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Thu, May 14 9:17pm · COPD and oxygen therapy: Will I really need the therapy in the future? in Lung Health

i have a large in home unit and a portable imogen.

Thu, May 14 5:50pm · COPD and oxygen therapy: Will I really need the therapy in the future? in Lung Health

I was using oxygen every night year plus ago but my monologist said to only use it when my oxygen levels fell, not everyday. I needed it last fall in the National Parks when at high elevation and once a few weeks ago. I have a pulse oximeter and check when I am winded.

Sep 18, 2019 · COPD and Emphysema: Want to connect with others in Lung Health

fOUND THE OLD E MAIL. Contains some links from Charleeen

Hi Mr. Daniel,
It was so nice speaking with you today. As promised, here are the resources that we discussed.

ISSCR RESOURCES:
http://www.closerlookatstemcells.org/patient-resources/#handbook

http://www.closerlookatstemcells.org/stem-cells-and-medicine/nine-things-to-know-about-stem-cell-treatments

http://www.closerlookatstemcells.org/stem-cells-and-medicine/stem-cell-treatments-what-to-ask

Mayo Clinic Pulmonary Research phone #: PULMONARY RESEARCH: 800-753-1606

COPD Foundation:

https://www.copdfoundation.org/Research/COPD-Patient-Powered-Research-Network/COPD-PPRN-Why-you-should-enroll.aspx

https://www.copdfoundation.org/Take-Action/COPD-Policy-Issues/COPD-Foundation-Position-on-Stem-Cell-Therapy.aspx

Please let me know if there is anything else I can do for you.

Best,
Charlene

Sep 18, 2019 · COPD and Emphysema: Want to connect with others in Lung Health

it was Sept 2018. I had a phone consultation. Don't remember the nurse name. She was to put me on a list for future stem cell research as that is what I originally
inquired about

Sep 18, 2019 · COPD and Emphysema: Want to connect with others in Lung Health

on phone last year with Mayo

Sep 18, 2019 · COPD and Emphysema: Want to connect with others in Lung Health

6 months. Saw pulmonary last week. Stayed on spirivia and symbacort..
On another note how do I find out if I am on the list for future trials?
I was told last year I was but don't Have that information

Sep 4, 2019 · COPD and Emphysema: Want to connect with others in Lung Health

I can't find my older post from last year where you replied the other day.. What was the newer medication you mentioned that combined the ones I am taking? I will ask my Drs about it. Thanks. Is there a way to search for posts we have made here ?

Sep 2, 2019 · COPD and Emphysema: Want to connect with others in Lung Health

yes I have been treated for years now. Thought you were the moderator who I have spoken with Thanks