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Dec 2, 2018 · I have very difficult muscle twitches on imbruvica. Any advice? in Blood Cancers & Disorders

Anyone have experience of switching from imbruvica to calquence?

Nov 30, 2018 · I have very difficult muscle twitches on imbruvica. Any advice? in Blood Cancers & Disorders

Yes, Calquence is suggested next (It should have been first). However, I am now leery of that too. I think I will do immunotherapy if I don't have the 17 deletion.

Nov 30, 2018 · I have very difficult muscle twitches on imbruvica. Any advice? in Blood Cancers & Disorders

After a 1 1/2 weeks on ibrutinib I started feel twitche in my muscles and heart. After 3 weeks I ended up in the ICU to stabilize my heart. Both an echocardiogram and ct scan showed my heart is in good shape and would hot have causes this. I am even afraid to switch to calquence after this. I might do immumotherapy.

Nov 27, 2018 · I have very difficult muscle twitches on imbruvica. Any advice? in Blood Cancers & Disorders

Oddly, it is my only side effect but is an almost intolerable one. Have I joined just by answering this? He is supposed to call me later today to discuss options.

Nov 26, 2018 · I have very difficult muscle twitches on imbruvica. Any advice? in Blood Cancers & Disorders

I've been on Imbruvica for 22 days. All was going well until I developed muscle twitches (fasciculations not cramps). They have kept me up the past two nights. If I cannot improve this situation I will have to quit the medicine. Has anyone else had this? If so, did it get better eventually?

Thanks,

Rich

Oct 9, 2018 · CLL treatment that concentrates in shrinking the spleen without undergoing chemo in Blood Cancers & Disorders

Thanks again for the reply. Do you know the exact name of what you took? Best, Rich

Oct 8, 2018 · CLL treatment that concentrates in shrinking the spleen without undergoing chemo in Blood Cancers & Disorders

Also, could you tell me why you chose immunotherapy over targeted therapy? I am battling between the two based on all my research. I am seeing the hematologist Wednesday. Thanks, Rich

Oct 8, 2018 · CLL treatment that concentrates in shrinking the spleen without undergoing chemo in Blood Cancers & Disorders

I will see Hematologist Wed and then post my whole story.