my 1st neurologist app. Really liked this young female doctor. Yes some of this awful swelling is Gapapentin, although not believing it was caused by it but can add to it. Working me off the Gapapentin and changing to Topamax ???. She believes there are underlying causes for the edema, mostly on my left side. She also will be delving into the possible cause of the nerve pain and neuropathy. First blood tests and then MRI's if needed of pelvis and back ad also checking on lymph damage or sickness. I have not had cancer or removal of lymph nodes, but could have issues. She feels there are underlying reasons for the nerve pain and edema. I have said this all along so at least our pages are similar. She ordered blood tests to look for autoimmune disease, Lyme disease, B12 and folate. These tests have been indicated to be performed when I read about neuropathy. So again a plus. I return to her in 4 weeks. No other instructions for now. Of course I am concerned about taking Topamax, but will certainly give it a try and hope some swelling will be eliminated. The pain is a do the best I can right now and she stated there is no fixing a damaged nerve, but if we can find a cause we have more options. Tomorrow I see my primary care. I am following through and admit I am concerned as to what might be the cause of my issues. Please continue to hang in with me.

2 days ago · Living with Neuropathy - Welcome to the group in Neuropathy

chatty Thank you. I have my first visit with the neurologist today. I believe the neurologist is the doctor who treats neuropathy. I don't know who does what anymore. There is good news. I had a Echo done on my heart this week. They were looking at the possibility of a heart problem which may be causing the fluid retention in my leg and foot. This awesome doctor called me back the same day to tell me my heart is strong and not the reason for fluid retention. Maybe the vitamin D in the sunshine with help with my depression. I will keep you posted. Sending prayers back.

Thu, May 9 3:53pm · Living with Neuropathy - Welcome to the group in Neuropathy

Thank you all for the feedback. I am sitting here right now is bad pain. My foot and leg below the knee are so swollen they look and feel like they are going to pop. I did take a percocet about 2 hours ago which help decrease the pain. It is back now. My toes are so swollen I cannot move them. I had to cancel lymphedema therapy today because I was having electrical work done in the house. I don't see the neurologist until May 22 so I have no clue what type of neuropathy except for peripheral. The cardiologist said the reason all the pain and swelling is on my left side is because the damaged nerve is probably on that side. My quality of life is so diminished and with my depression and pain it is worse. I am alone here. I lost my husband 14 months ago from cancer. I feel the doctors waited too long to address my pain and physical problems always using grief to account for everything. Well I don't think it has caused neuropathy. In tears right now.

Thu, May 9 9:39am · Living with Neuropathy - Welcome to the group in Neuropathy

Carol again adding to above. I have significant swelling of my left foot and toes. I was told that sometimes Gapapentin can cause swelling. Has anyone experienced this from Gapapentin?

Thu, May 9 9:36am · Living with Neuropathy - Welcome to the group in Neuropathy

Hi. My name is Carol. I am familiar with Mayo Clinic connect and known by summertime 4. However, Carol is my name and I have no problem sharing that.. I was recently diagnosed with idiopathic peripheral neuropathy. This diagnosis came about after a nerve conduction test with also the electrical shock. I have many of the classic symptoms which include awful pain in y left foot and toes. Of course numbness in both legs and an inability to walk without the risk of tripping. As for the idiopathic. I have not seen a doctor since this diagnosis so hopefully they will try to find a cause if there is one. I have been prescribed Gapapentin 600 mg for fibroyalgia so they may increase that. If anyone has any information they can share with me I would appreciate that. Thank you.

Fri, Mar 22 4:09pm · Tips on minimising withdrawal symptoms from Effexor (aka Venlafaxine) in Depression & Anxiety

Is Effexor the only drug that has horrible withdrawal symptoms? I was on Zyprexia for years and it worked so well. I actually felt normal. My father at the age of 82 was prescribed zyprexia because of severe depression. Two days after he started it he told my sister he felt so good he wanted to dance. He was not on it very long before other medical problems arose. I believe our brain chemistry is inherited. I had to stop taking it because of extreme weight gain that I was unable to lose. I lost over 40lbs in sick for I know a year. I was weaned off but once off I was miserable. I know it took a good year or more to feel relief. I had never experienced any thing like it and could not find any other reason for my illness. I am on 37.5 mg of effexor at this time.