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Posts (11)

Mon, Nov 11 9:17am · Nissen fundoplication success in Digestive Health

I associate with every single one of you. I had the Nissen in 2013 AND 2 years later the Toupet fundoplication. 195 lbs. then, 105 lbs. now. I have violent dumping syndrome issues STILL. I fear getting the stomach flu… as I cannot throw up. Will I drown? The wretching during dumping is horrid… the pain makes you moan and hollar out with the pain that runs from under your ribs to your pelvic bone. Once its out of me, I am fine again. Sometimes it IS that one more bite that does it… sometimes its only just a half cup of food. I have dyphagia, 5 nodules on thyroid that they have told me not to worry about. Plus I am filled with adhesions. I have limited movement due to the pulling. Lots of positional pain, stinging. Previous adhesions were attached to my ribs and bottom of my heart. I am pretty sure the adhesions are back. I lost my gall bladder way before the Nissen, plus in 2000 I had a 5 lb messenteric abdonimal cyst removed and Marlex mesh implanted for incisional hernias. I have had 6 abdominal surgeries. Dont trust any of the doctors anymore. The fix is temporary. I am so skinny and weak, have lost all muscle mass. I am a saggy (excess skin) bag of bones. Have been accused of being a meth head or anorexic. I hate what has been done to me. Please get second opinions… or thirds!! Nissen and toupet fundoplications fail more than succeed. I am forced now to just live with it. I quit my lifelong job to recover, lost my health insurance before I knew I actually wasnt fixed. I feel cheated and stupid. My first nissen surgeon was a general surgeon, the second was a weight loss surgeon. PLEASE go to a gastric specialist!! Now I just try to survive by barely eating… to try and maintain this weight and avoid dumping. Its not healthy, I don't recommend it. I hate this! I am a 58 year old female. I am sorry this has happened to us… but it helps to know I am not alone. Thanks for sharing your stories.

Fri, Nov 1 9:22am · Failed nissen...options? in Digestive Health

So sorry to hear this about a 6 year old!! I had a nissen in 2013… it was too tight and broke down. Then had a toupet fundoplication in 2015… which is a partial wrap. That didnt work either. Still suffering! Can't eat. Can't throw up. Full of adhesions. Positional pains. Can't gain weight back. Was 140 at surgery, now 105. (195 when I first started getting ill in 2009.) I REGRET both surgeries!! Please get all info you possibly can before having ANY other procedure. My next option is Mayo, but the damage is already done and I don't see life improving much… I am 58.

Wed, Aug 21 9:43am · Anyone else had a Nissen slip? (it's been 7 years) in Digestive Health

OMG… I read your response to btowngal… and seriously I thought I had written it. Your words are my words, too. Marlex mesh implanted in 2000… since then my gut has been compromised. Did not make the connection to the mesh. Nissen fundoplication in 2013 by a general surgeon who "snugged it up real tight"… discovered I was packed with adhesions, causing my stomach to be pulled into my chest… 2 extra hours each surgery cutting them away to get to my stomach and esophagus. Constant pain, esophageal dysphagia, 5 thyroid nodules, losing weight like mad. 2013 food issues, unintentional weight loss… malaise & fatigue… used to weight 190 to 210… down to 150. Then in 2015 slipped Nissen… another surgery to do a Toupet Fundoplication… more adhesions pulling, tugging… attached to bottom of my heart and back of ribcage. Followed by yet another mesh implant a month later, due to an umbilical stitch that broke down. 127 lbs at start of that treatment. This surgery was promised to fix it all and i would feel good again. WRONG!! Everything was so much worse after that… can't eat, can't function… quit my job of 36 years to recover, lost my health insurance, surgeon left town in middle of night… Been on my own since and everything has gotten worse. I now weigh 105 and that's where your words are mine. FEAR OF FOOD EVERY.SINGLE.DAY. even the smallest meals make me sick. I am wasting away. No muscle mass, no fat reserves, no doctors. I have inner pain and positional pains… cant have any pressure there, lay on right side, bend over, etc without extreme pain… not to mention eating issues. I miss eating and enjoying a meal instead of being afraid. And yes… if I dont eat… that heart attack/passing out feeling. Had passed out 2 times, hit my face on the floor, head trauma.
Hospital turned me down for financial aid. Now trying to get disability or Medicaid… SOMETHING! Trying to be part of the mesh lawsuit, but hospital has destroyed some important records.
Now I have emphysema, too.
I trust NO ONE in the medical field now. Am scared if I go to Mayo that it will get even worse. Just lost in this illness and cant find a way out.

