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Posts (18)

Tue, Jul 7 12:21pm · People with non diabetic neuropathy in Neuropathy

That's ridiculous and you should find another doctor. A large percentage of cases of neuropathy are idiopathic or the result of other health events. Mine is due to a malfunctioning autonomic nervous system. The right medication has completely taken it away but it took me 4 years to find a doctor (ended up at a cardiologist) who diagnosed me properly. You might want to get a skin punch test to confirm the neuropathy. Hope that helps!

Aug 10, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

I would advise getting the skin punch test. It will tell you if your SFN is length dependent on non-length dependent and give you a greater knowledge about the severity of your SFN. I did the test and mine is non-length dependent. Further pushing and more doctors, I ended up at a cardiologist, where I was diagnosed with dysautonomia (a group of conditions affecting the autonomic nervous system). More specifically, a parasympathetic abnormality and am now on a beta blocker. Guess what? 90% of the pain and the pins/needles are gone. While the genesis of my condition was a very traumatic emergency abdominal surgery in which I nearly died in 2012, the resulting disruption to my ability to absorb vitamins and minerals, along with the obliteration of my microbiome, sent my autonomic system out of control, where it stayed. Anyway I hope this helps you be bold in your journey. It's not easy but sometimes there is an answer! I was not willing to take "idiopathic" or numerous other diagnosis as enough information. After literally dozens of doctors and almost 5 years, I found what I needed to do. Good luck!!!

Jun 25, 2019 · Myofascial Release Therapy (MFR) for treating compression and pain in Neuropathy

Yes. Modifying diet (no sugar, dairy, gluten or processed foods), getting proper sleep, moderate & consistent exercise (assuming no weight issues which are an obvious contributor)….has stopped the progression for me. I have been relentless in finding the root cause, which is critical to a reversal. I’ll also add that I have SFN, which is different the PN in that the small nerves can regenerate. Don’t give up!

Jun 13, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

Totally agree with this and I’ve had the same experience. Eliminating inflammatory foods – totally eliminating, has made a big difference. It takes a lot of discipline. No sugar, gluten, dairy. That also means no wine or store bought juice, processed foods, fast food, etc. it works!

May 1, 2019 · New to this forum, please help me, have SMALL FIBER NEUROPATHY in Neuropathy

Agree. Epidurals are not the answer to SFM. Did that and wasted a year not to mention the risk involved.

Mar 30, 2019 · Have You Made Any Kind of Peace With Having Your Neuropathy? in Neuropathy

I think many of us are in the throes of constantly dealing with chronic pain. You never know when it will get worse, it’s hard to focus on anything else and everyone tells you how great you look. Medications do not work. While I have a ridiculously obvious reason for my neuropathy, it took 4 years to get a doctor to actually listen. In which time the progression of nerve damage was severe and likely irreversible. I too was so full of life and energy. Not now. This is not for the faint of heart. And to think 20+ million Americans have neuropathy. We spend nearly zero dollars researching one of the biggest health issues in this country. Anyway. That’s my ten cents 🙂

PS – I have not given up. And I never will.

Mar 23, 2019 · New to this forum, please help me, have SMALL FIBER NEUROPATHY in Neuropathy

These are hard to know. I have cysts and lesions in and around my lower spine. I have small fiber neuropathy diagnosed via a skin punch test. In my case, I had similar symptoms in different joints. Consider any trauma to your body via viruses, surgery or bacterial issues to see if those may have contributed to your current symptoms. In my case, I had a malabsorption problem from abdominal surgery 7 years ago and the lack of vitamins/minerals that are absorbed in the lower intestines resulted in nerve damage. It took 4.5 years of doctors to get the proper diagnosis. Now that I know the underlying cause, I can address it. I’m getting better. Small fiber nerves can regenerate. It ain’t easy but if you find out the “why” you have a shot at reversing it. The odds are not great and many cases are ideopathic, but I can tell you it can be solved. Best of luck and I hope this helps. Btw, cut out sugar, gluten and dairy. Very inflammatory. PS. The back problem could be it. Welcome to the journey 🙂