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Oct 2, 2018 · Catamenial Epilepsy and Progesterone Therapy in Epilepsy & Seizures

Hi there,

I was diagnosed with TLE back in May 2018 and have been on Lamictal 100mg/2x daily since then. My seizures have always been focal aware–basically just deja vu or a brain "scramble" building to a surge of tingles/adrenaline–the whole thing lasting about 20 seconds. The Lamictal has reduced the frequency (I used to get them after having alcohol but that has stopped.) However, I still get them every 14 days, immediately preceding ovulation and menstruation. This leads me to believe I have catamenial epilepsy.

I got on birth control (Junel) to suppress my period but this had no effect, possibly because it had estradiol in it? My question is this–would it be beneficial to get on progesterone-only birth control to control these refractory seizures, and if so, would this lower the effectiveness of Lamictal? I know there is a correlation between Lamictal and birth control, the latter reducing the effectiveness of the former. Just trying to find out of progesterone has helped people with the same issue/meds that I have.

Also, does anyone know of a good neuroendocrinologist specializing in catamenial epilepsy? Thanks!