Tue, Feb 26 3:30pm · Contemplating NOT having suggested gallbladder surgery! in Digestive Health

I had mine removed laparoscopically about 20 years ago. Had been misdiagnosed for a year. It was on the edge of being gangrene. Felt immediately better, recovery was quick. Have never regretted it.

Dec 2, 2018 · Esophageal motility disorder - don’t know what to eat in Digestive Health

I feel your pain. I, too, have a swallowing disorder, though they don't know why. I have Laryngospasms and benign multinodule (5) goiter on my thyroid. Lost my gall bladder years ago. Have mesh implants from 5 lb. Messenteric abdominal cyst removal and ventral hernia that followed and have had a nissen fundoplication and a toupet fundoplication… which is to connect my esphogus and my stomach. Last surgeries at the end of 2016. Now deal with worse dysphagia, dumping syndrome and positonal pains. Now have intestines pushing up into chest area.
For the 3 years I have been on a semi solid diet. Mostly the things you mentioned… Nilla wafers dissolve in your mouth and are easy to swallow. Also just found liquid greens… veggies. Not too bad. But sometimes I choke on air… so food isn't always the enemy. I, too, struggle to find some more items to eat again, but slowly realizing I may be stuck with what I have found. Swallowing pizza is impossible. I have lost around 97 lbs. and am in need of more nourishment but protein drinks make me ill, too. It sucks. I hate my food life. I hurt all over. Being skinny is NOT fun. It hurts. I walk through the grocery store like a zombie… no, no, no… I cant swallow that or digest that. BUT… There is a new product I tried… though it tastes not great, yucky actually, but you might like it… it is good for you totally. It's called Huel. A powder. Nutritionally complete food. 500 calories per cup. Jazz it up and drink it or use powder in your pudding or soups. And the meats I do eat… I cut into teeny tiny portions and then chew the heck out of them. Puree… agreed… barf! I am rooting for you! Post if you find something good… I will try it too! I am 57 & female, by the way. My thoughts are with you. I didn't get much sympathy or help from my surgeons, either. Learned most on internet unfortunately.

Nov 8, 2018 · Nissen Fundoplication reversal in Digestive Health

I had a nissen in 2013 and a toupet in 2015. Full of mesh and adhesions. Still sick daily… all 3 years. Weight down to 106. 6 surgeries total. Get a 2nd or 3rd opinion. I say dont do it… unless you go to Mayo. Seems we all have to redo and redo… and suffer horribly inbetween. I am meeting with totally new surgeon in a week to see what can be done for me now. Adhesions and hernia hurting me so bad. Dysphagia worsening. I wish you well. Fight for YOU. Its got to get better… or more tolerable anyways. Good luck.

Nov 6, 2018 · Anyone else had a Nissen slip? (it's been 7 years) in Digestive Health

I am sorry for all of your turmoils. I wish you wellness… hope for the best for you. I don't think this is a good surgical method. So many failures, so much pain and misery. All of us had the surgery to get better… not worse… or expect yet another surgery years later. The medical field needs to rethink, remodify this procedure.

Nov 6, 2018 · Anyone else had a Nissen slip? (it's been 7 years) in Digestive Health

After reading all the responses… now I know I am not alone. My mesh and fundoplication issues are real. I believe it has given me an eating disorder… the fear of food. I dread meal time… yet think of food constantly If I happen to overeat by just one spoonful… the bloat, the extreme abdonimnal pain, salivation, sweats, wretching… since I can never throw up again… until it violently shoots out of me from below. And if I don't eat… pains like a heart attack and passing out. I weighed 130 in 2015 before surgery (was always around 180) 3 years later I hover between 106 and 115. I cannot gain weight. Now I also have emphysema and when I cough my guts try to pop out under my ribs in the center. Soooo painful! I push them back in. Seeing a brand new dr tomorrow… wish me luck in my new quest for change. I am scared. I want to LIVE! I want to EAT!