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Posts (19)

Sat, Jul 6 10:12pm · Living with Neuropathy - Welcome to the group in Neuropathy

Hi Penader ,
i have idiopathic small fiber polyneurpathy from 4 years now and aftrer the doctor tried a lot of medications with me with no effect . He refferal me to the pain clinic and i am taking CBD capsules twice a day and the pain get controlled .

Sun, May 19 8:10am · IVIG Infusions in Neuropathy

Thanks John for the information to how send my email in a private message.

Sat, May 18 10:14am · IVIG Infusions in Neuropathy

Hi ,
What do you mean by external email ?

Fri, May 17 10:39am · IVIG Infusions in Neuropathy

Hi @arcticmark
How are you ?
Please , did you have a chance to talk to your friend ?
I wish you have a good news . Thank you

Fri, May 17 4:21pm · Just Diagnosed with Small Fiber Neuropathy in Neuropathy

I think Lyrica will be better than Gabapentin.

Tue, May 14 9:28pm · IVIG Infusions in Neuropathy

Hi Arcti ,
Thank you for reply .
Would you please , can you put me in contact with your friend who take the
IVIG and have Small Fiber Polyneuropathy?
You can private message me on this site.
I want to ask her how many injection she took to elementals the symptoms? Is she idiopathic small Fiber Polyneuropathy?
EMG result is normal or not ?
I want to try it but please , I need more information from your friend?
Thank you .

Wed, May 15 3:13pm · IVIG Infusions in Neuropathy

Thank you Arctic for quick reply . I am waiting to hear from your friend on my email because i need more information from her. The EMG test for me is normal but it was done from 3 years ago .

Tue, May 14 9:51pm · People with non diabetic neuropathy in Neuropathy

I am on CBD Decarb from a year now and 2 years before , I was on CBD oil drop. It is mask the pain and burning sensation only but the case itself get worse because it is not cure or improve the idiopathic small Fiber Polyneuropathy.