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Bone, joint, and muscle disorders, Caregivers, Chronic pain, Healthy Living, Neurology (brain and nervous system), Other


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Posts (11)

Tue, Feb 5 12:23am · Parkinson's and Freezing in Parkinson's Disease

Teresa, He was diagnosed March 2018. The doctors should have taken me serious when I told them what was happening. At least I have him going to VA,…. They are Fantastic! They know so much more than the doctors we had gone to for a lot of years. I am watching and learning every day. My goal is to have him at Mayo Clinic, Scottsdale. I take e3ach day as it comes.
I am Bio-polar and have gone to Riverside Cty. Mental Health for many many years. They now see me every 1-2 weeks. (instead of months) They are so wonderful in making sure,@ that I take "CARE of MYSELF". They've never steered me wrong in all my years.

Mon, Feb 4 1:10pm · Lewy Body Dementia with Parkinson in Caregivers

Thank you Teresa, I think at this time I need to learn more about his Parkinsons. His movement is my big concern at this time. I have been taking him to the VA clinic at this time. They seem to know so much more than the local doctors. The medication he is taking now has seemed to be helping with his Tremors and Twitching. My biggest concern, at this time, is his movement walking. It's so difficult standing and walking. Funny thing is,,, he does more for himself when I'm not around the house.
I always leave Healthy Meals and lots of food in the Refrig! That way I know, when he's hungry he gets up and EATS!
I have recently been taking him to the PT facility.

Mon, Feb 4 12:38pm · Parkinson's and Freezing in Parkinson's Disease

He chooses to sit all day & night watching TV. I can't allow myself to stay with him in the same room. I have my "Craft room" where I spend most of my time. I keep very busy by myself. I am very artistic and also spend my time on the computer. I need to do those things that give me pleasure. I do get out and see my friends. This way I get to recharge myself and come home with a better attitude.

Mon, Feb 4 12:31pm · Parkinson's and Freezing in Parkinson's Disease

I'm a caregiver to my husband who have Parkinsons with Lewy Body disease. he Freezes when ever he starts to walk. He takes tiny baby-steps to walk.

Dec 23, 2018 · How long does it take to get accepted to Scottsdale location? in Visiting Mayo Clinic

Lewy Body Dementia-Parkinsons, my husband is spiraling downhill faster than I thought the disease would allow a normal life….

Oct 6, 2018 · Caregiver for spouse with MCI (Mild cognitive impairment) in Caregivers

Feeling Blessed and Greatful! We got married for our grandchild. They were so excited to see Granny marry Semaja!

Oct 6, 2018 · Caregiver for spouse with MCI (Mild cognitive impairment) in Caregivers

I have learned many new things in being a Caregiver to my husband, "Semaja" James Bruce. Sometimes I feel Resentment since we just married 5 years ago. I am 70's old and he is 77 yrs.. I met my husband 10 years ago. I actually thought I would live my senior years alone. When we met I felt this was a G-D sent. I never thought I would be in this situation as his Caregiver, at such a young age of 70.
I keep prayers of Patience and Understanding. I don't fight because I don't want to make him wrong. I just stay positive attitude, as much as possible.

Oct 4, 2018 · Lewy Body Dementia with Parkinson in Caregivers

Can Mayo Clinic give us more assistance than the doctors here, in the Palm Springs area? The information about this disease of Lewy Body has to better & more experienced than what he receives at Desert Oasis Medical. He was diagnosed March 2018.
My husband, "Semaja" has been spiraling downward with his movements and walking. He's in pain as soon as he stands-up and tries to move his legs/feet.
No one has mentioned or discussed his fall in 1991…. might have led to this disease.
It's only recently that one hears about this disease. People didn't discuss @Robin Williams death was a combination of Lewy Bodies and Parkinson. Now, @ted Turner announced that he has them, also.