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Mon, Sep 9 9:53am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker I've been holding steady without needing antibiotics. I'm exercising most every day and working in the yard in Michigan as my "meditation." The dirt doesnt' seem to be bothering me (yet). How are you? Are you still bicycling?

Mon, Sep 9 8:22am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker Terri, Ive been delinquent and haven't been on this site in a while. However, I thought of you because of the hurricane, so I came by. I'm really glad you were ok.

Tue, Mar 19 3:19pm · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@windwalker Hi Terri (and everyone), I just found the website https://bronchiectasisnewstoday.com/ It has lots of useful articles. There’s one that indicates exercise is helpful, and may explain why I and some other the others here seem to be ok without antibiotics: https://bronchiectasisnewstoday.com/bronchiectasis-treatment/exercise-training-for-bronchiectasis/
Another article from the same website suggests that it’s important for those without treatment or symptoms to be carefully monitored over time: https://bronchiectasisnewstoday.com/2017/10/10/untreated-patients-with-nodular-bronchiectatic-mac-lung-disease-fare-poorly-over-time-study-says/

Nov 26, 2018 · Using a humidifier with MAC in MAC & Bronchiectasis

@spencersok I live in Michigan in the summer and Tucson in the winter. When I was diagnosed with MAC, my Infectious Disease doc told me that it's very unusual to see MAC in Michigan, and thinks I got it in Arizona, which is terribly dry. @windwalker (Terri M), wrote in a comment to me in the "New Diagnosis of MAC/MAI & I'm scared" thread: "I caught my mac in Tucson, Az. pretty sure from our hot tub. Arizona is one of our country's 'Hot Spots' for mac. Some other states are: Florida, California, Wisconsin, Hawaii, and I think New Hampshire. Well water is supposed to be void of mac in most cases." @sueinmn wrote: "according to my doc, and the reading I have done, the bacterium is endemic in MANY places – in fact, just about everywhere. I too was diagnosed after several winters in South Texas and Arizona – and several bouts of what appeared to be desert fever or valley fever."

Nov 11, 2018 · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

Can anyone tell me which is better/easier to use and clean: Aerobika or Acapella? I need to start one soon. Thanks!

Nov 10, 2018 · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@windwalker, Hi Terri. Thanks for the info! We've lived in Oro Valley, a Tucson suburb, in the winter since 2009 and spent all year here for two years before that. I thought I caught valley fever in my second summer here, but wasn't tested then. Last year after I coughed up blood in MI, they tested and didn't find any antibodies for valley fever.
We just got back to Tucson a week ago, and I noticed I'm coughing more. I had been lap swimming 2-3 times a week in a heated (86 degree) outdoor pool here since we first moved here and once in a while I used the community hot tub. I'm NOT swimming here any more!!! I've been trying to convince my husband to go to coastal Georgia or South Carolina for the winter, instead of here, because the drive is much shorter and we could go back and forth from MI with a cat. (We used to have two cats, who have both passed away. We drove 3 long days with the cats back and forth to MI and they hated it! Now we fly because I hated the drive.) Maybe knowing the MAC issue, I'll have more luck persuading him. 🙂

Nov 8, 2018 · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@macjane Jane, Hello. I too live in Michigan, at least in the summer (Arizona in the winter)—on a small lake in Hartland Township about 30 miles north of Ann Arbor. I was recently diagnosed with a mild case of MAC at the University of Michigan Medical Center. My infectious disease doctor told me that it is very unusual for someone in Michigan to have MAC and suspects I got it in Arizona (or Colorado, where I lived for 27 years). I’d love to know where/how you think you got MAC. Where in Michigan do you live? Do you have city or well water? (I have well water in an area of prairie fens.) Have you recently lived anywhere other than Michigan?
Thanks and good luck, Lori