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1 day ago · Perineural or Tarlov cysts in Chronic Pain

@wandah My last MRI of my back found a Tarlov cyst. I knew nothing about a Tarlov cyst, but have extreme back issues with alot of pain. I too asked the doctor about them and he dismissed me with "Nothing to worry about" I do not believe that. I have peripheral neuropathy in both legs and feet. I wonder if this could have an origin of Tarlov cyst. They refer to my neuropathy and lymphedema as idiopathic. I hear that word much too often. We cannot address a problem if we do not identify the cause. I wonder how many people have seen a Tarlov cyst pop up on a scan and been told "Nothing to worry about"

3 days ago · Living with Neuropathy - Welcome to the group in Neuropathy

@jimhd I read your post John. I feel it is a good idea to see a psychiatrist and a counselor. Having a very painful and progressive disease is very difficult to live with. I also get in the depths of despair. The constant pain and knowing this pain will keep me from doing the things I once enjoyed leaves me in serious depression. I am also 74 years old and have difficulty stepping down some and then the neuropathy and lymphedema come into play and yes, at times I question my purpose for living. My husband died 2 years ago so I must take over his responsibilities plus my own. The pain of the neuropathy keeps me from functioning on the level I am used to. I am on an antidepressant and although it does not do what I want I know it has benefits. I know that because I am sitting here talking to the group and I am able to recognize some of my issues. I was a counselor for 25 years and worked with people experiencing addiction along with other issues and I know the benefits of allowing someone to come into your life with maybe a new prospective. I admit I don't like having the table turned from counselor to patient but I also know that our hats can change at any given time. So, if a doctor or someone you respect recommends you see a psychiatrist please look into it. Having a chronic illness that produces so much pain and discomfort is not easy. We seek medication for the body so why not seek medication for our mind and hearts.

3 days ago · Living with Neuropathy - Welcome to the group in Neuropathy

@oldshep Hi Larry I have idiopathic progressive peripheral neuropathy. It ain't no fun as you know. I do not have diabetes and tests do not confirm an immune system reason. I did score on the ANA blood test which is indicative of an autoimmune disease, but further tests done by a rheumatoid doctor set that aside?? I have found that if you go to 4 different doctors you get 4 different diagnosis. I know the neuropathy and IDIOPATHIC lymphedema is on target. I am assured of that when I look at the swelling of my leg and feel the nerve pain in my feet and legs. Someone on here said it is idiopathic because the idiots can't figure it out and they don't want to try. Sounds right to me. Are you being seen by a neurologist? When a doctor can identify the reason for neuropathy it can be quite manageable. Neuropathy is caused by another physical problem and when that problem cannot be identified then all that is treated is the neuropathy. There is not to my knowledge a fix for neuropathy, but rather ways of curbing the pain and addressing the problems that the neuropathy provides us with. The neurologist I am currently working with is addressing B12 as an issue and has prescribed weekly B12 shots. From research on neuropathy it was found that lack of B12 or the inability of the body to absorb it properly can cause neuropathy. You may want to discuss this with your doctor. I don't know how many people in this group have what their doctor refers to as idiopathic neuropathy. Seek all the information you can about peripheral neuropathy and find a doctor who doesn't just throw his/her hands up and prescribe Gabapentin. Gabapentin is the drug of choice prescribed by doctors. I am not saying it is a bad medication, but there are many other choices. I take 600 mg daily of Gabapentin and 50 mg of Amitriptyline. Maybe I would be in more pain if I didn't take it is all I can say. I hope I helped some. There are many people on this site who can offer much more. We all share our experiences. Good luck. Stay in touch with us.

Nov 6, 2019 · Suspect pain med. addiction in a future daughter-in-law in Addiction & Recovery

@staypositive As a retired addiction specialist I give you an A as to how you approached your concern for your future daughter-law. There is a definite problem here and making those close to her aware of your concern was the right thing to do. I praise you for not letting it go. I also suggest that you stepped back from this at this point and pray that she gets the help she needs. Her mother also sounds like she has her daughter's best interest in mind.

Wed, Jan 1 8:48am · CBD oil and depression/anxiety in Depression & Anxiety

@nodepression Does anyone using CBD/THC or just CBD have a headache after use. This happens especially in the morning after sublingual use of CBD or CBD/THC.

Dec 22, 2019 · When can I take a pain med again in Chronic Pain

@jdiakiw Just read your post. Please tell me what MOH is. Obviously it has something to do with opiates. I am interested as my neurologist told me that taking opiates for an extended period can make our bodies feel more pain than the original pain. I discussed this with my pain doctor and she explained it to me and said that is the reason they try to keep patients on a certain level. I am not quite sure of the explanation but it did make sense. I am not sure if this is the reason for you being off the opiates.

Dec 21, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

@jeffrapp Thank you for further information on alcohol and neuropathy. I certainly agree with what you are saying. So much new information comes about while conducting new studies on neuropathy. Alcohol on it's own can cause the body adverse effects and neuropathy may well be one of those effects. Your right about there not being an amount of alcohol consumed nor the duration of alcohol consumption. I am a believer in that all things used in abundance can cause problems. How much is too much? How often is too often? I worked as an addiction counselor for 25 years before retiring. I say and truly believe that if anything is effecting your life in a negative way then that anything is a problem. So many questions in this world and so few answers. Cheers and happy holiday to all on this site.

Dec 21, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

When they talk about alcohol related neuropathy the cause is not actually the alcohol.. The cause is when the alcoholic drinks for years and health issues are left untreated. The alcoholic does not take care of their whole person. They are not getting the vitamins the body needs and the alcohol may slow down any absorption of nutrients. I do not drink and haven't for over 30 years. I have idiopathic neurology. I am not a diabetic – so I do not believe having a drink at days end and a bit of relaxation is a bad thing. The thing to remember is eat well, take vitamins. The neurologist has prescribed B12 shots weekly. Vitamin B12 and folic acid are important vitamins for those with neuropathy. My neurologist says my vitamin B12 is not being absorbed as it should. One reason is that I have had stomach surgery years ago which makes it difficult for Vitamin B12 to be absorbed.