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Posts (31)

Dec 31, 2019 · Unknown Cause or Idiopathic SFN in Neuropathy

Hi Rachel
How are you ?
As you know , i have a hemiplegic migrain and idiopatic small fiber polyneuropathy .
I want to ask you about the migrain attack?
Do you lose the speech when you get the attack ? Because that is happened for me and thr neuro return the Topamax medication for me after he stopped it when he prescribed the botox injection for me from 2 years ago . But now the neuro wants me on the botox and the medication too . The loss of speech it takes days now and i feel weak on my right side of my body too .
Would you please , tell me is this your situation too .
Thank you

Manal

Nov 18, 2019 · Unknown Cause or Idiopathic SFN in Neuropathy

Hi Rachel
I have a hemiplegic migrain from more tham 10 years and it causea sever pain and stiffness in my neck, shoulder and back head and i was taking topamax tab 100mg . Due to a side effect between it and Cannabis . The Neuro change the topamax to Botox injection on my head , neck and shoulder . The Botox helps me in the stIffness of them . That is make me thought this symptoms is related to the migrain not to the SFN . The other symptoms are my right hand and both legs from my toes up to my both knee cramping , burnnig and baker cyst in my right knee cause joint locking and pain . Now my left hand starts numbness and tingling.
I understand what we are taking are a pain killer or analgesic only but there is no cure for this disease . I am really sorry to say that .
Thank you

Nov 13, 2019 · Unknown Cause or Idiopathic SFN in Neuropathy

Hi ,
There is no difference between the brand name and the generic in the medications . But Lyrica alone doesn’t reduce the pain of the SFN .

Nov 13, 2019 · Unknown Cause or Idiopathic SFN in Neuropathy

Hi Katec ,
Yes there is a company here in Canada. It is name Hexo company previously it was name Hydropathy. It is the only company even in Canada sell this kind of CBD . But even though I can tell you something in your ears , I do it one time on my oven when it was back ordered in this company and I can’t live without pain without it .
Due that I did research and asked my pain clinic
How can I do it by myself at that time .
I hope I answer on your questions.
Thank you

Nov 13, 2019 · Unknown Cause or Idiopathic SFN in Neuropathy

Hello ,
No after the CBD oil cause a stomach upset , i am on Decarb High CBD like powder and fill it in capsule and take it as a regurall medications .

Please read this link :

https://www.cbdschool.com/what-is-decarboxylated-cbd/

Thank you

Nov 12, 2019 · Unknown Cause or Idiopathic SFN in Neuropathy

Hi Albiet
from my experience , the only thing make reduce for pain with me is the High CBD .i am taking it from 2 years but in the beginning i wastaking as a ora in a shape of oil under the tongue but after a while it caused a stomach upset for me and the pain clinic change the prescription to Decarb High CBD
please , read this link to know well what is that .

https://www.cbdschool.com/what-is-decarboxylated-cbd/

Thank you

Nov 12, 2019 · Unknown Cause or Idiopathic SFN in Neuropathy

Hi everyone ,
i am on Lyrica brand name.
Decarb High CBD is

https://www.cbdschool.com/what-is-decarboxylated-cbd/

Nov 8, 2019 · Unknown Cause or Idiopathic SFN in Neuropathy

Hi ,
if you have idiopathic Small Fiber Polyneuropathy and you have the same symptomes like me . My medication reduce the pain by 70 % . The docs tried alot of medications with me before we reach to this combinations . The main one of this list is the Decarb high CBD .