Thank you so much, @IndianaScott
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I am very good at being my own advocate. I already called and voiced my concern. I had two doctors, 2 neurologists, and 2 nurses completely miss my myoclonic jerks and hyperreflexia this year (in Michigan). My movement disorder specialist was the first person to recognize them. I am bringing a summary from my movement disorder specialist so hopefully the resident will present that to a movement disorder specialist at Mayo.
I was told a panel of neurologists will review everything, is that true? I’m not trying to be doubtful of a residents skillset, I just know this is a very complex situation.
I have my first appt at Mayo in Rochester in early November. I am going to the Neurology Department. Has anyone visited Neurology? I was told I will see a resident for my initial consultation.
I have had 13 visits to my neurologists office in the last 12 months. I have well over 60 pages of blood tests and spinal fluid tests. I have seen three different types of neurology sub specialists. I am a little (a lot) nervous that the resident won’t be prepared to help me.
I would love to hear about others experiences with this.