I will read it all.
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I will read it all.
Oh yes, now I remember, I'm on a waiting list to get on the waiting list to get the shot(s). None of my pharmacies in Delaware or Virginia know when they will get it in. I wonder why the company who makes it is so slow about producing it. Pharmaceutical companies spend a lot of money on research and development, they usually want to make their money back asap. Peggy
I still run on the beach 4 or 5 miles a day. It helps with pain – it distracts me, the beach is new and different every day and there are animals: we have beach foxes here as well as the usual sea gulls, sandpipers, crabs, sometimes we see dolphins, sand-sharks, sea glass, jellyfish, all kinds of stuff. I take 150 mg Lyrica at night and lately 600 gabapentin twice during the day. I tried taking lyrica during the day but it made me sleepy. Laying down and sitting down make my legs/feet worse, I'm getting those 'wasp sting-like' pains in my arms, back, and face now too. Some days it's better and I wonder what I did right but I do the same things and eat the same things every day so I haven't found anything that correlates. Some days are worse and I have to take 1/2 of a Tramadol. I'm still trying every lidocaine and cbd product but having only a few minutes of relief. I asked my Pain Doctor about low-dose naltrexone for Neuropathy – he is looking into it, we'll discuss it again next time. I will also ask him about Shingrix – I don't know what that is but I'll try anything that you guys are trying. This forum is terrific – when any new treatment for neuropathy is invented, I'm sure we will be some of the first to hear about it. Thanks, Peggy
Thank you goldleaf for describing your ordeal in such detail. I have experienced pain like yours but I could not put it into words as well as you did. This condition we have 'sux' and seems to be quite capricious. I have tried to correlate the good days and the bad days to anything I did or ate or took … so far, I haven't found anything that triggers good feelings or the bad ones – it seems to be random. If my nervous system is dying and going 'haywire' and sending out false messages, I wish it would engender false feel-good sensations instead of painful ones.
Re: Comedy – I have found by watching entertainers and by being one that: when people are expecting comedy, they laugh at everything we say and do – when they are expecting something else (medical advice perhaps, or singing or dancing), comedy takes them by surprise and they have to mentally shift gears – they don't 'get it' so they don't laugh until later when they have a chance think about it again. Peggy
We should also consume at least 2 tablespoons of fat each day (any kind, the healthier ones are best of course). It replenishes the oily myelin sheathing around the nerves. I don't know if there is any way to measure the myelin sheathing. This advice came from my nutritionist. Peggy