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4 days ago · Am I really ready for this in Hypertrophic Cardiomyopathy (HCM)

I am wondering the same thing. Am I really ready for this. My myectomy is scheduled for 2 weeks from today, on June 3. I know I am getting cold feet the closer it gets. Days I feel fairly well other days I can only lay on the couch. Good Luck to you! I beleive you will be in good hands at Mayo.

Fri, Apr 12 4:06pm · Devoted grandma contends with chronic pain: Meet @grandmar in About Connect: Who, What & Why

@grandmar so enjoyed reading your spotlight!!! I cried reading it. And you are so correct that it is much easier opening up to people you don't know.. I have a great family, very supportive and love them dearly. But I know there is a lot they don't understand and it's hard for them to relate. Sometimes I think they think that they understand,. but just to give one example. I started out having a bad day and said to my boyfriend this morning, I am having a very hard time breathing today. He immediately said " I know! Me too! I walked in the barn and it was all closed up and stuffie ! I know he means well and I love him but!! Connecting with people who really understand what your going through is a gift. God bless you and this web site🙂🙂🙂

Tue, Apr 9 10:17am · Afib, PVC and Hypertrophic Cardiomyopathy in Heart Rhythm Conditions

Thanks for your feedback. I had a pacemaker defibrillator put in two years ago and I take Verapamil 180 mg, sometimes I get 100’s a day cause I can definitely feel them. Nothing that I can pinpoint as a trigger. Just was wondering if anyone else had them with HCM and will I get any relief from them after my mastectomy.

Tue, Apr 9 10:17am · Afib, PVC and Hypertrophic Cardiomyopathy in Heart Rhythm Conditions

I am scheduled to have a septal myectomy with Dr Shaff on 5/30/19. I am just curious if anyone else experiences PVC . Is that common is that not common. Some days I feel just fine like Im on top of the world then it feels like something just hits me and I feel terrible and out of breath and get many pvc's. Sometimes have a hard time just walking without getting winded. then there will be days I feel fine. does anyone else experience anything like this?

Wed, Mar 6 11:37am · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Thank you rrowner2. That makes sense! I will just continue to wait.

Wed, Mar 6 11:37am · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Was just wondering how long it takes Mayo Clinic to get back to you to set appointment after my doctor forwarded all my info to them. It will be 2 weeks tomorrow.

Tue, Jan 22 7:08pm · MEDS FOR HCM - DOSAGE in Hypertrophic Cardiomyopathy (HCM)

Hello. I am fairly new here. Was just wondering if anyone takes verapamil and Labetalol for this condition. I have insomnia and terrible nightmares when I do sleep. Is this normal

Nov 28, 2018 · Gratitude Discussion Group in Just Want to Talk

I am so grateful for the air I breath and the ability to look across the road and watch my cows just graze in the field.