About

City
Macedonia

State/Province
OH

Country of Residence
US

Health Interests
Autoimmune diseases, Chronic pain, Neurology (brain and nervous system), Other

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Posts (6)

Sep 17, 2018 · Severe headaches and now clumsiness. Should I be concerned? in Brain & Nervous System

Could be pots if you have tachycardia as well. Get tested for everything to make sure. Docs underestimate impact of neuro conditions too often.

Sep 4, 2018 · POTS in Heart Rhythm Conditions

I try to stay as active as possible with POTS. However, if you are like me unable to move due to surgery or previous injury, then compression stocking can be helpful or just exercising in bed. Also, I have to fight tooth and nail to get doctors to buy into my symptoms, so it is important to write them down and give examples when at the appointment. Doctors have been lied to many times by a small majority of patients looking for pills or just looking for disability, so they tend to only believe strong arguments. Hope this helps.

Sep 4, 2018 · Managing POTS (Postural Orthostatic Tachycardia Syndrome) in Heart Rhythm Conditions

Cardiac rehab is best treatment for me in addition to staying upright throughout the day when inactive.

Sep 4, 2018 · Mast Cell Activation in Blood Cancers & Disorders

I have a trigger finger due to brachial plexus injury. I apologize for last post. I was told by many doctors that exercise is the best thing you can do for the symptoms of POTS. I cannot get treatment at the Cleveland Clinic for POTS, but am able to ask for medication to try. None of the meds do much. Mestinon seems to be most helpful as a digestive stimulant and Powerade mixed with salt keeps me hydrated throughout the day.

Sep 4, 2018 · Mast Cell Activation in Blood Cancers & Disorders

I am under the impression that all forms of POTS including MCAS have no treatment available for the actual dysfunction. I am treating the symptoms of POTS

Sep 4, 2018 · extreme outer ear pain in Ear, Nose & Throat (ENT)

I had same problem. It was tmj for me. I am going to try botox for it. Discontinuing bight guard use helped a bit. Sleeping on a wedge keeps me on my back so I don't irritate the nerves as much.