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Fri, Oct 11 6:17pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hi Colleen, I was diagnosed Ovarian cancer in 2016 and developed neuropathy early on during chemotherapy. Unlike most people, mine did not go away. I also have Hypothyroid, Celiacs, Osteoarthritis and Raynaud's. Because of the Raynaud’s, it was confusing at first; my symptoms weren’t completely the same as before. My feet are super numb, and they feel like I have something thick stuck to the bottom of them. On the upside, the burning and tingling from Raynaud’s is significantly reduced…which means I need to be even more careful about heat and cold. My shins and knees also hurt. My hands are now extremely sensitive, painful as heck and I lost a great deal of my dexterity and strength in them. I was a legal secretary; so, needless to say, the career came to an end. I used to be a musician, artists, seamstress, did extremely delicate embroidery work, smocking and loved gardening. I now try to find other creative outlets that require less dexterity or trauma to my hands.

Last year (2 years later) I went through radiation for breast cancer (I’m BRCA negative, go figure!) and shortly after completing treatment I thought I was having a major flare: Nope, i was diagnosed with fibromyalgia. They changed the AI I was on which helped a bit. I was already on gabapentin so they increased the dose to 2400mg. They also increased Cymbalta to 90 mg, increased the muscle relaxant and added an anti-inflammatory. They also increased the amount of Xanax I take on top of my regular meds. I think it helps the spasms in my hands.

To be honest I am not sure how much all the medication helps. I am still in a lot of pain. Movement helps more than anything. I try to keep moving by doing restorative yoga, or Qi Gong, TaiChi, walking, bicycling, swimming and lake kayaking. I also developed lymphedema which comes with its own set of issues, and does limit some of my activities. It doesn’t help that my immune system hasn’t recovered and I get everything that goes around.

I am stubborn, which I think is a good thing when you have any ONE of these diseases. If something doesn’t work one way, find a work around. Larger handled hair brushes, a stand to hold the hairdryer, gloves that help to hang on to things (I.e. my kayak paddle), shoes that slip on or have Velcro (yes it’s a bit embarrassing sometimes). My sweet husband paints my toenails for me and got me a robotic vacuum. I avoid small buttons, zipper pulls and snaps in favor of larger ones.

I have good and bad days, some days pain wins. Given my diseases, I am blessed to have more time. More time with family and friends.

I am also very blessed to live in Colorado. Four season, each with fun outside activities and the bluest skies ever. And, cbd is legal here. So, when a friend suggested I try It I thought, “why not”. After speaking with my doctor, I did a bunch of research, recruited a friend (five in fact) to go with me, and gave it a try. Finding the right product/blend is tricky but it helps. And it gives me more good days!

Wishing everyone MORE GOOD DAYS!!

#cancersucks #painsucks #moregooddays #todayibeatpain

Oct 9, 2018 · I have ovarian cancer in Gynecologic Cancers

Hi Susu2, I was diagnosed with stage 1 ovarian cancer in March of 2015. I was so excited to hit my 2 years NED in July, but was diagnosed with stage 2 breast cancer in August. And, I am BRCA negative. I had lumpectomy, getting ready for radiology and have started an aromatase inhibitor. ER/PR pos, HER neg. Worried about effect of more drugs. I have severe neuropathy from the chemo for the Ovarian cancer and on way too many meds for that. The fatigue, memory loss, and anxiety are at times overwhelming. Trying to balance pain management with fatigue mgmt is a problm…it changes day to day. I am 61, I am frustrated that I can no longer do what I used to, and no one, especially not my family members understand my limitations. They expect me to do all the things I used to do. Until now my OC number have been very good, I have my next follow up in November.

ChowMama

Oct 1, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hi, I was taking 2400 mg of Gabapentin and still had pain. I am now taking Duloxetin and have been able to reduce the Gabapentin some. The first two weeks of the Duloxetin were horrible, but once I adjusted its been a good choice. I get frustrated that I can't do some of the things I used to, but I refuse to give up! I wish you the best.

Sep 27, 2018 · I have ovarian cancer in Gynecologic Cancers

Brca neg. two year NED ovarian cancer survivor just diagnosed with stage two breast cancer. I have severe neuropathy following chemo which may be worse due to my autoimmune diseases. Is there anyone in a similar situation who can give advise me on expectations with Aromatase inhibitors?