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Nov 19, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I get some relief from complete stillness, not laying or sitting on left side, naproxen, and a dwindling supply of Vicodin. Hoping pain management doctors can help me.

Nov 19, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I almost wish for weight loss with my MP. But I had 2 CT scans, initially looking for kidney stones. First scan was without contrast and the enlarged lymph nodes were clearly visible. Repeated the CT with contrast and the look like Christmas lights. Also a subtle psuedocapsule and increased attenuation at the Mesenteric root. What does all that mean? Little nuclear bombs going off across my lower left abdomen and across my left side into my left middle back. Osteoarthritis showed up nice and clear as well, lower spine, SI joint. Get both of the going and it's a bad day. My primary care is caring but clueless, she put me on a week's dose of Prednisone, I think she googled that in the other room. I had much relief but it wore off after 2 weeks or so. Sent me to GI, had a clean colonoscopy, she said come back in 6 months for another CT, if same or worst she'll do a biopsy. YAY. GI said she doesn't do steroids or painkillers and referred to a pain management clinic, just last week I rounded up all my records for last 2 years, MRI, CTs, x-rays, blood works. Everybody seems clueless or uncaring. I don't think it's diet related, I believe it's more complicated than that into the autoimmune system realm. My neighbor stumped doctors for years with an autoimmune problem, not MP but bizarre pain in neck and arms and inflamed lymph nodes throughout his upper body. Anyway, good luck. God blessed me with a high pain tolerance.

Oct 7, 2018 · Prednisone Side Effects in Men's Health

@lisalucier right after my first CT scan my primary care gave a 7 day dose of Prednisone. 2 or 3 days in ALL my aches and pains went away. I felt 21 years old again. For about 2 days after the Prednisone was over. So about a week. My GI passed me off to a pain management clinic, my primary care agreed. First visit was not good. I didn't have all my records as my electronic records don't transfer to his network. I'll gather it all and go back. I've lost some weight, Tylenol helps, hydrocodone for the worst days. My syptoms vay from a dull deep ache to an annoying feeling like something trying to escape (think outward pressure) to the worst (inward pressure). I've started wearing a hernia belt when the outward pressure is bothering me, fight pressure with pressure. GI will redo CT scan in 5 months now…if the same or worse she wants to biopsy the lymph nodes at the root, or the root itself, sorry I don't have my findings with me. Anyway this pain sucks and I want it to go away. Very few understand.

Oct 1, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

@steve_b I am not ready for that. One mistake…one mm off seems tragic

Oct 1, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

@kimh I will. Different network doctor and my electronic records don't transfer…UGH

Oct 1, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I can relate to the horizontal pain. I toss and turn to find the right position bto ease the pain, sometimes morning comes and I feel like I'm still trying to fall asleep. Two CT scans, the second with contrast, showed numerous enlarged lymph nodes throughout with Mesenteric root showing increased attenuation and encapsulation. My pain radiates out from kind of my left side out to entire abdomen. Sometime it feels like pressure pointing in, sometime like alien trying to bust out. I was given Prednisone treatment once and I had some relief, but now my gastroenterologist and primary care want to send me to pain management and follow up CT in March (6 months). All my blood tests have been normal, liver, kidney, normal. Ultra-good good colonoscopy. Everything hurts, nobody cares.