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Wed, Feb 6 11:36am · Pain getting worse in Chronic Pain

I hope you live in an area that has community acupucture (much lower cost than private clinics)or you have insurance that covers acupuncture. What has saved my sanity as my pain worsens, as it will, is to get weekly acupuncture to maintain, twice a week with a minor flare up, three times a week with serious 10 level pain flare ups. I can live with the results–managing a level 3-4 as base line pain, walking for 10 to 20 minutes, or some days just getting off the sofa and walking around the house, dusting this and that, straightening a picture, opening a window, dusting a lamp, just moving and doing every 45 minutes. Since I do spend lots of time in a chair, I watch great Netflix shows to distract me, read, and meditate to new age music. Yoga and stretching at night, a very very light series of movements, even when it hurts, just stretching into the pain very lightly, and finally, CBD oil in both pill and balm form (the only part of my treatment that costs a lot. ) Never give up, just know we are fighting a losing battle called life and try to enjoy the day, the birds, sunbeams, plants, pets, phonecalls, facebook, whatever you can do to stay engaged in life. Love and prayers, Peggy Boyter

Tue, Jan 22 1:29pm · Has anyone used CBD oil for chronic pain? And do you have results? in Chronic Pain

I do use CBD for fibromyalgia–it is a subtle adjunct to OTC meds, needs to be used regularly at first to build up in your body to see if it helps. Good luck!

Tue, Jan 22 1:27pm · fibromyalgia pain in Chronic Pain

I encourage you to try. The needles the community coop uses are very very thin gauge–I hate needles too, but these are thinner than any sewing needles–these come in sterilized packs and then are put in medical waste bins afterward. If you feel any discomfort, the clinician will readjust, but usually the tiny ping of pain is because she/he has found a tender spot that needs the relief and the discomfort is resolved before he/she can adjust the needle. I love it–helps with insomnia and anxiety as well and many other issues. Good luck!

Tue, Jan 22 11:05am · fibromyalgia pain in Chronic Pain

Dear Clowns Cry Too,
Your email name says it all. Fibro is cunning and baffling. In my few years of living with it, I have now settled into Cymbalta 120 mg. dose once a day–I know some have had serious side effects, and while I am extremely sensitive to side effect of most meds, Cymbalta has worked for me. This year medicare Part D has even lowered the price–oh yeah! I confess I also take CBD gel pills that by at my acupuncturist's clinic, which I rely on for flare ups during times of stress or weather changes. I also use Excedrin headache OTC, which a neurologist recommended when the fibro seems to morph into neuralgia pain.

Otherwise, daily recommended doses of arthritis strength acetominophen especially in winter as of course the arthritis is part of it all. I try to keep to an anti-inflammatory diet-little gluten, little sugar, lots of grains, beans and produce, some dairy. I use yoga, meditation and prayer. Most importantly, I see my acupuncturist 1 to 3 times a week–which is where the story of my healing really began.

I am lucky to live in a city (Tucson) that has 3 community acupuncture clinics, part of the national community acupuncturist movement. They treat in a community setting in large rooms with many recliners, placing needles in just the distal points (acupuncture speak for points on neck, shoulders, legs from the knees down, arms from the elbows down, top of the head for chi energy.) They treat 8 patients at a time, 45 minute treatments, and the price can vary from 15 to 25 dollars a visit. Soft lights, healing music, noise reduction machines help make the clinic feel very private. At $15, the fee is affordable to go as often as I need to. Most urban areas have community acupuncture clinics now. Where do you live?

I am no hippy, but Western medicine can only do so much for such an all-encompassing illness like fibro, which has only recently been seen as a legitimate illness and not a figment of the the little woman's imagination, if you get my drift.Though I have also done yoga for 30 years, which has become a very light workout now as I round the corner to my seventh decade on the planet, yoga classes for elders and disabled folks are available so one can begin a yoga practice at any age or stage.

BTW–none of the opiods really helped and the side effects were too awful.

So, in short, after 3 years of making the management of this disease my top priority, I am managing to live a simple life. I see friends, get out of the house for a short coffee date or trip to the library more days than not. Otherwise, I stay home and putter, read, do my yoga stretches, take very short (15 minute) walks, see my doctors, and keep in touch with friends and family with my phone and my facebook page.I play with my kittens, who are also a big part of my health regimen, meditate, cook real and simple meals. When I can't follow through and show up places folks are planning on seeing me, I call and let them know it is a fibro day, and everyone has gotten used to Peggy's little disability. (At first it is hard to help people understand because fibro in an invisible disability, except for the pain-lines etched in my face and the occasional need for a cane.)

