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Mon, Aug 31 8:34am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

Dear Susan – my son had much the same experience as you have had. He had a stem cell transplant as well – but the B cell was back within a year. He then went to the wonderful
Mayo Clinic and had a T-Cell transplant. That was in August 2018, and just had his 2 year checkup! All seems good. We are so greatful to the Mayo!
Thinking of you and let us know what your next step will be.

Tue, Apr 28 3:21am · News briefing with Mayo Clinic COVID-19 expert Dr. Greg Poland in Podcasts

I would like to know whether the Dr would prescribe Hydroxyclorophine and azithromicine and zinc for Covid 19

Wed, Apr 8 9:55am · Post CAR-T IVIG Infusions in CAR-T Cell Therapy

Once a week. He hasn’t had them for about 6 mo. now. He is also about 18 mo out!

Wed, Apr 8 9:52am · Post CAR-T IVIG Infusions in CAR-T Cell Therapy

Hi – my son Greg had IVIG infusion at the Mayo and had a reaction to it. He also had one here in Winnipeg. He had a violent reaction – so they gave it to him in the form of self injections in his stomach teice

Sun, Mar 15 11:53am · CAR-T Cell Therapy: Introduce yourself and connect with others in CAR-T Cell Therapy

Hi – this is Barb again with an update on my son, Greg. His shingles are gone, thanks to very heavy doses of Valacyovir which was given in the hospital by an intervenious drip. They did this for a week. That was Jan 28th. Our Dr in Winnipeg was in contact with the wonderful Dr Lin at the Mayo Clinic, Rochester during this time.
Greg has a lot of nerve pain, even now in his head. He has headache and numbness, but they saved his eye and he can open it. We are very blessed!
He also was referred to an eye specialist who helped so much. He is still on Valacyclivor by mouth.
It is a lousey disease and there is a vaccine called Shingrix that is a dead virus and is very effective.
Greg will receive it in about 5 months.
Hello to all caregivers. The CAR – T cell transplant is challenging, but you have access to such wonderful support at the Mayo. Listen to them and let them help you, because it is so worth it!

Mon, Feb 24 8:24am · CAR-T Cell Therapy: Introduce yourself and connect with others in CAR-T Cell Therapy

Hi – this is Barb – son Greg had T cell transplant in Sept /18. Still no cancer, but he came down with shingles ion his eye and scalp. It has been pretty awful. He had his transplant at the wonderful Mayo Clinic, Rochester. Has this happened to anyone else?

Fri, Jan 3 8:04am · Car-T therapy for B cell lymphoma in CAR-T Cell Therapy

Thanks for your reply. Greg is almost 18 mo out now. I can still see fatigue , but less now. Good luck and Happy New Yrar!

Dec 24, 2019 · CAR T CELL Christmas in CAR-T Cell Therapy

My son had CAR T infusion in Aug/19 and had the difficult side effects- was so worth it. He is still in remission and feeling great. The staff at the Mayo are so wonderful that words can’t describe them!
Good luck and God bless you this Christmas like none other!