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Sun, Sep 13 3:56pm · Living with Neuropathy - Welcome to the group in Neuropathy

I would like to know what herbal remedy helps with your neuropathy pain in your feet. Can you send me a private message? Thanks.

Sat, Sep 12 12:49pm · Living with Neuropathy - Welcome to the group in Neuropathy

I tried talking to lawyers, but none of them would take my case unless a doctor(s) would testify that the injection definitely was the cause of my neuropathy. Of course, no doctor will say that it was definitely the reason, even though I felt the neuropathy start immediately after the injection. They just call it "idiopathic", which is what most of us sufferers have been told. Again, be careful and learn as much as you can.

Sat, Sep 12 11:35am · Living with Neuropathy - Welcome to the group in Neuropathy

My short fiber neuropathy (severe burning pain in feet, legs, hands, and arms) was caused by a Kenalog cervical steroid injection two years ago. I recommend that you ask if your doctor is using Kenalog because it is toxic to nerves. If the Kenalog is mistakenly injected into the spinal canal, it will attack your nerves. Hope this helps other people avoid my agony.

Tue, Aug 18 8:23am · Post viral neuropathy in Neuropathy

Just for added info, I went to Johns Hopkins for my short fiber neuropathy. I have burning pain in feet, legs, hands, and arms caused by a cervical steroid injection. I saw Dr. Koshnoodie. They did leg biopsy and EMG, which showed short fiber neuropathy, but did nothing after that. I thought they would have a team of doctors to try to figure out what was wrong, but no. They didn't even refer me to their pain management department. I am not saying you shouldn't try them, but I just wanted to share my experience. I am glad you like Bethany Beach. I went to high school in Lewes Delaware, and we now have a summer house in Dewey Beach.

Wed, Aug 5 3:12pm · Living with Neuropathy - Welcome to the group in Neuropathy

I have heard that the "water running down your legs" symptom can be caused by anachroiditis. This is basically a condition that affects the nerves in your spine. Did you have any steroid shots, chemotherapy, etc near your back? There is a retired doctor (Dr. Tennant) that does research in this area and has a medicine protocol that is supposed to help. Here is his website http://arachnoiditishope.com/ . Maybe this could help.

Wed, Jul 15 7:53am · Buprenorphine for pain relief in Neuropathy

I just started on Buprenorphine (opiod) for my severe neuropathy pain (feet, legs, hands, and arms). I started with a new pain management doctor who uses this drug a lot. Buprenorphine is supposed to be much less addicting and you don't build up a tolerance to it. So far it really helps take the edge off of my neuropathy pain. I also have severe neck and back pain, but it doesn't seem to help that as much. Right now I am only on a 1mg dose of the tablet (dissolve under your tongue). Has anybody else had experience with this drug? Nothing else has helped me (gabapentin, Lyrica, Elavil, etc.).

Mon, May 18 9:35am · Living with Neuropathy - Welcome to the group in Neuropathy

I'm glad it might be of some help to you. I guess that is what this group is all about. I first used it in physical therapy about once or twice per week. I had spoken with a physical therapist who was retired, but he used to work at the facility and he claimed it helped many of his patients. I believed his testimonial since he would not benefit in any way. I did this for a about two months, and then bought a foot bath unit for myself. I did it once per day for about two weeks straight. I did not notice any significant reduction in pain. I still use it once in a while because it feels good when I am using it. Maybe I didn't try it for a long enough period. I also tried the Inspirastar Frequency Specific Microcurrent machine (FSM). It is similar to the ReBuilder, but it is at a much lower current. It supposedly finds a specific frequency to heal your nerves. I tried this for a month (rented it) without any pain relief. It gets pretty discouraging trying all of these "cures" without any good results. I have neuropathy in my feet, legs, hands and arms from a failed cervical steroid shot. I also have collapsed discs in my neck. Maybe it will help with your problem. Good luck!

Sat, May 16 5:52pm · Living with Neuropathy - Welcome to the group in Neuropathy

I have tried a device called the Rebuilder. It is supposed to retrain your nerves to operate normally, instead of sending pain signals. I have tried it off and on for over a year, and I cannot say that it helps. I have terrible burning pain in my feet and hands, and it does feel a little better when I am doing it (only 30 minutes, twice a day, max), but it does not help when it is not on. A physical therapist used it and then I bought one (about $1k). You can google it and find out about it.