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3 days ago · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

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I will read it all.


Mon, Jan 6 9:06pm · Neuropathy & Exercise in Neuropathy

Oh yes, now I remember, I'm on a waiting list to get on the waiting list to get the shot(s). None of my pharmacies in Delaware or Virginia know when they will get it in. I wonder why the company who makes it is so slow about producing it. Pharmaceutical companies spend a lot of money on research and development, they usually want to make their money back asap. Peggy

Sat, Jan 4 9:05pm · Having a bad day in Chronic Pain

I hope we all feel better soon — that's my one wish for 2020. Peggy

Sat, Jan 4 6:42pm · Neuropathy & Exercise in Neuropathy

I still run on the beach 4 or 5 miles a day. It helps with pain – it distracts me, the beach is new and different every day and there are animals: we have beach foxes here as well as the usual sea gulls, sandpipers, crabs, sometimes we see dolphins, sand-sharks, sea glass, jellyfish, all kinds of stuff. I take 150 mg Lyrica at night and lately 600 gabapentin twice during the day. I tried taking lyrica during the day but it made me sleepy. Laying down and sitting down make my legs/feet worse, I'm getting those 'wasp sting-like' pains in my arms, back, and face now too. Some days it's better and I wonder what I did right but I do the same things and eat the same things every day so I haven't found anything that correlates. Some days are worse and I have to take 1/2 of a Tramadol. I'm still trying every lidocaine and cbd product but having only a few minutes of relief. I asked my Pain Doctor about low-dose naltrexone for Neuropathy – he is looking into it, we'll discuss it again next time. I will also ask him about Shingrix – I don't know what that is but I'll try anything that you guys are trying. This forum is terrific – when any new treatment for neuropathy is invented, I'm sure we will be some of the first to hear about it. Thanks, Peggy

Dec 30, 2019 · VITAMIN B12 and Neuropathy in Neuropathy

Did any of you develop Neuropathy after having a particularly virulent virus or flu ? Peggy

Dec 29, 2019 · VITAMIN B12 and Neuropathy in Neuropathy

Thank you goldleaf for describing your ordeal in such detail. I have experienced pain like yours but I could not put it into words as well as you did. This condition we have 'sux' and seems to be quite capricious. I have tried to correlate the good days and the bad days to anything I did or ate or took … so far, I haven't found anything that triggers good feelings or the bad ones – it seems to be random. If my nervous system is dying and going 'haywire' and sending out false messages, I wish it would engender false feel-good sensations instead of painful ones.
Re: Comedy – I have found by watching entertainers and by being one that: when people are expecting comedy, they laugh at everything we say and do – when they are expecting something else (medical advice perhaps, or singing or dancing), comedy takes them by surprise and they have to mentally shift gears – they don't 'get it' so they don't laugh until later when they have a chance think about it again. Peggy

Dec 28, 2019 · VITAMIN B12 and Neuropathy in Neuropathy

That is very interesting … I appreciate you sharing your studies. Peggy

Dec 27, 2019 · VITAMIN B12 and Neuropathy in Neuropathy

We should also consume at least 2 tablespoons of fat each day (any kind, the healthier ones are best of course). It replenishes the oily myelin sheathing around the nerves. I don't know if there is any way to measure the myelin sheathing. This advice came from my nutritionist. Peggy