Thanks for your reply. Greg is almost 18 mo out now. I can still see fatigue , but less now. Good luck and Happy New Yrar!
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My son had CAR T infusion in Aug/19 and had the difficult side effects- was so worth it. He is still in remission and feeling great. The staff at the Mayo are so wonderful that words can’t describe them!
Good luck and God bless you this Christmas like none other!
Greg is doing well. The immunoglobulin shots worked for him and brought everything to normal. He still gets tired, but overall is doing well.
His Next Petscan is in January. I am great!
He is doing pretty well. Still gets tired though.
Not the worst thing. He is having immunoglobulin shots as he had a bad reaction to the infusion.
Thank you for asking.
Thanks so much for replying! Going to check with the Dr.
My name is Barb and my son Greg had a CAR T Cell Transplant in Aug of 2018 for large BCell lymphoma. He has done well except for immunoglobulin being low. He had a reaction to the infusion and is giving it to himself weekly in needles in the stomach. Just in the last 3 weeks, he has become unusually tired. Has anyone else experienced this at this stage.