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Autoimmune diseases, Chronic pain, Neurology (brain and nervous system), Other


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Sun, Jun 14 7:13am · What Distracts You From the Pain? in Chronic Pain

Lyrica. 🙂 Being on the computer or cellphone is good distraction as long as you got proper ergonomics and take breaks. Screen time is frowned upon by many people, but the distraction if more powerful than say a book. I really love books, but find that pain wins at least half the time when trying to focus on reading material. With screens, I generally pay more attention.

Sun, Jun 14 7:10am · Horrible leg pain with fibromyalgia in Chronic Pain

Vitamin D has been shown to change hormone levels in body (not really a vitamin) and really helps with depression. Also, tramadol is really constipating for some people, so be careful with that one. I would really try and replace drugs with common side effects with more natural solutions like Vitamin D (depression) vs Cymbalta and Melatonin (sleep) vs Muscle Relaxers / Ambien. You might be surprised at how well they work.

Sun, Jun 14 7:06am · Horrible leg pain with fibromyalgia in Chronic Pain

Also, consider looking at P.O.T.S. diagnosis if fatigue is worse the more hours you spend laying in bed. If you feel better when you sleep less and are upright most of the day, then this is definitely something to investigate.

Sun, Jun 14 7:05am · Horrible leg pain with fibromyalgia in Chronic Pain

Do you notice more pain with caffeine intake? If so, I would suspect nerve entrapment in your leg. You could confirm with popliteal injection. I generally experience fibromyalgia as more of a spinal area pain, but I am sure it has different effects on different people. I also really believe that peripheral nerve problems have been written off as fibromyalgia in some patients, so it is always helpful to see someone who treats peripheral nerve pain and knows how to diagnose with tinnel sign and muscle weakness indicators.

Sun, Jun 14 6:33am · Has anyone been diagnosed with Abdominal Wall Pain in Chronic Pain

Clearly, it is not something that the neurosurgeon wants to do if they won't even take appointments. Or, if they are overcome with people that aren't true surgical candidates, they usually pawn you off on some other physician who isn't an actual surgeon but is trained to figure out which patients actually could benefit from surgery. You really need to go elsewhere if you repeated hit dead ends. I find that it is sometimes more helpful to start out with some different problem and work your way up the chain before stating that you have some rare disorder as physicians will think that you are full of it.

Sun, Jun 14 6:24am · Has anyone been diagnosed with Abdominal Wall Pain in Chronic Pain

I have post inguinal hernia pain that is caused by the mesh encasing nerves causing all kinds of pain on one side, but to have true abdominal wall pain is usually an indicator or some systemic problem yet to be found. I can't imagine that with ultrasound and x-ray that anything serious would be missed in the abdomen by the doctors. There are books on chronic pain in the abdomen that you can get, so it is definitely a topic that has been studied. However, it is not a common practice for doctors to treat abdominal wall pain as much as say a chronic joint pain or back pain so you probably really need to push doctors to investigate as much as possible with imaging and definitely try physical therapy to strengthen core if you can. Many chronic pain problems involve small peripheral nerves that are rarely studied as pain generators yet they are exactly that. With experts like Dellon Institute trained physicians, you have better shot at a definitive diagnosis.

Sun, Feb 9 7:15am · Pudendal Nerve Entrapment/Neuropathy/Damage in Chronic Pain

Most likely will have to travel far to find facility to treat pudendal area.

Sun, Feb 9 7:13am · Pudendal Nerve Entrapment/Neuropathy/Damage in Chronic Pain

Peripheral nerve surgeons (dellon institute) can be helpful when other doctor's fail. They actually work with "all" peripheral nerves. However, the surgery for pudendal problems is difficult, so most pelvic surgeons don't ever learn it.