Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (17)

Sep 20, 2019 · Fatigue and cancer treatment in Cancer: Managing Symptoms

I would say that “feeling lazy” is a very accurate description for myself as well. I do seem to do better when I get out of the house and away from the comforts of home. I tend to feel like I need a lap the middle of the day as well as feeling the need to head to bed early at night.

Aug 26, 2019 · Adrenal Cancer. in Cancer

@alanbruce Hi Alan! I am sorry, but I don’t have any experience with either of these treatments. I will be following to learn more, however.

Jul 16, 2019 · Adrenal Cancer. in Cancer

Hope all is well. How has the Y90 been working?

Jul 16, 2019 · Adrenal Cancer. in Cancer

Hi Alan! I had six weeks of Proton therapy following surgery in my abdomen area. This process went very well for me, however, after it was finished a scan showed new growth in my lungs. I then started Mitotane for a time. After two scans showing continued growth, I got a second opinion. I then started a rigorous course of chemo for 6 mo. I have had good luck with this as some spots disappeared and some had shrunk considerably. Now that I’m done with that I will be starting a chemo pill called Levatinib. The hope is that this will hold what’s left at bay.

Jul 13, 2019 · Adrenal Cancer. in Cancer

I was just re-reading some of these posts. I was wondering how the Keytruda treatments have been working out? Just finished 6 rounds of chemo myself and am scheduled to start a pill soon. The chemo did shrink and take care of a lot, but not all.

Mar 12, 2019 · Adrenal Cancer. in Cancer

@anderson2742 Hi Aaron! Let’s keep in touch!! I’m very interested in your treatment!! Praying that it’s successful for you and could possibly be a road for many of us searching for the answer as well! Julie

Mar 12, 2019 · Adrenal Cancer. in Cancer

@anderson2742 Hi Aaron! Thanks for sharing! Also was in Mitotane. While I tolerated it well, it didn’t seem to stop growth for me either. I got a second opinion from the Rochester campus and the doctor I saw had had some success with chemo. I decided to stop Mitotane and try this. Starting Round 3 today with a scan in about 4 weeks. Praying this shows some success!

Mine has spread to lungs and now liver as well. Have you had luck with the keytruda or is it too soon to tell at this point?

Jan 13, 2019 · Adrenal Cancer. in Cancer

@colleenyoung Hi Colleen! I actually started taking it after surgery and radiation. After two scans showing the metastasized spots on my lungs growing a little, I got a second opinion at the Rochester campus. We reviewed all the options and decided to be aggressive and try chemo. It’s still only 30-50% chance of working, but I thought I needed to pull out all the stops and try.

It’s scary and now that it’s only a couple of says away, I am really nervous and hoping I made the right choice!

Anyone else facing this dilemma?