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Posts (11)

Nov 20, 2018 · Life: How do you not let a brain tumor take over your life? in Brain Tumor

@cads. Good point. Always need to remember. We only know what we know now. One DAY at a time.

Sep 11, 2018 · Share Your Brain Tumor type & Years since Diagnosis in Brain Tumor

That is the same plan as my husband is on currently and he was diagnosed April 2018. John does not have headaches though. What milligrams are you taking for the week, daily dose?

Sep 8, 2018 · Life after Brain surgery in Brain Tumor

I am sorry to hear that. I wish I could help in some way but I am so new to this

Sep 7, 2018 · Glioblastoma Multiforme and Cognitive Loss in Brain Tumor

Ok thank you and sorry for your loss.

Sep 7, 2018 · Glioblastoma Multiforme and Cognitive Loss in Brain Tumor

Ok thank you that is much clearer. Hers must not have been a gbm. Is that correct? Johns is a gbm and has been given 6 mos to 1.5 yrs. I’m not sure if I mentioned that he is also wearing the Optune device. Thank you so much.

Sep 7, 2018 · Glioblastoma Multiforme and Cognitive Loss in Brain Tumor

Was our wife a survivor for months or years. I’m seeing both listed. Also, my husband is a lefty so if you have any advice on that it would be greatly appreciated.

Sep 6, 2018 · Share Your Brain Tumor type & Years since Diagnosis in Brain Tumor

His seizure was after the surgery when he was feeling better and energetic and did too much. Because of his gbm in the frontal lobe there has been slow reaction and not a lot of talking unless he is interested in something. What else would be cognitive? I’m having trouble thinking of all of those things.