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5 days ago · Lung Nodule, D-Dimer elevation and ANA +VE in Autoimmune Diseases

Here is a list of diagnostic criteria for lupus:

butterfly-shaped rash over the cheeks – referred to as malar rash
red rash with raised round or oval patches – known as discoid rash
rash on skin exposed to the sun
Mouth sores: sores in the mouth or nose lasting from a few days to more than a month
Arthritis: tenderness and swelling lasting for a few weeks in two or more joints
Lung or heart inflammation: swelling of the tissue lining the lungs (referred to as pleurisy or pleuritis) or the heart (pericarditis), which can cause chest pain when breathing deeply
Kidney problem: blood or protein in the urine, or tests that suggest poor kidney function
Neurologic problem: seizures, strokes, or psychosis (a mental health problem)
Abnormal blood tests such as:
low blood cell counts: anemia, low white blood cells, or low platelets
positive antinuclear antibodies (ANA) result: antibodies that can cause the body to begin attacking itself that are present in nearly all lupus patients
certain abnormal antibodies: anti-double-strand DNA (called anti-dsDNA), anti-Smith (referred to as anti-Sm), or antiphospholipid antibodies

Other symptoms associated with lupus:

Extreme fatigue (tiredness)
Headaches
Painful or swollen joints
Fever
Anemia (low numbers of red blood cells or hemoglobin, or low total blood volume)
Swelling (edema) in feet, legs, hands, and/or around eyes
Pain in chest on deep breathing (pleurisy)
Butterfly-shaped rash across cheeks and nose
Sun- or light-sensitivity (photosensitivity)
Hair loss
Abnormal blood clotting
Fingers turning white and/or blue when cold (Raynaud’s phenomenon)
Mouth or nose ulcers

What I have personally started doing is taking picture and documenting my symptoms everyday to show my doctor. Lupus is very hard to diagnose do to the varying symptoms that occur with the disease. Not every lupus patient has the same symptoms. I would consult your medical professional, take a list of symptoms and any evidence you may have. 4 out of the 11 diagnostic criteria will alert most doctors to perform more tests and have you go from there.

I hope this helps!

6 days ago · Blood Tests & Diagnosis in Autoimmune Diseases

I apologize about the info on the app. When it reminds me to log the symptoms for the day it pops up as HelloLupus, turns out it is MyLupusTracker. It is an IOS app, I am unsure about if it is available for Android but I can do some more research into apps for you.

6 days ago · Lung Nodule, D-Dimer elevation and ANA +VE in Autoimmune Diseases

That’s great news! Though I’m sure it’s frustrating since it doesn’t give you any further clues as to what the problem is. Do you meet any of the lupus criteria? Usually 3-4(depending on what state you are in and insurance standards) is a pretty good indication it could be lupus. Though I have no heard of a hemothorax being caused by lupus, have you had any infectious disease testing?

Fri, Oct 12 5:08am · Blood Tests & Diagnosis in Autoimmune Diseases

Hello and welcome! I’m so sorry about the way the rheumatologist treated you. It sounds to me lupus might be a good fit with the malar rash you stated above. Unfortunately some doctors believe in labs rather than the person right in front of them. According to multiple site lab work will fluctuate with lupus depending on where in the disease process you are and not ever lupus patient has the same labs or same symptoms. It’s a very frustrating disease all around, especially when being diagnosed is concerned. Please don’t give up! Find a different rheumatologist, my suggestion would be to try and schedule an appointment with Mayo. I have a post titled “Possible Lupus etc” sorry I don’t remember the full title, the brain fog that comes with lupus is a pain. A comment to the post about getting an appointment was really helpful. I document my symptoms using HelloLupus app. I get to document fevers, heart rate problems, and many other problems that often are caused by lupus. I hope this helps you in some way!

Best of Luck!

Nicole

Fri, Oct 12 4:50am · Lung Nodule, D-Dimer elevation and ANA +VE in Autoimmune Diseases

The Lupus Diagnosis Criteria:

Rashes:
butterfly-shaped rash over the cheeks – referred to as malar rash
red rash with raised round or oval patches – known as discoid rash
rash on skin exposed to the sun
Mouth sores: sores in the mouth or nose lasting from a few days to more than a month
Arthritis: tenderness and swelling lasting for a few weeks in two or more joints
Lung or heart inflammation: swelling of the tissue lining the lungs (referred to as pleurisy or pleuritis) or the heart (pericarditis), which can cause chest pain when breathing deeply
Kidney problem: blood or protein in the urine, or tests that suggest poor kidney function
Neurologic problem: seizures, strokes, or psychosis (a mental health problem)
Abnormal blood tests such as:
low blood cell counts: anemia, low white blood cells, or low platelets
positive antinuclear antibodies (ANA) result: antibodies that can cause the body to begin attacking itself that are present in nearly all lupus patients
certain abnormal antibodies: anti-double-strand DNA (called anti-dsDNA), anti-Smith (referred to as anti-Sm), or antiphospholipid antibodies

This was pulled from the American College of Rheumatology website

Fri, Oct 12 4:47am · Lung Nodule, D-Dimer elevation and ANA +VE in Autoimmune Diseases

ANA can become positive in people with infections; viral, bacterial or fungal. However, it’s interesting that you have elevated D-Dimer. In some lupus you can have a positive caridiolipid enzyme that increases your risk of clotting. I see the lab work listed above but have they run Ig antibodies panels separate from ANA as well as run dsDNA/SSM?
I have not heard of nodules in Lupus patients. Do you have any of signs or symptoms other than the positive ANA?

Fri, Oct 12 4:35am · Possible Lupus and Getting An Appointment in Autoimmune Diseases

I’m just afraid I’ll be stuck in the same situation. Closest Mayo Clinic location is an 8 hour drive from where I live. I’ve been seeing internal medicine in my home town, she believes I might have lupus however won’t make a diagnosis based on the fact my lab work as been inconsistent and negative for autoimmune markers, though I was on steroids when the tests were taken. I’m just afraid of having to go back and worth for multiple doctors visits, especially now with the current cardiac involvement that has sent me to the ER twice now.

Fri, Oct 12 4:31am · Possible Lupus and Getting An Appointment in Autoimmune Diseases

I believe I would be able to get a referral. Today I called and spoke with someone who told me to send records to them regarding this condition and would either be approved an appointment or denied one, this would be the case even with a referral.