OMG… I read your response to btowngal… and seriously I thought I had written it. Your words are my words, too. Marlex mesh implanted in 2000… since then my gut has been compromised. Did not make the connection to the mesh. Nissen fundoplication in 2013 by a general surgeon who "snugged it up real tight"… discovered I was packed with adhesions, causing my stomach to be pulled into my chest… 2 extra hours each surgery cutting them away to get to my stomach and esophagus. Constant pain, esophageal dysphagia, 5 thyroid nodules, losing weight like mad. 2013 food issues, unintentional weight loss… malaise & fatigue… used to weight 190 to 210… down to 150. Then in 2015 slipped Nissen… another surgery to do a Toupet Fundoplication… more adhesions pulling, tugging… attached to bottom of my heart and back of ribcage. Followed by yet another mesh implant a month later, due to an umbilical stitch that broke down. 127 lbs at start of that treatment. This surgery was promised to fix it all and i would feel good again. WRONG!! Everything was so much worse after that… can't eat, can't function… quit my job of 36 years to recover, lost my health insurance, surgeon left town in middle of night… Been on my own since and everything has gotten worse. I now weigh 105 and that's where your words are mine. FEAR OF FOOD EVERY.SINGLE.DAY. even the smallest meals make me sick. I am wasting away. No muscle mass, no fat reserves, no doctors. I have inner pain and positional pains… cant have any pressure there, lay on right side, bend over, etc without extreme pain… not to mention eating issues. I miss eating and enjoying a meal instead of being afraid. And yes… if I dont eat… that heart attack/passing out feeling. Had passed out 2 times, hit my face on the floor, head trauma.
Hospital turned me down for financial aid. Now trying to get disability or Medicaid… SOMETHING! Trying to be part of the mesh lawsuit, but hospital has destroyed some important records.
Now I have emphysema, too.
I trust NO ONE in the medical field now. Am scared if I go to Mayo that it will get even worse. Just lost in this illness and cant find a way out.