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Fri, May 22 2:13pm · NSCLC with Leptomeningeal mets in Lung Cancer

Yes, he did chemo too Carbo, Alimta and Zometa but stopped 6 months ago

Wed, May 20 4:58pm · NSCLC with Leptomeningeal mets in Lung Cancer

Colleen , thank you for the response. They did not offer any other alternative. That is why i wanted to find out the second opinion to see what options do we have.

Wed, May 20 12:52pm · NSCLC with Leptomeningeal mets in Lung Cancer

Hi everyone. Wanted to find out any success stories on stage IV with Leptomeningeal mets.

My dad who was doing very good , being on Keytruda for 18 months , last PET in January showed no brain mets, shrinking tumor in Lungs, they even decided to do scans every 6 months instead of 3 but last week he did MRI and we were told that he has LEPTO.. and we were told that he needs to do a radiation on the entire brain. WBRT.

I was soo happy when he was doing so good and don’t understand if 6 months ago there was nothing , how come that quickly it spreaded again?

Any advice is appreciated. Shall we do WBRT? At least rush to do it when physically he is doing ok for now. Read not encouraging things about WBRT and very confused what to do.

My dad is in country Georgia, i am trying to help him from US as much as I can but with Covid situation its even harder. He usually does his treatments in Istanbul, Turkey but now don’t even know what is he gonna do.

Is there any possibility that I can get a second opinion here is US?

Jun 19, 2019 · Lung cancer stage IV Maintenance treatment in Lung Cancer

Merry, thanks for your support and nice words. His quality of life is ok, i guess it could be worse. He does not have much side effects, the only thing that he complains is little bit of numbness in his feet due to neuropathy. I guess, he had a very energetic life style and its not the same now but still very, very thankful. Yes, it was spreaded in the bone initially but with zometa it was controlled.

Jun 18, 2019 · Lung cancer stage IV Maintenance treatment in Lung Cancer


My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy.

This was his second PET and MRI with the same results during more than 6 month period.

His meds are now Keytruda, Zometa, Alimta and Altuzan.

I am wondering for how long he should continue Zometa and Alimta? I want him to rest a little bit from chemo and continue Keytruda only.

Based on what doctors decide when to stop the chemo? What is recommended in this situation?

Apr 30, 2019 · Research on PD-L1 in Lung Cancer

Hello everyone. Just read an article about the study that cancer cells with high levels of PD-L1 may be more resistant to standard radiation and chemotherapy. It was mostly related to breast cancer. Can someone share more about this study? What about lung cancer with high PD-L1 expressions. Thanks. Ina

Mar 22, 2019 · Brain inflammation/tumor due to radiotherapy in Lung Cancer

@merpreb thanks for sharing. They so ot intravenously every two weeks. It is interesting that this medicine is used for the brain cancer. I hope it will work and wont do any demage. I also just read that this drug with name in Altuzan is in question. It is a Turkish version and thats exactly what they gave to my dad.

Wow, now I dont know how to check.

Mar 22, 2019 · Brain inflammation/tumor due to radiotherapy in Lung Cancer

They added Bevacizumab.