Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (10)

Thu, Feb 7 6:23pm · Dialated Cardiomyopathy with decreased EF rate in Heart & Blood Health

@hopeful33250 Yes, it is great news for us. I’m always thankful for everyday, but this type of scare makes you even more grateful! (If thats possible!) lol. My foot healed very well overall, but needs to be “tweaked” again to make it right. Means another 6 weeks or so in a boot and then re-healing again. Not sure now when I’ll do that. It hurts to walk… but, I wear Tommie Copper compressions on feet and Oofa shoes so my walking is pretty pain free… these two items made a huge difference…when there’s a will there’s a way!!!

Thu, Feb 7 5:29pm · Dialated Cardiomyopathy with decreased EF rate in Heart & Blood Health

@hopeful33250 I got my results from muga scan and got very positive news!! My EF is at 47% so nothing to be done at this time. We are very relieved. I’m continuing walking everyday…I believe it helped me. I’ve been chair bound for a bit due to foot surgery, but finally able to walk some. Not stopping!!! Very happy!!!!

Thu, Feb 7 8:11am · Dialated Cardiomyopathy with decreased EF rate in Heart & Blood Health

@hopeful33250 hi thanks so much for asking. I got the scan 30 Jan and actually go for the results later this morning. I’ve been walking daily and hoping that may be helping some. I feel fine so far and did not receive a call from dr. during my wait for results to today so that’s a good sign. I plan to post later…hopefully with positive news. Thanks again!!

Sun, Jan 20 5:31pm · Dialated Cardiomyopathy with decreased EF rate in Heart & Blood Health

@colleenyoung I did see that video by Dr Timimi, but not quite sure it pertains to my situation. I’m going to rewatch it…

Sun, Jan 20 5:29pm · Dialated Cardiomyopathy with decreased EF rate in Heart & Blood Health

30 Jan is my Muga scan. Anxious to see what it shows, but I am expecting a defibrillator to b needed w/ my pacemaker. Praying that works if needed because the next step is very scary.

Sun, Jan 20 12:30pm · Dialated Cardiomyopathy with decreased EF rate in Heart & Blood Health

Appears to be 35%. Muga scan should help define that

Sun, Jan 20 7:07am · Dialated Cardiomyopathy with decreased EF rate in Heart & Blood Health

I had mitrol valve replacement in 2014. I was recently diagnosed with dialated cardiomyopathy. I’m getting a muga scan end of Jan 2019 to get a better read on my EF rate cause it’s right on the cusp of heart failure. I’m trying to find more info on this diagnosis. Supposedly, life span has increased from 2 to 5 years to possibly 7 or more years. I have a pacemaker but expect to get a defibrillator put in to help avoid possible sudden death. The muga scan will determine my need for this. Any one have any current information on this diagnosis.