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Posts (12)

Jan 28, 2019 · Parsonage turner syndrome * in Brain & Nervous System

@adriennes I am also female and most of my issues are in my median nerve in my right forearm and hand. I have significant and severe nerve damage in my hand. Plus the wasting of pronator in forearm. Also anterior interosseous syndrome.This started last September and is continuing to be a problem. I will say that things are gradually getting better. At first the ends of my fingers were so hypersensitive that I couldn’t stand touching anything, particularly metal. Since I spend my workday at a computer typing was terrible, and I spent several weeks typing one-handed. I still can only use the mouse with my left hand so that’s been fun since I’m right handed. The other thing that’s been helpful is that I am a remote employee so no one in my office really knows what I went through. Although that’s a double-edged sword because I think if I was in the office I would’ve been on disability instead of doing nothing but work and then sitting on the couch with a heating pad for a number of weeks. It’s like I lost about two plus months of my life, but I’m not going to complain too much because many folks here have it much worse. PT was great, best thing about it was understanding that it’s necessary to push myself to get better. Are you able to do any PT yet?

Dec 6, 2018 · Parsonage turner syndrome * in Brain & Nervous System

I’ve been to PT 7 times so far and it’s going well. The therapist is working on my arm as well as my hand, concentrating on my pronator and my grip strength. I had an appointment with my doctor today for the first time in four weeks. He was encouraged by the tiny amount of movement I’m showing in my index finger and thumb since the last visit. I don’t have to go back to him for three months unless I need him for something. It’s still up in the air as to whether or not I will get 100% back to what it was, but I’m focusing on the positive!

Nov 27, 2018 · Parsonage turner syndrome * in Brain & Nervous System

You’re making me laugh because I can really identify with you! Finally realized it’s better to walk along side the grocery cart and pull with good hand as opposed to listing to the right! Definitely a learning “curve” with this condition. ; )

Nov 7, 2018 · Parsonage turner syndrome * in Brain & Nervous System

EMG showed “significant” / “severe” neuropathy in right hand. Good news? I was given the green light to begin PT and had my first appointment today. Great first appointment with therapist. He suggested buying 5 pounds of cheap rice, dumping in a big bowl and running my hand through it while reading or watching TV. I asked if it was okay to warm first and he said yes. This is so soothing!

Nov 4, 2018 · Parsonage turner syndrome * in Brain & Nervous System

@lisalucier – next appointment with EMG is Tuesday, November 6th. Symptoms seem to have stabilized somewhat in the last 2 weeks. Arm pain is much better. Pinkie finger is normal. Everything else on right hand is a crazy combination of numb, painfully swollen, and hypersensitive. Started wearing a thin cotton glove wrong side out (seams hurt) to bed. Husband calls me Michael Jackson and that’s okay.

Oct 28, 2018 · Parsonage turner syndrome * in Brain & Nervous System

Difference between seeing a Neurologist and an Orthopedist? After going to Urgent Care for elbow pain in September, I was sent home with prednisone and a referral for an Orthopedist. He was quick to tentatively diagnose Parsonage Turner's after an EMG and ultrasound. I don't have a definitive diagnosis yet (thought I did) because symptoms keep changing. Elbow pain has improved, but then I lost ability to make an okay sign with thumb and index finger – Kiloh Nevin Syndrome. Now, I also have bad hand swelling, poor grip strength, and hypersensitivity to touch. All this to ask is this "normal?" From what I'm able to find about this, is it all about managing the symptoms until it runs its course? @briannave Are you able to do any type of PT yet? I was doing a couple of half marathons a year and being unable to do any type of exercise is very stressful. Should I consult with a Neurologist? The Orthopedist said that I am their only patient with what they think is PTS. Next appointment is a week and half away – another EMG.

Oct 23, 2018 · Parsonage turner syndrome * in Brain & Nervous System

@confused1955 So sorry that yours is in both hand and arms. Reading through everyone’s comments, it doesn’t like cannabis has helped many folks with PTS. Hope acupuncture and prayer do the job for you.