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Wed, Sep 25 4:49pm · What Distracts You From the Pain? in Chronic Pain

What wonderful ideas from such resilient and resourceful folks! I am finally trying to pull together all the writing I have been doing and starting a fictional memoir–when I am writing or researching, time and my pain disappear. When I nap, I take my little gray tabby in with me–she is a loving and silly girl.
Good movies and streaming tv series work great, as do Turner Classic movies. And for sure, my little yoga meditation before bed. I move away from my pain and into my heart. Thanks all!

Tue, Sep 24 10:30am · When they ask:” any pain today? On a scale... with 10 being the worst in Chronic Pain

Yes, exactly. I have finally learned to be honest ad clear. My best days now are pain levels of 3-4, "flare-up" days 5-7, needing more serious intervention, 8-10. I have not had an 8-10 day for at least a year, probably since I added Cymbalta and CBD gels to my pill regimen. I probably have a DP on my pain clinic file, as none of their costly interventions ever helped at all. Glad to be past the pain clinic days! Lots of them here in the land where folks come to die–Arizona!–and the pain clinics guys are doing very well.(Tongue in cheek, but true to my experience for the most part!)

Sun, Sep 22 10:47am · Cymbalta in Chronic Pain

Thanks for all the tips about Cymbalta dry mouth, no taste…gee, I want to be able to taste things, though this syndrome certainly helps me keep weight off–however, full-fledged chocolate–like say Godiva, Ghiradelli–and real ice cream full of sugar–these I can taste! If I could live on bread, pasta, chocolate and icec ream I would be happy–not a good regimen for and old lady with high cholesterol! I will try your tips–and the sugar of course adds to my pain load–ah well…I am glad to know you have the same issue and what you have tried! thanks!

Sat, Sep 21 4:57pm · Cymbalta in Chronic Pain

Hope you got to sleep until 11:00! Do you get weird taste stuff from Cymbalta? I didn't at 60 mg., but now am at 120mg which the psychiatrist says is the best dose for me, and now everything tastes tinny, my mouth is always dry and only the most bland food works otherwise I get heartburn. Yes, we all do react differently–I like to think of myself as a lab rat for all the drugs I have been on and then off of over the years….

Sat, Sep 21 8:57am · Cymbalta in Chronic Pain

I just wanted to jump into any discussion of Cymbalta. My therapist put me on 120 mg when it finally worked. For fibro and for depression/anxiety. It leave a nasty taste in my mouth, even water tastes weird, but otherwise, love it. I was taking the total dose in the morning when I realized it was making it hard to stay awake, so I switched to nighttime before bed (like many of us, I have chronic sleep issues) and it really helped me to get 7-8 hours every night. I would love to hear other Cymbalta stories. Thanks, Peggy

Sat, Sep 14 9:58am · Feeling at my wits end with Chronic Pain and Fibromyalgia in Chronic Pain

ooh, yes, epsom salts do help. I have Bragg's vinegar for digestive stuff,never considered it as a rub! Great idea! Thanks!

Sat, Sep 14 9:54am · Feeling at my wits end with Chronic Pain and Fibromyalgia in Chronic Pain

Thanks for the reminders–water exercise really helps, and I hadn't thought about it but I was in grief counseling for six months last year when deaths of close friends started to pile up–had to finally deal emotionally with my father's suicide nearly forty years ago…that might well be a part of why this summer I feel better than I have since I started this journey of dealing with fibro and chronic fatigue–of course, like most of us, joint and disc damage, depression and anxiety all a part of it. So much self care needed now–well, we are worth it! I am also in AA and was long time in alanon with lots of therapy–what a project I have been!

Fri, Sep 13 3:34pm · Feeling at my wits end with Chronic Pain and Fibromyalgia in Chronic Pain

Having chronic pain and finding the right tools to combat the pain, never mind finding a doctor who can and will work with us–this is very hard work, takes much trial and error, and keeping current with anything new on the scene. For me the formula includes very light yoga stretches, CBD gel pills, tylenol, and 120 mg. of Cymbalta. Also as clean a diet as possible as I experience more pain and inflammation from food additives. Weekly acupuncture at a PACO community clinic have saved my life, twice even three times a week if I am in a flare up. (Most major cities have 1 or 2 such clinics which offer low cost treatments and also do exchanges of free treatment for volunteer hours spent at the reception desk. Here in Tucson, the treatments are $15!) I have been on opiods, have been through all the pain treatment centers expensive options, and none of that helped. After years of searching for "help," today I accept my limitations, and I have developed a new attitude, which has probably been the biggest breakthrough. Extremes of temperature, rapidly changing barometer, kick my butt, so here in Tucson I have finally this summer accepted that I cannot go outside after 8:00 a.m., and certainly cannot drive. I have been devoting myself to some on line research and writing that I had always told myself I would do in retirement, and have chosen to enjoy that. I have finally ( I think!) finished grieving the loss of a strong healthy body that took me dancing, hiking, backpacking, jogging, playing softball, trekking in Nepal, and so forth. That grief and it's companion denial kept me in a spin of trying new treatments that I wanted to believe would give me back my previous vitality. Those years are over. They were good years. I believe my health struggles are evidence that like many women, I am a "sensitive", a person who does feel empathy deeply, and also is a canary in the coal mine, one who is the first to get sick because of social and environmental toxins that others seem to handle better for longer before they "get sick." I am no longer embarrassed or ashamed about my limitations: rather, I choose to focus on what I can still do, share honestly with family and friends about my condition and my journey, and in general have a much better quality of life right now than I have had in many years. It is a long journey, and each of us has their own story, and both good days and bad, no matter how much progress we make. As Langston Hughes once wrote, "life ain't no crystal staircase" for any of us, despite whatever our culture, social media, our "pursuit of happiness" constitutional right has led us to believe. My heart goes out to you all and my congratulations on choosing to seek help and stay the course. Keep on truckin', as we used to say!