I thought I came across that in my research too.
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Thanks John, I would bet my life it's neuropathy and not restless leg but I appreciate the info. I am well hydrated. If I don't get any any answers I would definitely make an appointment at Mayo. I know that unless you have an autoimmune disease, have been on certain medications, have diabetes or cancer, neuropathy is usually diagnosed as idiopathic and only the symptoms can be treated. Although, I've recently read some promising advances made with stem cell treatments but there VERY expensive. I am wondering if Mayo Clinic offers this treatment. Thank you again for your quick responses. I appreciate the feedback.
By the way, thank you for the NIH link. I had seen that before. I just can't find anything that says my symptoms are related to SFN except the burning and pins and needles. I was just hoping somebody who actually has it could tell me if they have similar symptoms. Thanks again.
Thank you so much for your quick response. I am going to see a neurologist next week. I saw one when the symptoms very first started but all she did was rule out MS and send me no my way. It's not that I want the tests to show something wrong but there is something wrong. This is not in my head. I know something is wrong with the nerves. Maybe it's not advanced enough to show up on a test, although the symptoms sure do feel advanced. I was shocked that the EMG didn't show anything significant. Pretty sure my insurance won't cover a Mayo doc, but at this point I don't care if I pay out of pocket. I don't have a lot of money but I could try to get enough to cover it. Can I ask, in your experience do you think the muscle cramping/tightness, sharp pains and twitching be from SFN. I know you're not a doctor but you do have SFN, Right?
I have no diagnosis yet but it seems clear to me that I have some form of neuropathy. 18 months ago I woke up one morning and had some facial numbness and had numbness and tingling pretty much all over. I thought I slept the wrong way on my neck or something. Had a brain and cervical MRI to rule out MS. Since then the numbness and tingling progressed into intense burning in my feet and my pins and needles over the rest of my body and now pins/needles, muscle cramping and twitching. The pain is the worst in my feet and hands. The twitching drives me crazy and it all is making me nervous about what is going on. I've had all the autoimmune tests and today I had an EMG and conduction test which was only slightly abnormal but not enough to give me a diagnosis. I've read a lot about SFN and I guess that's what if could be? I'm guessing I would have to have a skin biopsy? I would like to know if anyone with SFN has muscle cramps, weakness and twitching. I thought that was mainly from large fiber or motor neuropathy? I hate this! I know the doctors are starting to think I'm just crazy. I would appreciate any input. Thank you!
Thank you for responding. I was told if I had numbness in my face that it could not be coming from my neck. I did have a cervical MRI and it showed some mild degeneration. i know the EMG will not show all nerves affected, I'm expecting that it just be a start. I will need a skin biopsy to show if small fiber nerves are affected. The most depressing part is that I've learned despite having these tests and what they show, there's not much they can do for you. Thanks again for sharing.
1 1/2 years ago I woke up with numbness and tingling of my face, arms, legs and feet. I thought I slept wrong. The doctor is pretty sure I have polyneuropathy. I have my firs EMG in 2 days, not looking forward to it I now have not only numbness and tingling but pain and muscle cramps in feet, hands and arms and pins and needles. Now having TONS of muscle twitching over my whole body too. I also have burning and pins and needle feelings internally including in my throat almost daily. Anybody else experience this? I'm also wondering what to expect in the future. Will this continue to progress? I'm supposed to go on a trip out of the country in a few weeks with some friends. They are worried about me traveling with them. Should I be worried? Just wondering if some of you that have had issues similar to mine could help me with what to expect. I know everyone is different and it depends on the cause (which mine seems to be idiopathic) but It would be helpful to hear from people dealing with similar symptoms. Thank you.