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16 hours ago · CRPS - anyone suffering with complex regional pain syndrome in Chronic Pain

When my neuropathy first got out of control and 2 of my toes were on fire for over a month, I asked a podiatrist about amputating. She said that amputating doesn't help with neuropathy because the new nerve endings start dying and feeling like they are on fire just as badly as the old ones did – worse as it is that much closer to the brain. So I didn't pursue the amputation idea any further ! Peggy

16 hours ago · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Thank you for asking, Jim. I called my doctor, he phoned it in to a local pharmacy, I never used Humana by mail again. Peggy

4 days ago · CRPS - anyone suffering with complex regional pain syndrome in Chronic Pain

Thank you for all this information – I had never heard of crps before. I had fibro-myalgia and chronic fatigue when I contracted a foreign virus that almost killed me – fm and cf were horrible but crps sounds worse. Peggy

5 days ago · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

I don't do mail order with Humana since they royally screwed up a prescription of mine – they withheld the medicine and wouldn't tell me why or call my doctor either – they could have killed me. They were unapologetic. Peggy

Fri, Nov 8 10:22pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

Susan, I have a Morton's Neuroma too. I never thought about a connection between that and Neuropathy but there might be. I wonder how many of us on this loop have had a Neuroma … Peggy

Thu, Nov 7 9:09pm · Has anybody had an implantable neurostimulator for chronic pain? in Spine Health

wisco50 – I too suspect that this opioid crisis is trumped up, probably to distract Americans from the fact that cigarettes are still the biggest and most expensive killer in the U.S. I have been interrogated by pharmacists and doctors' nurses, my medicine has been held up, and my insurance company has used the 'controlled substance' status to delay paying for my Neuropathy meds — they are treating patients like we're all addicts until we prove ourselves innocent. Peggy

Fri, Nov 1 12:06pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

John, there is a PR company in Washington DC that specializes in smearing non-profit organizations. They are hired, of course, by for-profit companies that want the non-profit out of the way so they can do something less-than-kind to make more profit. They did a massive ad campaign saying that the director of Goodwill Industries makes millions of dollars a year (he doesn't, he's a retired minister who makes less than $100,000; my husband got to know him when he was on the Board of Governors). They started the scandal that ASPCA backed legislation to kill shelter animals (they certainly didn't). The company starts a new non-profit org that sounds like 'concern for animals' or 'citizens for equality' or something along those lines – the accusations are made by the new non-profit which folds soon after they are discredited but some damage is already done. People on facebook repost the headlines and stories from newspapers that no one has heard of.
A relative of mine accidentally met the guy who owns the company when she was working for Humane Society in Washington DC. The same company also starts rumors about medical procedures when a competing company hires them to. Peggy

Thu, Oct 31 9:29pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

My neurologist explained that my pain comes from: my nervous system is dying and sending out erroneous pain signals – they are real to me of course — the system is supposed to send me burning feelings when fire is touching me – but my feet and legs feel like they're burning when no fire is any where around. I tried everything available over the counter: foot fungus medicine, lidocaine spray/cream, aspirin/tylenol et. al, cbd cream, menthol ointment, before I went to my family doctor. He gave me gabapentin, then as my condition progressed (nervous system dying further up), we had to increase it until he sent me to a neurologist. She added Lyrica, we played with when to take which one and how much, then had to increase both, until she sent me to a Pain Specialist. There would be no point in me going back to Tylenol, creams, sprays, or herbs at this point – I already know they don't work for me. We are at the top dosages of medicine that the politicians in my state will let doctors prescribe, the next level is narcotics – I don't want those. I don't like anything that makes me sleepy. I will be useless once I have to start taking those. I looked into TENS implant, my insurance company won't pay for it. On this website, I have read about lidocaine infusions and some other procedures that required tests, hospitalization, bed rest for days — all for limited or temporary results. I'm allergic to marijuana. I'm still researching alternatives – perhaps there is something in the medical world that I have tried/heard about. Peggy