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Posts (23)

Fri, Sep 18 5:39pm · Falling out of bed in a memory care facility in Caregivers: Dementia

Oh man. No one uses common sense anymore. A puffy things that looks similar to a pillow to be called "restraint"? Hard to believe. And YES!! I'm remembering that when family started putting in motion detection in their loved one's rooms, you should have heard the 'ding dings' at their attendant's station! Something like that may help and at least get someone to go in and look. You can buy pads for the floor that set off an audible signal if they put their feet down. Maybe that would help? It's not an easy problem. Let us all know what the director says!! Virginia

Fri, Sep 18 1:06pm · Falling out of bed in a memory care facility in Caregivers: Dementia

Hi FWW. My name is Virginia Naeve and I try to be helpful on these kinds of issues when I can. I remember when my mom, who suffered from Alzheimer's, was in a memory care and she fell out of bed and broke her arm. I was horrified and very sad. The facility told me that it wasn't legal in the state of California to have guard rails on her bed. I thought that was ridiculous. While we had the problem, we put soft blankets on the floor beside her bed and made sure the other side of the bed was against the wall. Eventually, she stopped falling out of bed.

I just saw something on line that I thought you might want to look in to. Look up Rehabmart.com. Search for Posey Patient Safety Roll Guard. It's a soft, pillow roll for the sides of the bed. I thought you could ask your mom's facility if they would allow that. Tell them that it's better than her breaking her arm! Good luck and tell us what they say! Virginia Naeve, http://www.anewpathformom.com.

Fri, Jul 31 2:30pm · Dementia might run in my family: Can I get tested? in Caregivers: Dementia

I'm with Becky. And no, you are not doomed. You can get a genetic test to see if you have one or two APOE 4 gene alleles. If you have one, your chances for Alzheimer's disease is increased. If you have two, that increases your chances substantially. I have a friend who 'accidentally' found out she had two and she went in to a severe depression for two years. She's fine now. If you have the allele, it's not a death sentence. In any case, exercise, eat good, healthy food and have a positive attitude! 🙂

Mon, Jul 27 6:50pm · Caregiver for spouse with MCI (Mild cognitive impairment) in Caregivers: Dementia

Hello. I am so sorry to read this and it brings back a lot of memories for me. When my mom got MCI, I didn't know the first thing about that or Alzheimer's and there really wasn't much information out there. Now there is a lot and my advice is to start learning all you can. Pace yourself and give yourself breaks. I have lots of good information on my website called A New Path for Mom. I have videos, articles and blogs. Go to the very beginning of my blogs and read how confused I was! You will need help and advice, and a lot of time to do things just for you. This Mayo Clinic Connect is a good place for support and I'm glad you found it! Take care, Virginia (www.anewpathformom.com)

Mon, Jul 6 5:26pm · Dementia: Dealing with husband's hallucinations and fatigue in Caregivers: Dementia

Did anyone tell you that Lewy Body Dementia can most definitely be a part of Parkinson's disease? Also, I'm cringing at the sentence Neurologist thinks it "age related dementia". Unbelievable. Good heavens!

Fri, Jul 3 6:43pm · Dementia: Dealing with husband's hallucinations and fatigue in Caregivers: Dementia

I agree with Becky@becsbuddy and also Ellen@helenfrances. I am not a medical doctor and cannot give you medical advice, but I just attended a seminar on Lewy Body Dementia. (LBD). With this kind of dementia, 80% of the patients with it have hallucinations. Not auditory, but they actually see people, animals and children that are not there. They often have Sleep Behavior Disorder (SBD) and can violently act out their dreams in their sleep. The speakers stressed that antipsychotic drugs are NOT good and can really cause a lot of problems in people with LBD. Neurologists sometime prescribe them so that the patient will get better sleep, but they repeated several times that antipsychotic drugs are to be avoided. They can really make people very sleepy which can allow them to fall, etc. They can cause a movement disorder. See the page from the Mayo Clinic on this subject. Google Mayoclinic.org and search Haloperidol. I am sorry you are facing these difficulties. My best to you. Virginia Naeve (www.anewpathformom.com)

Sun, Apr 19 2:18pm · How to compassionately answer questions about deceased loved ones. in Caregivers: Dementia

Hello Pattyinal. As I read this, I am reminded of how many times my dear Mom asked the same type of questions. It took me years to take the advice of a friend of mine who said, "you must join her world". For years I didn't buy in to that. How the heck was I supposed to tell Mom how her FIRST husband was, when she only had one husband?? I would remind her she had 50 years of ONE wonderful marriage with daddy, and she would vehemently disagree with me. Uggg! Then she would look at a picture of daddy (my dad, her husband of 50 years) and call him her father? I just couldn't believe it! Anyway, please take my advice and Join His World. When he is home and says he wants to go home, you tell him sweetly that in a few minutes, after you finish the dishes, you can help him pack. When he says "where is my wife?" you say, "Let me go look for her! I'll bet she's really pretty!!!" It helps to redirect their thoughts. It calms them down. It will feel horrible for you at first, but it is the kindest thing you can do. Give yourself a pat on the back every time you have to say a little fib, even though it feels really wrong. Keep me posted! Thoughts and prayers, Virginia

Wed, Apr 1 6:53pm · All brain scans good: Could my husband still have dementia? in Caregivers: Dementia

Hi there. I am not a doctor. I was a caregiver for my mom who had alzheimer's disease for 8, almost 9 years. I have kept up with the research being done and I write blogs on my experience with her caregiving. I will say this. Did anyone say anything about loss of brain volume? Any areas of his brain that appear to be smaller or shrinking? That is a key issue in diagnosing AD, among many other things such as behavior, loss of short term memory, trouble with finding words, unusual behavior. I have some good information on my website called A New Path for Mom (www.anewpathformom.com). Look under the tab Alzheimer's Disease and also Videos/Resources. I wish you the best. Love, Virginia