I am not saying this passage has been easy. I was a backpacker, social dancer, river rafter, avid runner and hiker, softball player up until my late 50's and then the limitations came and piled up.
It took me a long time to figure out what was going on. I grieved the loss of my healthy younger body for a long time. But then I decided to see a grief counselor to help me get over the loss of mom and then shortly after, my best friend Rachel, all in the same year as I was struggling with my health, and slowly I learned how better to deal with and accept loss.

So in short, I have been willing to go to any length to have a life, have mobility, and through trial and error, found ways to manage. I am committed to cultivating hope and use prayer as well. Two of our dearest friends died this year of cancer, so I also remind myself that we all age and suffer, and try to keep the bigger picture in mind. Good luck to you on your journey
Love, PeggyAnn

Nov 15, 2018 · fibromyalgia pain in Chronic Pain

Well, if on lisinopril, for example, someone who is on too high a dose will manifest fatigue and flat affect. When I was in the midst of some awful anxiety inducing traumas, I was put on the higher doseof bllod pressure med. Once my life settled down and I dealt with the trauma, my doctor noticed I seemed fatigued, cut my dose in half. And I perked up!
RE: deep breathing, maybe doing it in a group would feel safer. I too feared it at first because noticing my breathing just enhanced my anxiety. It took practice, but now I am grateful to be able to do deep breathing in any setting–like the dentist's chair!–and I do experience oxygen going through my body and calming me down. Just another tool in my toolbox so I can manage living in a stressful world without meds. (Been there, done that, no more psych meds for me…)

Oct 30, 2018 · gabapentin and muscle pain in Chronic Pain

I have been fighting chronic pain for 35 years (I a 69 year old female.) Early on the pain was the result of a pair rear-end collisions and a backpacking injury. Left with 4 herniated discs which now include arthritis and continued degeneration of discs, bone spurs, daily neck pain. I also have seemed to develop a fibromyalgia stype pain as well. After many drugs, many injections,chiropractic and physical therapy, I have finally settled into a routine that helps me keep pain levels down from 7-8 to 2-3. Here is my formula: yoga for seniors, chair exercises, 120 mg. of Cymbalta each morning, 200 mg. Naproxen and 3 mg. of purest Caniboid oil in gel form that I could find/afford with each meal.. (Many health stores and clinics carry CBD Oil..no THC so no euphoria.) I walk 15- 20 minutes a day even when in pain, see my acupuncturist twice a week, and try to avoid "episodes" of major pain by slowing my life down and being present. (Zen mindfulness.) RE:acupuncture–unless you live close to a clinic that is part of the national community coop network, you will pay dearly. I pay $15 a treatment and get free treatments for my husband by serving as the receptionist one 4 1/2 hour shift a week. Go to POCA website to learn more. When the weather changes dramatically, I have learned to cancel all plans and stay indoor where I can control the climate and the fibro pain.Good luck to all. In part I am paying for overusing my body running on city streets, swing dancing, backpacking, playing softball, you name it. Also workaholic behavior meant constant cortisone and dumps in my body. But I loved my life when I was young and now I just adapt. Have kittens to amuse me, read a lot (Former literature teacher.) Watch all the cool shows I never saw during my teaching years. Feed the birds in the morning, water and prune my flowers and shrubs, see friends when I can, or follow on facebook when I am home bound. It is what it is. Acceptance and the right support have made a huge difference in my life. But it can be a long process …lately I have considered Gabapentin, but after read about it here and finding research, I am off any pharma that needs detoxiong or messes much with my neurological system. Doctors generally don't stay current with how medications they prescribe affect people. They figure the pamphlets are warning enough. It is they, not cartels, that have caused the opiod crisis, in my opinion, though desperate people who feel "hooked" and the doctors cut them off, who maybe don't figure out how to slowly reduce or aren't shown how–well I assume street drugs look better than full blown withdrawal. We each have to be our own case managers and research, keep track of our reactions, figure out what we are and are not willing to do. Love yourself and your body and you might be surprised at how much life you can restore.PeggyAnn