What a bummer. I never got to the point of infusions. I guess I didn’t feel bad enough.
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I am 55 and pretty much feel the same. I am tired more than 98% of the time and on those rare occasions I usually over do. I pay the price! But what do you do? I tell people my mind does not work and I can't remember, even the things I did just yesterday.
I have to push myself to do anything, and depression and weakness plays a big part for me. People say to exercise, and I get short of breath taking a shower, sweeping the floor, or washing the dishes. Not sure how I would exercise and what about the next day or so?
Extreme heat and cold are horrible for me, I hurt all over or want to pass out. I would like to live where the weather is more tolerable for my body. I also forgot to mention I have Sjogren's, Fibromyalgia, Osteoarthritis, and a few more problems.
Trying to finish up working till January 31st, 2022 so I can retire. Sure seems like a long was off sometimes.
I have used Xiidra now for about 2 years now. I have had good results with the drops. The taste is not that great but does go away, just don't lay down right after you use. Also, do not miss any doses unless directed by your doctor.
Since you are unable to save any drops I use the whole tube. My eyes are very dry since I live in West Texas and I have Sjogren's.
The drops are quite expensive if you do not have insurance.
I went there back in 2017 I believe and I was very impressed with everyone who worked there. Every person you asked where to go knew how to give you the correct direction and was always very polite. The clinical and office personnel were friendly and knowledgeable. The whole format of the clinic is like a beehive. It works in unison. It's awesome to just watch.