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Posts (9)

Sat, Mar 14 10:03am · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Hi @acoylenp01, my husband had an ischemic stroke in the cerebellum 1.5years ago. He was 52 and seemingly healthy. Overnight it all changed, and I know how it feels!

It does get better. He was very down and angry for many months after the stroke. It was a turbulent time to weather through! But he was also determined to improve his condition, so he changed his eating habits, did more physical activity and challenged himself each day to retrain his brain. His ataxia is now completely gone, he cycles to and from work, swims and runs regularly. His calm, laid-back temperament is also back. The only issue remaining I would say is the insomnia… he continues to suffer from poor sleep. But he's come so far and I'm sure that little by little, it will also get better for you.

Sending you a big hug.

Apr 1, 2019 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Hi @kkglasman , I joined this group last year after my husband had a posterior inferior cerebellar infarct with pretty much the same symptoms as you. He was also 51. I thought he'd eaten something wrong the evening before! Good on your wife for recognising the signs, since they aren't the typical ones for stroke. My husband couldn't walk for a few days but recovered quickly in the hospital. As far as I know they only gave him aspirin and some statins. Despite extensive testing, same as in your case they did not discover the cause. They put a cardiac monitor for a day, discovered I think some leakage in his heart valves. But the cardiologist said it wasn't a concern, and I don't know whether to get a second opinion. We suspect he also suffered two transient ischemic attacks a couple of years prior, during which he experienced sudden but fleeting split vision. These episodes only lasted a minute or so each and he thought he was having vision issues but the opthamalogist just dismissed them as his sight tests turned out ok.

Jan 13, 2019 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

My husband, in his early 50's, had his stroke in September. I remember also being extremely fearful of a reoccurance.

I had also posted here asking how other survivors have lived or changes they have made since then, to prevent another stroke from happening. My husband has changed his diet and now works out more often.

He was told that the risk of a reoccurance is highest in the first month after the stroke, and then still elevated for the first year after. So we are still in the high risk zone.
i understand your fear, and it's normal to be scared. It's also common to feel depressed after a stroke. You came so close to death, after all.

For us it was a huge wake up call. I'm relieved every morning to know that my husband is alive and well. Every day with him is a precious gift, that came so close to have been taken away from me on the night of his stroke. He's made some other changes to his life as well, like spending more time with our child and being more assertive about what he wants. It's like we recognise that tomorrow isn't guaranteed and so we live more fully in the present.

A level of anxiety remains, of course, and I have started seeing a therapist myself for stress disorder. My husband himself is more or less back to work, back to normal. Cause of stroke is still unknown. I researched about strokes and read stories from survivors. There are good, evidence-based tips for preventing strokes out there.

The tests you have to undergo are unpleasant but should help to find the cause of the stroke. I empathise! I find waking up and counting my blessings, as well as going to bed with a grateful heart helps a lot.

Nov 18, 2018 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

@barbarajean100 sorry to hear that you experienced another stroke. Was it also in the cerebellum?

I posted a couple of months ago because my husband suffered a PICA stroke. We are very lucky that it did not affect him much physically. The mental effects are there- and he's going to be seeing a neuropsychologist.

I'd like to ask if any of you made lifestyle changes after your stroke, and if you noticed the differences in your well-being. We want very much to avoid a reoccurence here!

Oct 16, 2018 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

dear @midnightsun18, how are you holding up? From what you wrote, I am pretty sure your spouse understands most if not all of what you are communicating. His ability to respond is however limited at this time. I think the thing that helped me cope with the situation was to read up about strokes, and stroke survivor stories. It helped me better understand what my husband could be going through, and what I needed to prepare myself for. It was also encouraging to read about how survivors rebuilt their lives after their stroke.
Additionally, it helped to understand how the damage in that particular part(s) of his brain affected him. The infarct in his left posterior cerebellum had led to ataxia on his right side.
It also helped when I spoke to his doctors to find out how he was going to be treated (what scans and for what reasons, what rehab etc), so I felt less lost.
How is your spouse doing at this time?
There are many of us going through the same thing. You are not alone x

Sep 30, 2018 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

So right, @colleenyoung . I am grateful that he's making such a quick recovery. One big side effect of the stroke is that he's been having insomnia for the last 3 nights. For someone who depends heavily on a good night's rest to function well the day after, it's been devastating for him. After 2 nights of not being able to sleep, he asked for some sleep aids. After a Valerian tablet, which didn't work, he took a proper sleeping pill, which didn't help either. Not quite sure what to do about this.

Sep 29, 2018 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Day 4: Husband is recovering very quickly. The clot is indeed gone, on its own. All he has taken so far are aspirin, something for nausea and another tablet for high cholesterol. His cholesterol was in the high end of the normal range.
During one of the occupational therapists visits, he was asked to close his eyes and walk straight, on the spot. When finished he saw that he had veered 45 degrees to the right, without realising it at all.
He is now walking on his own without any difficulty. Gait and speed are back to normal. He says he does feel some shakiness while moving, but actively compensates for it.
He is thinking positively and wants to go back to work already.
We were informed he would be able to leave the hospital in another couple of days. We are also waiting to see what his rehab will entail.

Sep 28, 2018 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

@colleenyoung So this is now day 3. We saw remarkable progress yesterday (day 2)- he was walking a little on his own, to the bathroom and back; he could sit up without feeling nauseous; he had regained some appetite and kept his food down.
A Transesophageal Echocardiogram was done but they didn't find anything. Another MRI: a nurse told my husband that his clot was gone but we'll have to confirm that with his doctor. I'm not sure if the ergotherapist visited him again, I'll have to check later.
We had hopes he could leave the hospital tomorrow but he was told he would have to stay for another 3 days.
Yesterday he was also told by his father that the exact symptoms had presented themselves when his dad was 55. Then, he went only to the physician and was diagnosed with a balance disorder. He was given some medicine for the condition (I'm not sure exactly what) and recovered quickly after. Now it looks like it could have been an undiagnosed stroke. It has not since reoccured and he is now 75.