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Sat, Mar 16 5:11pm · Collagenous Gastritis in Digestive Health

Hi Mindi, his symptoms are really mild. No gastric pain at all. We were only able to reach his diagnosis after a gastroscopy. His symptoms were just anaemia related which is now under control. I'm really hesitant to treat him with all these drugs when he is currently symptom free. My fear is that he may get worse though, if we don't try something. Its a real challenge to know what is the right thing to do.

Mon, Mar 11 4:27pm · Collagenous Gastritis in Digestive Health

Hi Mindi, my son has been prescribed Budesonide and he hasn't started taking it yet as I was concerned about what the side effects would be. What has been your experience with Budesonide?

Oct 9, 2018 · Collagenous Gastritis in Digestive Health

Thank you for sharing your stories. My 14 year old son was recently diagnosed with Collagenous Gastritis and we are currently fielding our way through a lot of information with not very much clarity on how to treat. Fortunately my son does not have severe symptoms except for ongoing illness due to iron deficiency. Since having an iron infusion, we have started a gluten free, dairy free diet but have had little support from our gastroenterologist in terms of dietary recommendations or management plan beyond proton inhibitors. I am keen to hear of any other suggestions and possible outcomes from anyone.